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Multiple Sclerosis Message Board


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ok Im concerned that i have ms and need some input ..

I RECENTLY WOKE UP WITH A BAD NECK ACHE THAT GOT WORSE EVERY DAY INSTAED OF BETTER THEN CAME HEAT, PAIN AND NUMBNESS IN LEFT SIDE OF HEAD FACE CHEECK, SHOULDERS AND ARMS .with burning in all kinds of places.

pins, needles in rms hands fingers that led to severe weakness on lft side both arm and leg.shooting radiating pain down both arms worse on lft. I have for three yrs now been telling my dr that i cant empty my bladder well she sent me to a gyn to be put on birth control???

i HAVE UNcontrolable muscle spazms in my throut and i swallow when im not trying to..weird. i chock on my own spit sometimes because i also breth in really fast uncontrolled. my ears ring all the time. i was treated like i was lying. and now I have some leaking and its numb down there at times.

I CAN NOT PEE RIGHT! I cant get a stream going and am always in the bathroom.
I cant seem to be able to stand heat or cold. i either sweat like a stuffed pig or when im cold my teeth chatter i feel exuasted my folic acid level and patassium was low when i was admitted to the ER last week for the severe jerking and weakness/pain.

they gave me supliments there. I was treated very poorly after brain mri was normal. I left and am home. they feard it was stroke or hemredge.

long story short im still stuttering my parents have come down to take care of me and all symptoms are still here. i have an EMG on tues. any help would help PLEASE!!!!!!!

I wake up every morning feeling hip pelvic and leg pain,nubness, stiff and very much off ballance but Im always off balance,was told it was menieres desease and as of late, told i didnt have it. Ioften stutter and slur or cant remember what i was saying and even forgetting if i took my meds for the day.. THATS SCARY..IF I CLOSE MY EYES I SOMETIMES FEEL LIKE IM GONNA PASS OUT.

The slurring and stuttering started about a yr ago I had lft side head and face tingling, blurred vission and felt very confused in class. I had to ask for the instructions to be read three times and still didnt understand. I felt as if i wasnt there and confused. went to er he says it sounds like stroke but it wasnt so i went home and stutterd and slurred speech ever since with incresng ear ringing and ballance issues. i sweat so bad at times i was checked for menapauase and all is well there. im 38 yrs old...
its like i seem to get new symptoms each time the tingling, numbness starts in my head and not i have severe uncontrolible body jerking. its hard to rest and my back, butt neck thighs and lft leg kill. all the jerking irratated disc issues. nerve pain is extreammmm. i cant use my left hand to grip i need a pillow under my arm all the time and walk with a cane. i cant shower, cook, brush hair. i cant stand for long because of the muscle weakness.

I feel like im on a boat with severe ringing in my ears nausious, its worse with loud noises. I bump off of walls all the time. I have bruises to prove it when bouncing off corners.

Sciatic pain has been getting worse as of late and I have actually fallen because of the weakness in my left leg and foot.

my reflexes are very weak with a history of foot drop it feels kinda like that. my fibro dr thinks im nuts and argued with me as if he didnt believe me but yet told me i had poor reflexes in lft arm and lft leg ??? huh???
he ordered an mri of neck because this was my most complaint. the pain in arms neck, shooting pains numbness in left cheeck tingling in head. slurring. he thouth i was crazy. just like all the rest.

i have set in silence with this afraid to go to a dr in fear of being called a liar or crazy.. it hurts!!!!
i cant play with my daughter and that hurts worse than ANY OF MY SYMPTOMS.

I have heat in the bottom and sometimes on the top of my feet and toes but the are cold to the touch.I have very poor reflexes on left arm and leg. radiationg pain down arms JUST LIKE THE SIATICA!!! PINS NEEDLES HEAT, BURNING ALL OVER. TINLING IN HEAD AND Icant really give exact places, very odd.

