... t so weary at times before my dx that I didn't know how I could make it to work, attend to family obligations, cook dinner, or anything else, and I didn't have a toddler to care for as she does. The fatigue these things can cause is flattening... ... (10 replies)
... I hope this isn't too terribly long...basically i've been wondering about lupus but really dont want to go to the dr unless im positive because i dont want to be thought of as a hypochondriac. ... (2 replies)
... I decided to take him to the Dr and explain my concern about the rash, he sent me to a dermatoligist,who basically told me Andrew was fine it was just a typical toddler rash and to change the washing detergent I use on his clothing. Lately Andrew is not the same he has good days and bad days... ... (2 replies)
... Hello everyone!
I am new. I finally broke down and decided to join since I am hitting my frustration point.
Like many of you, I've suffered for years with symptoms starting in my teens.
I've had 2 cases of sun sensitivity rashes, which I was so naive and thought I had sun poisoning. The first was around 16 years old. I decided to sun bathe in my back yard. Typical... (5 replies)
... does tell us to limit sun exposure and to use use hats and good sunscreen on him. We also do 6 months screens on him for ANA. He also had Kawasaki disease as a toddler and some articles on that point to it being an autoimmune disease as well. ... (16 replies)
... Her pediatrician just refers us to a specialist for every thing. We've seen just about every specialist in town. The neurologist suggested Lupus and was the first to run the ANA. He really thinks it is Lupus but said it takes time to get a diagnosis. ... (7 replies)
... Dear Zorm, There was a case in Texas a few years back that opened the doors wide to lawsuits, insurance involvement, more medical studies on effects of mycoplasmas, etc.
I can't remember the family name, the town, etc. (Sorry.) But the gist was that a family had built a huge home. The father and the toddler son both fell ill, the dad especially with severe MS-like... (2 replies)
... is blood work that tells them there is something going on with my son, but many doc's feel that since he looks so good that he will outgrow it. What do kids with Lupus look like exactly? ... (12 replies)
... tterfly rash other than lupus, but everything I can find points in the direction of lupus. And I have to say I am very discouraged by the lack of information on lupus pertaining to kids. ... (12 replies)
... of lupus patients at some point. ... (12 replies)
... I have looked up what you have suggested and there is a lot of reading to do, which I plan to further investigate before i go to the rheum. doctor. I have some further questions for you, if you don't mind answering them?
Jordan has had an elevated ESR done during his times of being unwell, would this also somehow detect this form of lupus? The other test to check for... (12 replies)
... I live a short 24 miles out of midtown Manhattan. You'd have thought they'd heard of this form of lupus way up here, right? ... (12 replies)
... induced lupus erythematosus"? ... (12 replies)
... My lupus affects my kidneys. I do have a few skin problems but not as much as compared to others. ... (12 replies)
... Also, not all people with full systemic lupus have a positive ANA. ... (12 replies)
... I am so sorry you and your child are having to go through this. I did want you to know that I have had lupus for sometime, confirmed through bloodwork and other tests. I do not test positive for ANA. So it is possible to have lupus this way. ... (12 replies)
... I called his pediatrician who immediately booked my son into a Rheu. doc for follow up for lupus. But I always thought he could not have lupus due to a neg ANA result. Is it possible he has lupus afterall? ... (12 replies)
... did research, Lupus was the only thing that fit me to a T. ... (1 replies)
... ere 4 to 6 times in as many hours, then I'm fine. I could find no rhyme or reason for that and at present, it's stopped for whatever reason. At the moment, the lupus is fairly quiet, too, and I'm appreciative! ... (3 replies)
... I cant believe how helpful this has been for me. I was diagnosed with Lupus SLE and Hughes in 2003 after a string of illnesses and feeling so unwell. ... (3 replies)