... I doubt it is scleroderma. The only symptom you mention consistent with that is the red fingertips, but that happens in lupus and mixed connective tissue disease. I would seriously consider getting another opinion from a different rheum. This one sounds less than helpful. ... (4 replies)
... Hi, Linda. I totally agree that lupus is mysterious & mind-boggling in the range and number of things it can cause. My mom took Coumadin for decades, but it wasn't until I was diagnosed that I wondered if she too might have lupus, because her other problems so resembled mine. My sister (my only sibling) has Hashimoto's thyroiditis, so I understand how family history can... (6 replies)
... bizarre things early on. My mom's mother died at 55 from kidney failure. Her cousins had severe diabetes. Two of her nephews have ulcerative colitis. My only sibling has a thyroid condition. ... (1 replies)
... Just wanted to mention something that I have first hand knowledge of that could be a possible link. I have a sibling and child both with Mitral Valve Prolapse and an accompanying condition called Dysautonomia which is notorius for BP spikes and then bottoming out of BP. ... (121 replies)
... It concerns me that you had a diagnosis of lupus and now you don't. What criteria did your first doctor use to diagnose? ... (12 replies)
... A few years ago my only sibling was Dx'ed as hypothyroid. ... (8 replies)
... My family is a bit of a freak of nature as well. Besides me, my grandfather on my dads side, my aunt on my mom's side and now my mother is being tested as well. My husband's grandfather had it as well, but we're still planning on having a baby. Put it all in God's hands and see what you're dealt :) (5 replies)
... As far as I know, there is nothing that should stop your son in having children. Nothing that I've read says anything other than that men with lupus should be able to have children just like any other men. ... (5 replies)
... Wow, that's a lot of people with lupus in one family. ... (4 replies)
... So far the only members of my family to be diagnosed with lupus are me and my half sister. She was diagnosed a little over 10 years ago and has a very mild case. She was only around 22 when she was diagnosed. ... (4 replies)
... Hello All,
I am very curious to know how many of you Lupies here on the board have family members who also have been diagnosed with Lupus. The reason is that I have so many in my family that have.
My father had Lupus (deceased), I have Lupus, my daughter has Lupus, my sister (she is my only sibling) has Lupus, and her daughter has Lupus.
Is there anybody else out... (4 replies)
... m rebuilds immune system wtih no spaces. I started it in Nov while I was deciding if I should really do this, so it will contain some of my thoughts and what my lupus was doing in the process. I suffer with bleeding from thrombocytopenia and clotting from APS and also have vasculitis. ... (12 replies)
... Vee, I do have only one sibling, my sister and my mom's death has made us become much closer. It's a shame that we weren't all along. I don't know why we weren't!
I was feeling much better and then I got too busy Friday and Saturday trying to paint in my house and today I have paid for it. I am feeling pretty yukky. I think I am having problems figuring out when enough is... (9 replies)
... Hello & welcome. I think you're the best judge of how to possibly help your mom. With her schedule, maybe attending a local support group isn't an option? But some people do enjoy face-to-face contact.
Books, maybe? Look for hardcovers by either Dr. Daniel Wallace or Dr. Robert Lahita, available in most libraries & bookstores.
Maybe articles? See the "Resources" tab... (2 replies)
... I'm an only child, so lack of sibling support isn't an issue! My DH and younger son are very supportive. ... (8 replies)
... I have had many health problems that started several years ago, but have never had the classis fever and joint pain that lupus often presents with. I do get joint pain on certain meds. Regardless, my doc suspected lupus when my problems began. ... (4 replies)
... Thank you in advance for taking the time to read my thread. To make a long story short, I will try and break it down for you. I am at a loss...
*38-year-old female (will be 39 next week)
*1 child (11-years-old)
I have a family history of: (1 replies)
... Dear Krystal, Similar to what Georgie just wrote, I REALLY wonder about my mom's side. Her mother died suddenly in her mid-50's of kidney failure.
And my mother, one yr. when having gallbladder surgery, was told that she had only one functioning kidney, which was quite a shock. My mom also had heart issues for years, Raynaud's syndrome, and "sticky blood" for which she... (6 replies)
... Dear Robin, I never had children (wrong med, for wrong disease, for most of my married years---Librax for GI problems---can't take during pregnancy).
I hope you do take your son to a pediatric rheumie, Robin. Hopefully, he'll get the help he needs to get turned around quickly. Having the right drs. evaluate him now could mean so much for him, and your other 3, too. ... (1 replies)
... years, to discuss possible lupus with her own drs. ... (22 replies)