Hello all, I have had some weord symptoms since the end of May and early June, we were doing some landscaping work out at afreinds house who happens to live by a river, lots of mosquitos and other weird bugs out there...anyways, since that time I have had some medical problems, I have had some night sweats not every night, tingling in my eyelif, pain the the rib cage bones, back pain, itchy kind of skin, sometimes small rashed pop up, weird bowel movements, more frequency in urination...all of which happened since the landscaping job, I was bit several times by mosquitos but never really thought twice about it...well after researching maybe it is LYME...
I have had CT Scan, Brain MRI, Several bloodword tests due to 3 Emeergency room visits, I have seen to family doctors, ONe GP who did a Endoscopy as well as a colonoscopy, everything cam eback normal and without issues...now my back and joints are starting to fire up again, it just seems like this is not ending, like my body is fighting something...wwould these be symptoms or LYME-
RIB/Chest pains (EKG and X-Rays normal)
Back Pain (Spine X-Rays negative)
Itchy Skin(sometimes red patches but they disappear)
Easy irrated eyes from light
Dry itchy eyes
Does anyone know of a doctor in the area that I can see...I was scared to death I had cancer(lymphoma or leukimia) but the CT Scan put those possibilities to rest, brain MRI showed nothing either...now I am stuck with dcotors telling me that I have anxiety and depression and that is what is causing my pain....Please help
Ash, I am sooo sorry that you are not well. Welcome to the Lyme board. There are some wonderful and knowledgeable people here that can help you.
I too live in Michigan. I was diagnosed with Lyme last May - after being sick since January. I had terrible fears that I had cancer because my main symptoms have been sore throat, TMJ, neck pain, roof of mouth sore and numb and on and on. I had all the tests - bone scan, CAT scan, MRIs - you name it. I even had the test where they put a camera down your throat (fun fun - NOT!). All came back negative. I was tested here at the local hospital - in the Detroit area - twice for Lyme. Both tests came back negative. When I got the tremors in May - I felt sure I had Lyme. Finally when a LLMD (Lyme Literate Medical Doctor) did another Western Blot on me and sent it to Igenex Labs in CA - it can back a very strong positive.
I have a wonderful LLMD Dr. here in Michigan. I don't like to post his name because sometimes Lyme Drs. are harassed. He is n the Grand Rapids area. Go to the Lyme Disease Association and register. You can do a search for Drs. in the MI area. There is one in Saginaw - who was booked up for a year. My Dr. in Grand Rapids took me the next day. HE IS WONDERFUL. When I went to him I could not hold my head up - I was so ill.
After 10 1/2 weeks on antibiotics I can now work full time, travel and do all of the stuff I used to. However, I now have terrible arthritis in my fingers and jaws because the Lyme did damage during the time I went untreated.
Before being diagnosed I saw 9 Drs. and 7 Dentists. I was told "we have NO Lyme in Michigan" - blah blah blah. I am very angry because they would not take me seriously. Don't wait - get help right away so you don't have any lasting damage.
I really feel for you and please let me know if you have any questions at all.
(By the way, what area do you live in?) My home health nurse told me there is lots of Lyme in the northern suburbs of Detroit. Shocking that some Drs. refuse to accept the truth.
Take care. Sue SROCC20655 :eek:
Hi ash0479, welcome to the board!
I am sorry you are feeling so bad. Isn't is amazing that so often when doctors cannot find out what is wrong, they blame the patient? Since all this started after you were working outside and you have not been able to find out what is wrong, I think you should pursue the possibility of tick-borne illnesses. Below is a Lyme disease symptom list. You can have any combination of symptoms.
Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol
It is very important to see a knowledgeable doctor. Many doctors do not understand tick-borne illnesses and under treat them. Besides Lyme disease, ticks can also transmit several serious co-infections: Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected, and it may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA. Night sweats are one of the hallmark symptoms of Babesiosis.
I know of one Lyme doctor in MI: Dr. Michael Ledtke. I hope you can see someone soon and get some answers.
It is also important to learn as much as possible. I recommend reading "Everything You Need To Know About Lyme Disease (2nd edition)" by Karen Vanderhoof-Forschner and Dr. Joseph Burrascano's treatment guidelines. He is one of the top Lyme doctors in the country and many Lyme doctors follow his treatment protocols.
Hang in there okay?
Ticker, I hope to steer Ash to my Dr. here in Michigan. You always give everyone such great help. Thanks, Sue SROCC :wave:
Do you see Dr. L.?
Ticker, No Dr. L. was booked up for ONE YEAR. Sooo sad that we only have a handful of LLMD here in MI. I saw Dr. D. in Grand Rapids - wow - he has really helped me.
I got my LLMD on the Lyme Disease Assn. website. Scary - I keep hearing more and more stories about Lyme here in MI and the Drs. here are NOT LYME LITERATE AT ALL! There are probably lots of sick people walking around with Lyme - who don't even know it. I wish there was something I could do.
:confused: Sue SROCC20655
Hi Sue. It is terrible that there are only a handful of knowledgeable doctors in the country. Many people have to travel far to see one.
There definitely are things you can do to educate others. You can drop off current information at schools, scout meetings, recreation centers, parks etc. You can call the newspaper and local televeision stations and see if they would like to do a story. If they do, include your contact information or places for people to get more information.
Even talking to people one on one is helpful. These people will talk to others about what they have learned. Some people are surprised at how serious these diseases are. Some people know of others who are infected and unable to get help.
I am in the Northern suburbs of Detroit, located about 45 minutes north of detroit, about 1 1/2 hours away from Saginaw and almost 3 1/2 hours away from Grand Rapids, does anyone know of any doctors more local....
Where would I go to get a bone scan....did not have that done...
Since this all began after working outside, it would seem appropriate, given your symptoms, to consider the possibility of tick-borne infection and seek a competent evaluation as others here have suggested. Even if you don't recall a tick bite, bear in mind that some of the larval or nymphal stage ticks are smaller than a pinhead yet can still transmit disease. A huge percentage, way over half, of the people infected do not recall a tick bite.
[QUOTE=ash0479]I am in the Northern suburbs of Detroit, located about 45 minutes north of detroit, about 1 1/2 hours away from Saginaw and almost 3 1/2 hours away from Grand Rapids, does anyone know of any doctors more local....
Where would I go to get a bone scan....did not have that done...[/QUOTE]
I know of one in keego harbor, is that closer, he does send his lyme test's to CA because thats the closest place that does the right tests that he likes, So far i would have to say he is a good doctor and a nice guy, and he didn't seem like he had another $150 waiting in the next room. Let me know if you want to know more. Also he is treating me with IV antiboitocs but not for lyme. I would think this doctor should'nt be to far sounds like you live near me.
Yes that would be much closer, can you please give me the name, city and state for the doctor, thanks again...would be appreciate it.
[QUOTE=ash0479]Yes that would be much closer, can you please give me the name, city and state for the doctor, thanks again...would be appreciate it.[/QUOTE]
OK Keego harbor might have spelled it wrong, He's in MI, Dr. Markowitz