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Hughes syndrome
Mar 12, 2009
... Amelaine, hi. There are some "sticky posts" ( = permanent info posts) at the top of the thread list. The one about "Antiphospholipid Syndrome/Hughes Syndrome" is an overview that includes symptoms, diagnostic criteria, etc. The dr. who did the breakthru work on "sticky blood" is Dr. Graham Hughes. He's London-based (or was; maybe he's retired?), is world-reknowned, and... (7 replies)
... I've been undergoing a work up for multiple sclerosis, which so far has been negative after almost six years of relapsing and remitting symptoms. My symptoms at present are mostly neurologic, weakness, fine motor incoordination, tremors, swallowing and bladder overactivity. ... (0 replies)
... diolipin test then ask if it was the IgM or IgG test. That can tell your risk of clotting just by which one was positive! Does your Neurologist know much about Hughes Syndrome? ... (2 replies)

... If you have possible Lupus, then you are more predisposed to a syndrome called Antiphospholipid Syndrome. It can occur with Lupus or without, and is also known as sticky blood. ... (0 replies)
... I am SO HAPPY that things are working out in the blood department!! The IgG and IgM are the tests for Hughes Syndrome. I am glad that the tests are showing what is going on.. what a blessing!! Are you going to the the Rheumy? ... (1 replies)
... icult time. I am not sure which blood tests they did. If it is a positive ANA, then that is an indicator of an auto immune disorder, depending on other tests and symptoms a diagnosis of whichever disorder it is can be made. ... (3 replies)
Hughes syndrome
Apr 16, 2009
... the thing is the type of doctor you should see is dependent on the symptoms you are having. Some patients do have to see quite a few different specialists for specific problems caused by APS. ... (7 replies)
... Great to hear about all your plans! Especially putting together a Hughes Syndrome Foundation in Canada and eventually the USA. That should help many! I'm interested in hearing more about it and how you are getting it going. ... (10 replies)
... Funny! I just mentioned Dr. Hughes in a post to Sheilat from the UK, who just joined our little family here. ... (10 replies)
... OH I Have good news too. I am trying to get a Hughes Syndrome Foundation going here in Canada so that has been taking up lots of my time too! I have been crazy working on the computer on it. ... (10 replies)
... thank you for posting this it came just in time. I just got off the phone with my neurologist again because I forgot what he had said to me about some things last week. My RH factor is on the high side my antiphospholipid was 'borderline'--he said an inconclusive result is 12-19; mine was 13 and I have NO idea what that even means. He said it is very hard to explain. ... (2 replies)
... I am so happy to hear that you are going to see a recommended Doctor! Dr. Hughes is so brilliant. He recommended one of his collegues for me close to home too, so I am content! ... (12 replies)
... apart from the sadness of the miscarriages, I haven't had any really troubling symptoms for nearly five years. ... (12 replies)
... is life at 46, and my mothers at 56. So, you know I worry about this a lot, but what can I do, other than try to take good care of myself, and pray. What are the symptoms of this APS AND the pernicious anemia, if you don't mind me asking? ... (12 replies)
... professed expert now and my goal is to educate educate educate!!! Seeing Dr. Hughes was the most amazing experience. He is the most dignified, amazing, and sweet man I have ever met. ... (12 replies)
... but you know you're not imagining symptoms like painful hands for 2 years!!! Finally I came to the thyroid board here and read hundreds of messages and determined by myself that I indeed had hypo. ... (12 replies)
... Did you find it helpful to see Dr. Hughes personnally? ... (12 replies)
... My family is really starting to think I am just nutty, and I am getting very depressed over not being able to find the root of my problem. My symptoms are many, but the tingling is awful, I also get this numb feeling in my face. ... (12 replies)
... Hi Everyone! Any APS'ers out there? I am 35 yrs old and new to the board. Briefly here is my story. Thank you for reading. Despite the diagnosis, I feel very relieved to belong somewhere finally! All my life I have had weird tingly sensations as well as Mitral Valve Prolapse. Always written off to anxiety. At 30, I had an uneventful pregnancy with my daughter. ... (12 replies)
... I have APS, and I was diagnosed by Dr. Graham Hughes in London England. I travelled to see him from Canada! Anyway.. ... (35 replies)




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