I get this in my neck, shoulders arms and hands, buttocks, back, legs and thighs. some of this is flushing heat sensations and some are a quick burning that comes and goes As far as the flushing radiation heat thingy in my left side of head and face it seems to happen with tingling in head and left cheek and jaw, Along with this i have blerred vision and a feeling of confusion. I often cant seem to find words I should clearly know like.. LETSA SAY I WAS TRYING TO DISCRIBE A CAR.. i WOULD SAY YANO THAT THIS WITH 4 WHEELS, YOU DRIVE IT, IT HAS A STIRRING WHEEL.. OH YEAH CAR.. I do this a lot and stutter and or slur my words especially if im upset. i jerk all over and just had a bout of musles spazms in arms, legs, left face neck stomach, back. it was aweful and causeing me more pain I have sufferd from siatica do to herniated disc l4/l5 s1... i also have cervical issues going on in which i will add mri, xray, ct scan reports.. in the summer when hot my energy is completley sucked out of me. I get sick feeling in hot areas..I have facial flushing at times. My legs feel like they could buckle at times, i walk as if im drunk banging into things. There hasn't been a day that i havent felt pain or something is "asleep" i get pin pricks

There isn't a day that goes by that i am not suffering with pain, uneasiness in walking, burning in feet, now starting in hands, sciatic pain starting up . Hip bone , pelvic pain almost like the burning in feet. The weakness in arms & legs is scary ..I am 39 and have to prop my plate when eating, cant hold a hairdryer,clothes racks in stores my arms fatique severly. This is scary,. I walk like a much older person. Symptoms are crazy . Numbness,fatique,urine leakage,pins needles,creepy crawlies,burning,cramping,twitching,head aches,feels like someone has a voodoo doll on ya and really hates ya.

I was diag w/Fibro from Rheumo
Thank you once angain you are dead on with so many things, actually my daughter has become quite the artist although I may have been laying proped up on bed or couch. we read the Bible and study her homework together on good days I may even be able to get outside.

My Daughter and I are both soldiers of the Salvation Army in our town . something else I have not been able to do I miss it so much and I miss my womens ministy friends and church Family. We do however have an online prayers meeter for our core so I can keep in touch on a daily basis with them.

I pray all the time and not just for myself and my family but for many others as well. I do have some of my church family come visit and call me, KEEPS ME GOING..I always try to see the positive in everything, EVEN THIS! Sometimes you just need to hear from other who are having the same problems and I thank you from the core of my soul for your responce and kind words and advice.

I wrote this letter to my next Dr because I was told it was psycho semantic meaning...Urban dictionary states "When the meaning of a word is largely the result of one's own imagination".

this was my PCP who told me Im not in Pain and I was faking the twitching and jerking. HE SAID MY MRI WAS NORMAL???????, while I was in the hospital for three days the neuro surgeion came in and ordered a neck brace saying I had a significant injury to my neck for he had read my ct scan and xray results form a week prier.

I was also told I had low pattassium and folic acid? was given supliments, I could not pee/ empty my bladder all the way as the did check when I went to the bathroom they would use this doppler thing to see if my bladder was empty and it wasnt. the was like 6 hundred something # left in there.

well altogether I saw maybe 6 DRS in those three days while being given interveiniously Pain meds becase my left leg, stomach and neck, head and arms were jerking so bad It was cause severe pain in the l4/l5/s1 area and my cervical c3/c4/ 56 area. my muscles were involuntarily contracting pulling my head downward to the left.

mind you I have a neck injury.the last Dr Im not sure who he was came in while friends from church were with me praying and my family and healthcare proxy- godmother was also there.

The Dr says WHAT ARE WE HAVING A CONVENTION in a very rude way says everyone needs to leave, even the lady changing /emptying my cathoter said how rude was thart? so He say you need to leave to, To my health care proxy and I said I need her here and she also said she is hard to understand and i know what she has been going through and can help answer questions.

