... t if health issues mostly severe swelling and fatigue. The employee health nurse took one look at me and said I think you have Lupus. She did blood work and my ANA came back positive. ... (3 replies)
... I do think I have it, or a close cousin of it.
I have extreme fatigue, joint pain, dry eyes/eye pain, dry mouth on & off, weird skin reactions, raynauds phenomenon, mouth sores. I always had raynauds since puberty but it got worse right before the joint pain and fatigue hit me hard. The rest of the symptoms came on one by one.
My dsDNA has been 18 and lowest 14 recently... (9 replies)
... I had my blood tests back today and nothing to report part from a slight white low count and ana!! test was negative. ... (4 replies)
... I tried to tell my doctor but she wouldn't listen. So I found a new doctor. He sent me for labs on Friday April 10th and here's all the labs he wants. Ana , dsdna, anti smi , anti ro, anti lag, anti phospholipid ab, complete level on all ( labs will only say negative here and not show the number if there is one that's low)
Also sed rate, thyroxine tsh 3rd gen and C-reactive... (3 replies)
... Patients meet 4 or more of the ACR criteria. ANA is positive. This is "classic lupus", the form we think of when we hear the word. ... (3 replies)
... Could it be possible that even though the ana was neg I could still have lupus? ... (3 replies)
... up for a positive ana and full count? ... (4 replies)
... dsdna, headaches, low grade fevers, swelling in my finger tips, pain in joints and muscles and two days after I went to the rheumy I had mouth sores which I have never had. ... (6 replies)
... also common in lupus. The BP drops too low during upright posture changes and the heart speeds up to compensate. ... (28 replies)
... I saw my pcp today and he also said vitb12 of 244 is low, to take 1000mcg a day, but after reading these posts I'm going to start at least with a sublingual 2000 mcg a day. He also said the testing for vitb12 absorption ( shilling test ) is no longer awailable ?? I will ask my neuro dr. too. He also recommended 1000 IU of vit. D a day, maybe I'll make that a 2000 IU at least... (28 replies)
... A urine check is essential when considering lupus as a diagnosis. There are several ways lupus can affect the urine IF the kidneys are involved: excess protein or blood, casts (not normally seen). It is so simple, yet often forgotten in the work-up. Sublingual B12 is available OTC, and it will say SL or sublingual (small print sometimes) on the label. As low as yours is, 2000... (28 replies)
... It depends on the test Ladybud, some tests go up to the thousands, some max out at 300 or 800 (ie the Multiplex by Bioplex 2200 maxes at 300) (28 replies)
... As far as thyroid, I would ask for TSH, free T3, freeT4 and thyroid antibodies (anti-TPO and anti-TG). The first 3 are hormone levels to pick up hi or low production, and the last 2 are antibodies that destroy the thyroid gland over time (Years). It is autoimmune also, called Hashimoto's thyroiditis, and can coexist with lupus or mimic it. It causes noticeable fatigue in the... (28 replies)
... Many people with lupus have low B12 counts. ... (28 replies)
... What about the vit b12 level ? 2 years ago( actually 2 and a half ) was 259 and now it's 244 ( out of 211-911 range ). The rheumy didn't even mention it as low, now the neurologist say it's kind a low. So is it a "good" sign that actually it didn't go really lower since then ? ( I know that people have problems even with higher numbers ) So how can I know the b12 is a problem ? (28 replies)
... I have no recent titer on ANA, my labs just flag ana positive if any of the other antibodies are positive. ... (28 replies)
... and the rheumy didn't even mention it that it's maybe low, but the neurologist now said it's kind a low even if it's in the normal range. ... (28 replies)
... NYSue, To add to Vee's good explanation, I agree that lupus is a possibility, especially with anti-dsDNA antibodies present. The hip pain, headaches, dizziness and lightheadedness all are common complaints, but with your Vit B12 so low, (it should be over 400 and better over 500, that alone could cause the dizziness. So I definitely start supplementing that immediately, either... (28 replies)
... nysue, I'm just a patient but I think your labs and symptoms could be suggestive of lupus, but only depending on your lab levels. To put your lab results into context, you really do need the reference ranges. Also, there are OTHER tests typically run when lupus is suspected, so you'd want to know what ELSE was run. Could you procure hardcopy of your labs?
To illustrate.... (28 replies)
... 2 years ago it was ANA 1:80 and the anti-dsDNA was 10, now it's ANA 1:40 with anti-dsDNA 22. So which is worse ?
2 years ago they said it's borderline and if I don't have symptoms, let's wait, they didn't dx. me with lupus.
I had ( and still have ) unexplained hip pain ( comes and goes ), headaches and lightheadedness ( had them before, but usually around periods ), but 2... (28 replies)