... ht of sarcoid, where higher levels are bad for you, but that I will start taking, again, If I do not take a supplement of that, it is chronically low, my crp and sed rate have been elevated for over three years. My RHEUM knows this, and put it all down to fibromyalgia. ... (14 replies)
... Your sed rate being high for so long sure stands out! ... (14 replies)
... I have read the requirments needed for Lupus. I have high ANA levels arm and leg weakness hard time lifting and walking up stairs short of breath tired all the time. ... (5 replies)
... Angie, Glad you wrote back. I left out a question: what was the ANA pattern? e.g., speckled, rimed, homegeneous, ETC. Patterns can narrow the focus to a smaller # of things to consider first.
Your rheumie "doesn't believe in high ANA levels"?!? I know I've read that ANA isn't the most meaningful marker of disease activity---but to believe one this high means NOTHING... (5 replies)
... Even though my Rheumie does not believe in ANA levels she keeps going back to lupus, even though i had the panel done and it was all neg. ... (5 replies)
... speckled, low sed rate........ ... (6 replies)
... My symptoms still persist and new ones come daily and I thought either I had lupus or MS and now I don't know what else to be tested for. I had normal sed rate levels, normal cbc, red blood cells and general blood work, no vitamin deficiancies and even a normal brain MRI and nerve condunction test in Feb. ... (2 replies)
... Hi, Arctic Wolf, and welcome. Have you seen those "sticky posts" (permanent info posts) at the top of the thread list? They contain basic info on lupus, also on antiphospholipid syndrome, a clotting disorder often seen in lupus patients. They're an excellent place to start because the info is basic, and then you can build on it as you read more.
Those diagnostic... (2 replies)
... Complements are proteins that inflammation depletes, thus those complement levels can go low in people with chronic inflammatory conditions like lupus. ... (6 replies)
... chronic infections, elevated sed rate, depressed WBC, etc. Tired beyond words, I even fell over several times on the way to work. ... (2 replies)
... made me sick. During this time I was getting worse. Hands, feet, ankles, knees, hips, elbows, shoulders, pretty much everything was stiff, hurting. I also had low grade fevers the whole time 99. ... (5 replies)
... Always been spreckled. Had Sed rate be out of range over the years too. This was not checked this last time. But the DNA was and it was negative. ... (20 replies)
... Hi & welcome. Sorry you're having problems wihout any clear answers yet, but as you might suspect, many of us here have gone thru this, and we can truly empathize!
Did you have only one ANA test? And is your dr. a rheumatologist? I think ANA may vacillate as flares rise and recede, so one set of tests may not be adequate, if done at a "bad" time. Also, there's a very... (2 replies)
... I think they were most worried about extremely low WBC. ... (9 replies)
... The Endocrinologist ordered a plasma and urine catecholamine levels checking for pheochromocytoma that were normal. ... (121 replies)
... were all high, and my platelet count and sed rate were really low. He had me go and have the cbc panel done again the next day, and he got the results that afternoon. His nurse called me to tell me that the Dr. ... (1 replies)
... still not able to get the synthroid levels acceptable.. ... (0 replies)
... O.K., once again no medical experience, just my opinion of what I would ask the Dr. for if I were you.
I would ask to be tested for APS, the test for that (one of them anyway) is the RVVT or Russels Viper Venom Test.
As for Lupus proving/specific tests, I would ask for another ANA as the results can change with time, and it may have increased. I would ask for an... (5 replies)
... She also had complements run, and her c3 was low, but she looks good otherwise. She has elevated liver enzymes, and high CRP and sed rate when flaring. It makes me very nervouse with her only being 4 years old. ... (11 replies)
... seem to think was significant but of all I have read, it may be...I had a love MPV or mean platelet value...granted it is not completely in the tank, but it was low and when I asked him about it, he sort of blew it off. I know it has something to do with our immune systems though. ... (24 replies)