... Thank you Vee for your thoughtful and understanding response. The plaquenil, quinicrine, methotrexate and Rituxan are the four I take to cover the Sjogrens, RA, Lupus spectrum. ... (3 replies)
... eople to see or its just random things. Two days ago my left eye went really bloodshot, for no reason. While I think this is odd, no one else does, my eyebrows and hair fall out but since its not in patches the doctors say well its normal. ... (4 replies)
... I agree she should see a rheum, but there seems no point in waiting. A 12 year old shouldn't have a positive ANA at this level, and she clearly has problems for such a young girl. What is repeating the test in 6 months going to prove? ... (3 replies)
... stinging bee sensations that jump around, muscle twitching all over body. Also beaus lines on nail and blood lines under finger nails. At times I get livedo riticularous on my thighs when in hot sun. Also have bouts of mild pancreatits. Not sure if its related. ... (4 replies)
... years, and it's been enough to arrest progression. ... (3 replies)
... welcome. I'm sorry you're struggling, and with multiple problems. Not fun! I'm only a patient, so please read this accordingly, OK? ... (1 replies)
... I don't think that is considered high or low. I have a rheumie appt on Wednesday and I'm almost positive I will land in "maybe" land. ... (10 replies)
... Hi, "cm", and welcome! I also had episodic GI problems so severe that Crohn's or Ulcerative Colitis seemed the most logical candidates. ... (10 replies)
... This is going to be pretty long and i apologize but I would love some advice. ... (10 replies)
... lupus, anything harder knocks me for a loop, but I don't know whether my lack of tolerance for anything stronger is due to lupus or aging. I do know other women who became less tolerant as they aged. ... (2 replies)
... Just to add to the mix, I don't have lupus but if I get sun exposure anywhere, I can get the "sunburn" anywhere but on the sun exposed part. If I leave my lower arm exposed in an open window in the car, I'll get the "sunburn" on my back. ... (8 replies)
... Thank you sooooo much Vee and Lady. You both bring up some interesting points. I'm definitely going to find out about seeing a dermatologist. ... (8 replies)
... a facial rash. I think it's possible, depending on to what extent, and at what angle, the sun hit you. Was it, say, in a car, where your face was the only part getting sun? ... (8 replies)
... urinary problems, low WBC, elevated ESR, etc. My skin rashes were the last symptom to arrive. ... (2 replies)
... Hi. Your comment about sun on your NECK causing your FACE to redden is also very interesting! ... (8 replies)
... I was out in the sun today and I expect to feel like crap tomorrow. I think the morale of the story is to stay out of the sun. ... (1 replies)
... While I was diagnosed with cutaneous lupus about 6 months ago due to results from a lesion biopsy, I've had absolutely no other symptoms and, therefore, have been a bit skeptical about the dx. ... (1 replies)
... I have lupus and the sun bothers me more and more as the years go by. I now where sunglasses even in the car in bright sunlight as it now only takes a little bit of sun to set off my lupus and make it worse. ... (4 replies)
... I wrote about web like rash I got all over my thigh a few months back. Dr thought for sure it was a lupus rash but my labs were fine. ... (1 replies)
... e was one point when I saw a doc in lake havasu that he wouldnt touch me with a ten foot pole. Said I was not a canidate for surgery but I was also in full blown lupus flare non stop with hyperthyroid, pernisious anemia, 2 back fractures, and interstitial lung disease from lupus. ... (3 replies)
