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... If you have possible Lupus, then you are more predisposed to a syndrome called Antiphospholipid Syndrome. It can occur with Lupus or without, and is also known as sticky blood. ... (0 replies)
... I am SO HAPPY that things are working out in the blood department!! The IgG and IgM are the tests for Hughes Syndrome. I am glad that the tests are showing what is going on.. what a blessing!! Are you going to the the Rheumy? ... (1 replies)
... I called it Hughes Syndrome in the title, easier to remeber how to spell!!! ... (1 replies)

Hughes syndrome
Mar 12, 2009
... Amelaine, hi. There are some "sticky posts" ( = permanent info posts) at the top of the thread list. The one about "Antiphospholipid Syndrome/Hughes Syndrome" is an overview that includes symptoms, diagnostic criteria, etc. The dr. who did the breakthru work on "sticky blood" is Dr. Graham Hughes. He's London-based (or was; maybe he's retired?), is world-reknowned, and... (7 replies)
... diolipin test then ask if it was the IgM or IgG test. That can tell your risk of clotting just by which one was positive! Does your Neurologist know much about Hughes Syndrome? ... (2 replies)
Hughes syndrome
Mar 17, 2009
... ve a history of miscarriage,stillbirth and migraine. The blood tests i have had do not reveal anything out of the ordinary and my doctor is not willing to pursue hughes syndrome. I am now of course wondering if i have ms or not? ... (7 replies)
Hughes syndrome
Mar 12, 2009
... can anyone tell me anything about hughes syndrome or sticky blood (7 replies)
... Does this sound like it could be Hughes syndrome? ... (0 replies)
... professed expert now and my goal is to educate educate educate!!! Seeing Dr. Hughes was the most amazing experience. He is the most dignified, amazing, and sweet man I have ever met. ... (12 replies)
... I'm here on the east coast with antiphospholipid antibody syndrome (aka Hughes). Our stories are so similiar that I really could have written YOUR post! I'm running out the door now, but would love to chat later on. Just glad you were finally diagnosed, that's half the battle. Talk to you soon. Shari (12 replies)
... Did you find it helpful to see Dr. Hughes personnally? ... (12 replies)
Hughes syndrome
Mar 17, 2009
... Hiya amelaine, As you obviously know both ms and lupus are auto immune disorders and are often mistaken for each other. You do need a definitive diagnosis for this and your doctor should be more on the ball with the info. The things you speak of i.e. miscarriage, stillbirth and migraine are but a few of the things that 'can' occur with hughes/sticky blood/aps. I think... (7 replies)
Hughes syndrome
Mar 14, 2009
... Hello, I have aps/hughes/sticky blood. What do you need to know specifically ? Hope I can help. Take care. goldenwings :angel: (7 replies)
... Hello everyone, today i have been dx with hughes syndrome! Up until a few months ago i had'nt even heard of it. I am so very scared to say the least, just can't believe that it can cause strokes etc! ... (1 replies)
... I am so happy to hear that you are going to see a recommended Doctor! Dr. Hughes is so brilliant. He recommended one of his collegues for me close to home too, so I am content! ... (12 replies)
Possible lupus?!?!
Oct 28, 2004
... Its unbelievable how much your story sounds like mine!! I have Lupus, and a blood clotting disorder called Antiphospholipid Syndrome or "Hughes Syndrome". MS mimiks Hughes Syndrome BIG time so a patient can have similar symptoms to MS and be misdiagnosed with it. ... (17 replies)
... I am aware of the CRP diff and its relation to Hughes Syndrome for sure. I will get into detail on that later in this post. I wanted to tell you that low lymphocytes in your CBC go with Lupus. ... (22 replies)
... SO many patients with MS are misdiagnosed.. they actually have Hughes Syndrome because it can mimik so much! ... (6 replies)
Possible lupus?!?!
Oct 29, 2004
... Your symptoms are exactly like MANY Lupus and Hughes Syndrome patients. Having a miscarriage is a "clotting problem" in the eyes of Hughes Syndrome. The fact that you had problems with your placenta also sends off bells in my mind! ... (17 replies)
Questions
Jun 21, 2004
... The biggest concern that I have with you right now is that you have white matter lesions in your brain. These kind of lesions can be seen with MS or with a syndrome called Antiphospholipid Syndrome or "Hughes Syndrome". ... (14 replies)




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