... s were still so low as to be deemed negative. i.e., is 13 a very low number, or not? ... (4 replies)
... allergist. He ruled out all the allergies and ordered an ANA suspecting Lupus. ... (4 replies)
... Sockie, I've never read that a rheum MUST find *specific* AB's (AB's = autoantibodies) to pin down a dx more refined than the generic "CTD", but one sure senses they look for them! (The ACR criteria for each of these conditions are likely to contain one or more specific AB's, but with most of those criteria lists, a patient only must fulfill "some" criteria.) Another thing... (10 replies)
... He never did the steroid challenge, mostly I've just been brushed off. The problem is my symptoms are just that, symptoms. Other than the ana, my other bloods are fine, or borderline. Thyroid has always been fine, and tested repeatedly as they think my symptoms sound like thyroid too. When I first got ill my liver enzymes were off and my inflammatory markers were slightly... (6 replies)
... u. You do have several symptoms suggestive of lupus, plus two tests that support the diagnosis. 19 is not very high on the dsDNA, and many people with lupus have low numbers like this and do not have kidney involvement. ... (3 replies)
... but having a chronically low WBC is definitely not normal. ... (7 replies)
... Thank you so much for the reply Vee! I will look over the sticky posts and see what I can find.
I was able to get a copy of my lab results and my ANA shows >=1:1280 Speckled. Other notable results were the slightly low Vitamin D (the labs agree with you, normal being above 30, but my doctor was looking for 50 or more) and the low WBC count (3.5, the results show 3.6 is... (7 replies)
... Once ANA is positive, rheums run tests for specific autoantibodies called "ANA subtypes". ... (7 replies)
... Hi Everyone...I'm new here. I visited my doctor last week and she called with my blood test results yesterday. She said that my ANA (antinuclear antibody) test was positive and my vitamin D level was low (it was 28, they wanted at least 50). She's referring me to a rheumatologist, but of course I'm anxious to find out what this is (if it is something). My sed rate and... (7 replies)
... but all my other antibody tests are normal. He doesn't think I have lupus, but he doesn't like to leave the ANA that high with my symptoms as they are and he is pretty sure that is some sort of autoimmune going on. So he decided to start me on hydroxychloroquine. ... (6 replies)
... Ah okay I see where you mean, thanks very much. I don't think my redness really changes too much, I guess I'll try to pay closer attention. It's not so obvious, like it doesn't look blistered, just redder than a normal complexion, and kind of blotchy, so I might be over-reaching there. I guess we'll see what the rheumy thinks of it.
And thanks, I hope this is a turning... (7 replies)
... Hi. For the alternative criteria, open the sticky titled "Criteria to diagnose lupus", then scroll down to a separate post within the same thread; it begins with the words "ST. THOMAS". (That's the London hospital in which the doctor who developed the list practiced.)
The classic butterfly (malar) rash tends to come & go, and can last days, hours, or weeks. I've seen pics... (7 replies)
... The more I read the more I start to consider too...I don't know if I can attach a photo, but I'm wondering if my naturally ruddy/reddish cheeks are the butterfly rash. Does that come and go? (7 replies)
... I don't know if I'm seeing the "alternate criteria"? Maybe I'm missing something?
Yes I was glad I asked for a copy of the results, I feel better somehow knowing the number--I know that sounds strange, but I know it's not borderline and I won't be blown off by the doctor, does that make sense? For so many years many of these symptoms were brushed aside or I tried to... (7 replies)
... Thank you all for your input and for sharing about yourselves. It certainly feels better to know I am not alone, not that I would wish this on anyone! Also, thanks for all the great info on labs and vitamins/etc. I have been doing my best to keep track of my labs. They checked my thyroid like 3 different times because the second time it was abnormal (high) and then it was back... (7 replies)
... lots of GI issues recently such as constipation, etc, and I do experience low grade fevers frequently. I'm sure I'm forgetting something. I have been to many doctors and specialists. ... (7 replies)
... bladder ultrasound. Do you know what's been found so far re lupus, like ANA and the more specific autoantibodies that are commonly seen in lupus? ... (6 replies)
... ir, feeling fatigue and also started to experience dysphagia, with food getting stuck and not being able to go down. I had many of the symptoms of lupus, but my ANA came back equivocal. He started to treat me with plaquenil, which I have been taking ever since. ... (8 replies)
... test result on ANA show up. They were all negative up until then, and although I knew something was wrong, I could not get answers. Low C3 and 4 do occur in lupus but are not specific to it. You are developing more symptoms, which will help in identifying what is going on. ... (2 replies)
... tests even though ANA was negative. When ANA is done using the "reflex" testing approach, if it's negative, all the various AB tests aren't necessarily run. ... (18 replies)