HE SAID I DONT CARE IM SURE I CAN FIGURE OUT WHAT SHE IS SAYING. hE SAID YOU NEED TO LEAVE. SHE AND i BOTH SAID Nicely no. he says fine then I wont asses her then rudly saying byeeee like a TWO YEAR OLD seriously.

all the sudden they took out my cathitor, took away my pain meds, and the nurses were becoming so rude even cruel twards me and this is not in my head.. remember my God mother a well respected women who runs 5 group homes with the disabled and menatlly ill was still in my room.

so anyway here comes A psychiatrist WHY??? Well I take savella, lyrica for fibromyalgia and remron for sleep as well as zoloft I was still taking after losing my bay three yrs ago. I never went off of it. so yes in the past YEARS AGO I was DEPRESSED AND THEY HAD THAT ON FILE.

I am the most positive person I know. Im the one everyone comes to needing advice... I have a letter from my counslor, my pastor, my daughters/ family counslor.. believe me in no way am i depressed im in pain and confused about whats happening to me but at the same time I give it right over to God ...

I feel like I was being treated like I was crazy because I was on all these antidepresants. they wouldnt even listen to a word I had to say when I could talk and not stutter or slur. everytime I would try to say look I FACILITATE GROUPS ON DEPRESSION, ADDICTION/ ABUSE VICTOMS. HE WOULD LOOK OVER THE MY GODMOTHER AND SAY is this true??????? omg I just couldnt take it anymore, i signed out ama on a friday and then went to my pcp on monday IV ALREADY TOLD YOU WHAT HE SAID TO ME.

He also said therer was never a neck collar ordered??? and no mri of my neck ordered by the neuro sergion in the hospital when he said it in front of so many people. and even the nurses kept saying your colar should be up here soon... anyway sorry for rambling. I HAVE WRITTEN A LETTER TO GIVE TO MY NEXT DR, whom ever it may be, neurologist, neuro surgion........ LET ME SHARE IT WITH YOU AND YOU TELL ME WHAT YOU THINK?

***MRI OF THE CERVICAL SPINE on 9-2-20011***

There is straightening of the cervical spine.

There is moderate disc space narrowing at C3-C4 WHERE THERE IS ASSOCIATED CHRONIC VERTIBRAL BODY SPURRING.

THERE IS ALSO mild vertebral body spurring anteriorly at c4-c5 and c5-c6, there is moderate to severe bony foraminal norrowing on the right atC3-C4 and there is moderate bony foraminal narrowing on the left at C3-C4

CHRONIC DEGENERATIVE and or post tramatic disc disease primarily at C3-C4 there is associated foraminal narrowing which may be significant. correlation with physical findings is recommended.

CT OF CERVICAL SPINE...
There is degenerative change on the cervical spine which is most ssevere at C3-C4 with moderate loss of disc height and broad posterior spondylosis and uncovertebral joint hypertrophy with osteophyte encroachment upon the bilateral neral foramina.

Additionally, there is resultant Moderate to Severe narrowing of the spinal canal.

MRI OF THE LUMBAR SPINE...

L4-L5 There is disc desiccation Along with, mild loss of disc height. approximately 1mm of grade 1 retrolisthesis.

There is a SHALLOW DISC BULGE Along with mild posterior EPIDURAL FAT.

There is FACET ARTHROPATHY.
There is mild NARROWING OF THE THECAL SAC.
There is mild NARROWING OF THE NEURAL FORAMINA,LEFT GREATER THAN RIGHT.
***L5-S1:.. There is "DISC DESICCATION" Along with "MODERATE" LOSS of DISC HEIGHT.

Again, seen is approximately 1mm of grade 1 retrolistheses.
There is a small RIGHT PARACENTRAL DISC PROTRUSION.
Thecal sac appears patent.
There is mild right posterior CORNER SPONDYLOSIS.
There is "FACET ARTHROPATHY".
There is minamal narrowing of the right neural foramen.
The left appears patent.

MY hISTORY... L4/ L5/S1 PROBLEM Started at the age of 18 after many, slips and falls going down multible out door flights of stairs coverd in ice. I was wearing heals and just moved to Ma From CA. Never knew ice or snow. and no I did not sue anyone!!! It was my own fault and I am not trying to sue anyone NOW nor AM I looking for proof for work A related injury, LET'S MAKE THAT VERY CLEAR...

