... I often used a decongestant for similar problems with my ears ( I have lupus) (8 replies)
... clinic, it's taking forever to get into the EMT and rheumatologist, but I'm also experiencing extreme fatigue and joint pain, my original lupus symptoms. ... (8 replies)
... The doctor said he thought it was the autoimmune disease attacking my ear. Saw him 2 days ago. (8 replies)
... Hi, Nancy, the little I've seen about lupus and ear problems is that ear problems are rare in lupus. ... (8 replies)
... and felt and sounded like a bug was in the ears. Doctor looked at ears and they were fine. ... (8 replies)
... Hi, Nancy. I've met people with lupus with inflamed pinnas (the bony cartilege). Also a woman who had terrible seborrhea on her outer ears (brown, crusty, weepy, itchy) & needed heavy IV antibiotics to get it to clear up. Is that the sort of thing you meant, or did you mean impaired hearing? Best wishes, Vee (8 replies)
... Has anyone had Lupus attack their ears? ... (8 replies)
... Thank you both for replying to my post. I have been reading for years on about Lupus, and just hadn't found hardly information on my ears. Maybe they will put me back on prednisone. I was having such a rough time financially just affording my HBP meds, and now these, its enough to drive someone bonkers, not even counting the itching.I do appreciate the info. (3 replies)
... and increases healing time, but when you can't hear and your ears are itching and feel like they are plugged up with something, who can just let that alone? ... (3 replies)
... Dear jusbreatheOM, OOOOOW! I'm wincing... I haven't had anything as nasty as what your describe for your ears or eyes (only lesser stuff). But I know a woman, Dx'ed with SCLE (subacute cutaneous LE) and antiphospholipid syndrome, who had chronic nasty ear problems. The surface skin around her pinna, etc. was crusty, oozing, itchy, painful, etc. I don't think she ever... (3 replies)
... or methods that worked for you are appreciatedI have had Lupus for more than 13 years. ... (3 replies)
... thick, and adherent. Favors face, ears and scalp. ... (0 replies)
... Thankyou for your response. It's good to get feedback and information so I can see if my symptons are associated with lupus. As I cannot get an clear diagnosis from the dr's I feel like I'm left in the dark. Just curious if you don't mind answering have you been diagnosed with lupus? If so how did they diagnose it?
In aswering your questions, here are my answers.
Result... (3 replies)
... People with lupus are indeed "eligible" for multiple rash types. ... (3 replies)
... Consistent with Lupus erythematosus. ... (3 replies)
... k right now. My pours on the right side are different. I have a faint quarter on my chin that never went away. My doctor told me that discoid comes out on the ears first. I didn't have that but maybe I will ? ... (16 replies)
... Watoozie, you didn't need this! Did you see the recent thread in which another member discusses lupus-ears? From that, I actually suspect (but don't "know") that Plaquenil side effect is only one possible cause.
Another thought: did either doctor consider cutting your Plaquenil dosage? I was put on a maintenance dose of 200 mg (meaning one pill daily) about 1-1/3 years... (1 replies)
... Thanks! (8 replies)
... Nancy, glad you got fresh input, but sorry about the possibility. I just read about a condition called AIED = Autoimmune Inner Ear Disease. Maybe you can get info from a reputable organization? Wishing you some relief soon, Vee (8 replies)
... It is possible for lupus to attack the ears. I have not been diagnosed with lupus yet, but my ENT suspects it. I have had hearing loss and congestion in one ear since August. I finally had an MRI, and it showed Mastoiditis. ... (1 replies)