... also common in lupus. The BP drops too low during upright posture changes and the heart speeds up to compensate. ... (27 replies)
... Thanks for your reply Vee! Pretty much all my blood work looks good, urinalysis was good, Sed rate was low, CRP was low and we haven't checked my thyroid. My RF was 8 in August and she didn't check it this time around. ... (3 replies)
... is similar. To my eye, granulocyte seems pretty off, which when low is called "neutropenia". ... (2 replies)
... I saw my pcp today and he also said vitb12 of 244 is low, to take 1000mcg a day, but after reading these posts I'm going to start at least with a sublingual 2000 mcg a day. He also said the testing for vitb12 absorption ( shilling test ) is no longer awailable ?? I will ask my neuro dr. too. He also recommended 1000 IU of vit. D a day, maybe I'll make that a 2000 IU at least... (27 replies)
... A urine check is essential when considering lupus as a diagnosis. There are several ways lupus can affect the urine IF the kidneys are involved: excess protein or blood, casts (not normally seen). It is so simple, yet often forgotten in the work-up. Sublingual B12 is available OTC, and it will say SL or sublingual (small print sometimes) on the label. As low as yours is, 2000... (27 replies)
... It depends on the test Ladybud, some tests go up to the thousands, some max out at 300 or 800 (ie the Multiplex by Bioplex 2200 maxes at 300) (27 replies)
... As far as thyroid, I would ask for TSH, free T3, freeT4 and thyroid antibodies (anti-TPO and anti-TG). The first 3 are hormone levels to pick up hi or low production, and the last 2 are antibodies that destroy the thyroid gland over time (Years). It is autoimmune also, called Hashimoto's thyroiditis, and can coexist with lupus or mimic it. It causes noticeable fatigue in the... (27 replies)
... Many people with lupus have low B12 counts. ... (27 replies)
... What about the vit b12 level ? 2 years ago( actually 2 and a half ) was 259 and now it's 244 ( out of 211-911 range ). The rheumy didn't even mention it as low, now the neurologist say it's kind a low. So is it a "good" sign that actually it didn't go really lower since then ? ( I know that people have problems even with higher numbers ) So how can I know the b12 is a problem ? (27 replies)
... I have no recent titer on ANA, my labs just flag ana positive if any of the other antibodies are positive. ... (27 replies)
... and the rheumy didn't even mention it that it's maybe low, but the neurologist now said it's kind a low even if it's in the normal range. ... (27 replies)
... NYSue, To add to Vee's good explanation, I agree that lupus is a possibility, especially with anti-dsDNA antibodies present. The hip pain, headaches, dizziness and lightheadedness all are common complaints, but with your Vit B12 so low, (it should be over 400 and better over 500, that alone could cause the dizziness. So I definitely start supplementing that immediately, either... (27 replies)
... nysue, I'm just a patient but I think your labs and symptoms could be suggestive of lupus, but only depending on your lab levels. To put your lab results into context, you really do need the reference ranges. Also, there are OTHER tests typically run when lupus is suspected, so you'd want to know what ELSE was run. Could you procure hardcopy of your labs?
To illustrate.... (27 replies)
... 2 years ago it was ANA 1:80 and the anti-dsDNA was 10, now it's ANA 1:40 with anti-dsDNA 22. So which is worse ?
2 years ago they said it's borderline and if I don't have symptoms, let's wait, they didn't dx. me with lupus.
I had ( and still have ) unexplained hip pain ( comes and goes ), headaches and lightheadedness ( had them before, but usually around periods ), but 2... (27 replies)
... CRP are always bottom of the bucket low even when I swell, my rheum doesnt test mine anymore. ... (9 replies)
... A + ANA does not always mean lupus. Many of your symptoms are suggestive of a low thyroid level, and an autoimmune thyroid condition (hashimoto's) can cause a + ANA. I would at least request to have both thyroid hormone and thyroid antibody levels run now to check for Hashimoto's/hypothyroidism, through your PCP, as that may shed some light on at least some of your symptoms. (9 replies)
... emale. Swollen glands, joint pain ,frequent headaches, extreme fatigue, random chest pains. Went to physician and he took blood and urine. Results came back with low vitamin d 18. ... (1 replies)
... Good morning. I believe that vasculitis, like lupus, can affect a huge range of organs, including skin, and that it can be sudden-onset or gradual.
At any point did you mention skin abnormalities on your lower extremities? (In the back of my mind, someone here did but I couldn't find it.)
On your recent labs, in addition to the very general ANA, did you see MANY tests... (7 replies)
... reflex is when they titer it out, or for more testing of other antibodies.. I always thought of reflex as "further testing".
usually they dont retest ANA as it fluctuates a lot, and doesnt correlate with disease activity unless the first testing is low (1:40, 1:80). Once you have a positive its positive.
Its good he's treating in the meantime, if it starts helping you... (11 replies)
... Actually just got an email new test results in still not all but Dr did retest ana it is 1:640 homogeneous and speckled also shows a positive ana with reflex that is positive not sure what that is (11 replies)