... my daughter started this crazy autoimmune journey about 4 years ago at the age of 16. (atleast thats when we realized her years of "weirdness" were actually SOMETHING)After some strange knots and rashes and being hospitalized and put on rocephin and bactrum only to spike a temp of 105 and develop a bright red rash from head to toe she was referred to a rheumatologist. She had... (2 replies)
... Good morning. Re your positive anti-Ro, it is actually possible, but rare, to have lupus with a negative (or very low) ANA coupled with a positive anti-Ro (in the absence of other autoantibodies). This "subset" is sometimes called "Ro-lupus" and is thought to comprise only a very small percent of all systemic lupus. This is the very subgroup I fell in, and my local doctors... (14 replies)
... this would be wonderful if it was low levels of either of those two because this would help me be able to be more comfortable and be able to possibly sleep through a night solid though. ... (8 replies)
... hair thinning, low Vit D, Raynaud's, etc. ... (8 replies)
... Wow you have had a tough time for a long time. Many of your symptoms could fit with lupus or something close in the autoimmune or connective tissue disease family. Here are some suggestions: See if you can get into the rheum on a cancellation. Call the office and ask them to call you if one comes up, or call them frequently and ask if they have anything sooner than 3 months... (8 replies)
... I am very confused and don't know how to go about writing what I have to say since there's so much that's occurred through out the years on and off. strange things physically out of the blue, like my psoas muscle became inflamed and very painful for no reason. I had to get an injection in it which worked.
It all began in the year 1998 right after my divorce.
I went to work... (8 replies)
... In addition to what Vee has said, you might ask your rheum for xrays of your worst joints. If erosions are seen, it would confirm RA. Some people have a combination of lupus and RA, unofficially called rhupus. I agree celiac testing should be done, and a hepatologist (liver specialist) will probably be needed as well, if your ALT stays elevated. Be sure to avoid alcohol and... (2 replies)
... tests. I can't tell how thoroughly you've been screened for lupus and its close cousins. In the "further tests" that revealed positive ANA and RF, were you also tested for the large array of AB's seen in lupus and its close cousins? ... (2 replies)
... ANA titer 160 homogeneous the only specific antibody abnormality was low C4 and positive but not high RA and a low positivity in Microsomal AB. So I have significant ANA titer but no red flag ANA's really. ... (2 replies)
... stronger to treat your illness. I think treatment is more important than the name they give it and at the lower levels, the drugs are the same. I disagree that a low see rate means disease is not active. Some people like me have normal see rates even in a terrible flare. ... (17 replies)
... of patients with SLE will have a positive ANA, making it highly sensitive and useful as a screening test. A negative ANA makes SLE very unlikely and other diagnoses should be sought to explain symptoms. ... (1 replies)
... ally were in my head. No one knew what to do with me and i was just going downhill so fast. I was a good student in high school but i could barely manage C's and low B's in college.. I dropped out during my junior year. ... (3 replies)
... I was only diagnosed with suspected SLE at the end of last year when the pain got much more intense and migrated around my joints, I had a high positive ANA and a positive DSDNA. ... (21 replies)
... as well as referring me to a heumatology clinic for a review on my low lymphocytes. ... (21 replies)
... I ended up getting into the rheumatologist much sooner than I had expected due to a cancellation. He didn't say much except that he needed to run more tests. My ANA this time came back positive 1:40 speckled, very low ESR (2) and CR-P (<3), normal C3 and C4 protein levels among many other normal results (including infectious diseases like HIV and syphilis). I did have a... (14 replies)
... Chronic pancreatitis can be autoimmune, so I would think it is related as long as other causes such as gallstones have been ruled out. (3 replies)
... medical help when I started having pain in my joints and exhibiting signs of Raynaud's, which I was later diagnosed with in January. My pediatrician ordered an ANA test, which was positive, and referred me to a rheumatologist, whom I saw in January. ... (5 replies)
... Hi. I'm sorry you're so frustrated, on top of having symptoms like this. From things my doctors have said, here are my best guesses why he hasn't named this yet.
He called your anti-ds-DNA "low level". On my lab printouts, this AB is typically "parsed" into ranges: negative, equivocal, weak positive, positive, and strong positive. My doctor wouldn't count anti-ds-DNA as... (5 replies)
... I'm confused and a little annoyed, and I am hoping someone can shed some light on a response I just received from my rheumatologist. For the past year I have gone through the mill with numerous blood tests, MRI's, , Ultrasounds, etc. I was diagnosed with Hashimoto's in May of 2014. I went through weeks of muscle pain, severe joint pain and swelling, dizziness, brain fog,... (5 replies)
... splinter hemmoraghes under my finger nails, beaus lines, chronic mild inflammation of my pancreas, GERD and in the last 1.5 yrs chronic low grade fevers that come and go and also bouts of EXTREME fatigue. ... (3 replies)