... Hello! I've been reading through the message boards off and on for a few months, and decided to join today. I'd love opinions re my situation...
I became ill in October and haven't felt back to 100% since then. I've been sick (low grade fever, aches and pains, sore throat) 4-5 times since then.
In February I was DXd with hypothyroidism and then Hashimoto's. I'm on... (8 replies)
... I often used a decongestant for similar problems with my ears ( I have lupus) (8 replies)
... clinic, it's taking forever to get into the EMT and rheumatologist, but I'm also experiencing extreme fatigue and joint pain, my original lupus symptoms. ... (8 replies)
... The doctor said he thought it was the autoimmune disease attacking my ear. Saw him 2 days ago. (8 replies)
... Hi, Nancy, the little I've seen about lupus and ear problems is that ear problems are rare in lupus. ... (8 replies)
... and felt and sounded like a bug was in the ears. Doctor looked at ears and they were fine. ... (8 replies)
... Hi, Nancy. I've met people with lupus with inflamed pinnas (the bony cartilege). Also a woman who had terrible seborrhea on her outer ears (brown, crusty, weepy, itchy) & needed heavy IV antibiotics to get it to clear up. Is that the sort of thing you meant, or did you mean impaired hearing? Best wishes, Vee (8 replies)
... Has anyone had Lupus attack their ears? ... (8 replies)
... Thank you both for replying to my post. I have been reading for years on about Lupus, and just hadn't found hardly information on my ears. Maybe they will put me back on prednisone. I was having such a rough time financially just affording my HBP meds, and now these, its enough to drive someone bonkers, not even counting the itching.I do appreciate the info. (3 replies)
... and increases healing time, but when you can't hear and your ears are itching and feel like they are plugged up with something, who can just let that alone? ... (3 replies)
... Dear jusbreatheOM, OOOOOW! I'm wincing... I haven't had anything as nasty as what your describe for your ears or eyes (only lesser stuff). But I know a woman, Dx'ed with SCLE (subacute cutaneous LE) and antiphospholipid syndrome, who had chronic nasty ear problems. The surface skin around her pinna, etc. was crusty, oozing, itchy, painful, etc. I don't think she ever... (3 replies)
... or methods that worked for you are appreciatedI have had Lupus for more than 13 years. ... (3 replies)
... nd anxiety too. I had a strep test and mono and they came back negative. My pcp referred me to my ENT specialist who took out my tonsils and fixed my sinuses. My ears and nose feel fine. I can breathe and he looked at them and they were fine. All over my right side he touched my throat and killed all day long. ... (9 replies)
... my doctors are now at the point where they wont order any further testing and they have completely ruled out lupus as a diagnosis. ... (12 replies)
... Do you take any lupus meds? ... (3 replies)
... also scarring in my ears and sometimes get lesions and rashes from the sun if I use perfumed sun cream etc..!! ... (3 replies)
... called "alternative criteria", listing things that happen earlier in life in people who develop lupus later on. Well, guess what? ... (3 replies)
... ood work came back positive for homogeneous ANA. Although, I haven't seen my rheumatologist yet, I assume with all of my symptoms this will sort of "cement" the Lupus diagnosis. ... (8 replies)
... Also, place the tucks anywhere from ears to back of head, not in front, to prevent your acquiring tiny dent marks on your forehead. ... (21 replies)
My daughter was diagnosed with just the skin Lupus. I am at this point just wanting to understand this better. If anyone has a child with this, please let me know. I want to make sure I am taking care of her as best I can. And then again not too over do it!
She is only 9 years old. It would be great to learn from others, especially if you had it as a child!
She... (3 replies)