... Many people with skin (cutaneous) lupus have negative ANAs, but may have positive anti-Ro (SSA) .antibodies. These should be run. It is also seen that some lupus patients also have immune deficiencies, so a visit with the immune Dr is a good idea. Topical Tacrolimus is a Rx cream that can help the skin rashes in people who can't take Placquenil. A dermatologist would be the Dr... (3 replies)
... specialty lab. He also diagnosed at the time, undifferentiated inflammatory disease. That one always makes me want to roll my eyes. Anyway, I do not tolerate plaqenil the nausea is too bad, so I have been on dapsone. ... (3 replies)
... My Rhuematologist thinks I have RA or lupus, but that I don't quite meet full diagnostic criteria yet. Do I wait to for worse symptoms or start Plaqenil?
I believe she is thinking of starting meds based on my description of past symptoms, mild symptoms still here, and labs. (positive ANA homogeneous pattern with low C3 and low normal C4.)
I've had joint pain flare and... (5 replies)
... I've ha the 20-25 lb. weight swings too - no reason. (2 replies)
... Right now I am feeling very energetic,, have been doing my yoga again and staying busy all day. I am eating very healthy and following the routine I always follow to successfully lose weight, but I don't lose anything!
I know lupus usally makes one lose weight but not me... so what is this weight gain all about... (2 replies)
... Hello, I have two questions. I have just recently been put on plaquenil and mobic for lupus.
I have had several incidences n the last few years where, with diet and exercise i have lost weight and am in great physical condition and suddenly I start gaining weight for no reason... then later will start losing with no changes in my life or lifestyle.
Does anyone else... (2 replies)
... It's going to take more than just plaqenil to knock me out of this flare I am in. ... (14 replies)
... Hi VeeJ,
TY for your reply....I am not sure why they said I tested positive for Sjogrens without them doing the tests that you mentioned but they did confirm it with blood tests....I am still very confused by this whole lupus DX & the newest DX of Sjogrens....my ANA test came out very high they said it was >1280 (Abnormal)....WBC is 3.4giga/L(Abnormal)....nuclear AB is... (20 replies)
... of lupus i get this pink butterfly rash on my face and it burns it comes and goes i hate it ... and i feel like im different then every one else. I have to take plaqenil and asprin also because im high risk for blood clots its not fair. its taken me sometime to exsept my self for the way i am. ... (8 replies)
... Hi, well I finally got dx yesterday. I have lupus and cidp. The doc started me on plaqenil (I think that is how it is spelled). I am scared to take it!! Can all of you who has taken it tell me how it is and if it helps. Thank You so much and God Bless all you!!!
Sallie (1 replies)
... I got home to late to call my rhuemy but will in the morning about taking the plaqenil the opt. said to continue until seeing the other specialist but I'm SCARED however I don't want to stop if it's not the cause as the joint pain is unbearable. ... (2 replies)
... Hello all,
Thanks again for your support and replies. Its been a tough tough year and i don't think i would have got through it without all of you. Oh and my boyfriend who i met in hospital who has been with me evryday through the last three months of hell. Id like to ask some questions to you guys if that is ok? Im probably sicker now than i have ever been and am trying to... (7 replies)
... ask about taking plaqenil for reducing you sun sensitivity, it helps my wife a lot. ... (2 replies)