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Multiple Sclerosis Message Board

Multiple Sclerosis Board Index

Probable MS?
May 6, 2011

I've been lurking on this board for a really long time, like 2 years! I've posted a few times but figured it was time I really introduced myself. I'm having a hard time, needed some advice, and figured where better to turn than here!

So, I'm 25 and my problems started about 2 and a half years ago. I started having vertigo really bad. I woke up one morning and felt like I was falling backwards in my bed. My coordination was also off, I would go to reach for something and would be way off. I went to the doctor where I worked and they didn't know what was wrong but since my blood pressure was low they gave me IV's. A couple of weeks later I woke up with vertigo again and I ended up falling. It was like the floor came up to meet me. I was sent to a neuro this time who sent me for vestibular rehab, which didn't help, it made me worse.

My neuro also ordered an MRI which came back with spots in the white matter of my brain. One doctor said this was typical of early onset MS, one said this was indicative of a demylenating disorder (I had 2 neuros at the time). Since I had the MRI, i've had 2 more, one every 6 months and nothing has changed. The spots are still there. I don't think i've added any, but i'm not sure, nobody has said anything for sure.

My vertigo, which is my worst, and most common symptom, happens every day, several times a day, and lasts anywhere from 30 seconds to a couple of minutes. The last couple of months it's gotten worse, lasting longer, with confusion, disorientation, and loss of balance being thrown in the mix.

They probably would have already stopped looking if it weren't for the other weird symptoms i've been having. My hands and feet tingle. I have burning sensations in my arms. My tongue goes numb and feels like it's being pierced with something sharp. My vertigo gets worse in the shower, so bad that I haven't taken a shower standing up in years! I have weakness in the arms and legs. Blurry vision, poor night vision, joint pain, etc, etc.

I know, it's insane! Sometimes I wonder if i'm just crazy! My neuro is really great, though! Taking really good care of me! He's tested me for everything he can think of and everything comes back fine. My Lumbar puncture came back fine. My labs come back fine. My Vit D and B12 are always low, but other than that. I've been to every specialist he can think of to send me to, and none of them really know what to do with me. I went to the Mayo, and they named my symptoms, but I already knew that! I was supposed to see a specialist in MS there, but he was sick, so I didn't get to.

My neuro thinks this could be MS, but of course he can't say for sure! He says I fall into the probable category but I could be there for a while. He wants to send me to the Cleveland Clinic. But, I didn't get anything out of going to the Mayo and I don't want that to happen again, so i'm stuck on what to do! I was hoping you all would have some advice for me! Anything would be helplful! Experiences, advice, anything! Thanks in advance! And sorry this was so long!!


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