At present.. just simply looking for the CAUSE and treatment options of the issues discibed below.It would be GREATLY appreciated if you could please take the time to read this...

I fell on my buttocks many times IN The winter of 1991? causing the problem in the lumbar region. I have bouts of siatica with foot drop on accasion. left leg, buttock, calf, thigh,foot pain raidiating or shooting in some cases, along with heat sensations, some pins and needles in certain areas along these places and bottom and foot pain.

weakness in leg and foot along with novacaine numbness has progressed severly to the present time.

I have been to the pain center seeing Dr. Gannon whome diagnosed me with Sacrailliits? spelling... my hip clicks, and also clicks in lower back.

I saw him for a period of maybe 6 month with injections into my facet joints along with PT upstairs from the pain center. I told him of my bouts with SIATICA he didnt seem to want to hear that I had siatica even though I had documented Foot Drop in the past and the pain went from my back to both right and "mostly left" buttocks to thigh on right but all the way down to foot on "left".

Treatments tried... PT, Aqua theripy,steriod injections and pill form, pain meds anti inflamitories, muscle relaxers which did help on accasion..But always got worse when PT stoppped. spinal injectons, epidural, and more PT. spinal minipulation, ice heat tens unit, I WOULD LOVE TO HAVE ONE AT HOME? stretching exercises, more PT and more and tylenaol, advil, alieve,muscle relaxers. predisone which worked sometimes with combo of meds.
but for the most part, none of them even touch the pain Im feeling.
I have had percocet, vicoden, codiene 3 and 4, tramidol ext....
The only pain med that took most of the pain away was percocet but this is "NOT GOING TO FIX THE PROBLEM". I AM WELL AWARE OF THAT!I AM NOT HERE ASKING FOR PAIN MEDICATION IN FEAR OF NOT BEING BELIEVED THAT "I AM" TRULY IN CHRONIC AND SOMETIMES SEVERE PAIN. I am here asking for tests to pin piont my exact problems in the spine, ligaments, nerves, muscle ext... I am in TRUE PAIN!!! I JUST NEED ANSWERS AND TREATMENT OPTIONS???? MYLOGRAM AND A DISCOGRAM COULD BE VERY HELPFULL as you well know.. IN DIAGNOSING WHERE THE PAIN IS COMING FROM.???
I have had a mylogram 20 years ago SHOWING ABNORMABILITIES, LEADING TO MY SSI. Done at milton hospital and dr latchaw was my back dr at the time. since i have not had a back Dr.

I have been told that there is NOTHING WRONG WITH ME AND THAT IT'S IN MY HEAD EVEN THOUGH I RECIEVE SSI FOR THE LUMBAR ISSUES, SIATICA, FOOT DROP..EXT.. as you well know is very hard to get if there is NOTHING WRONG WITH YOU!!! THIS ALL IS MUCH WORSE NOW AND IM TOLD ITS NOTHING!? BUT THEN AGAIN TOLD HAVE WEAK REFLEXES ON LEFT ARM AND LEG??? Im clearly confused SO, PLEASE COULD WE KINDLY GET SOME TEST DONE TO SEE WHAT "IS" CAUSING MY PAIN, NUMBNESS,BURNING SINSATIONS,FALLING ASLEEP FEELINGS, SHOCKING PAINS, DULL ACHEY PAINS, PINS AND NEEDLES.SHOOTING/STABBING PAINS, LOST OF FEELING IN SOME AREAS, AND IF I SIT TOO LONG "COMPLETE" LOSS OF FEELING IN LEFT FOOT AND LEG WHERE I CANT EVEN WALK WITH MY CANE BUT NEED ASSISTANCE GETTING TO THE BED FROM CHAIR? I DONT ENJOY THIS AND CERTAINLY DONT ENJOY LETTING MY LITTLE GIRL OR CHURCH DOWN. FOR MOST...WELL... IM sure they would have lost thier mind by now but God keeps me strong in that area and gives me what I need to keep on keeping on.... its my BODY THAT DONT WORK RIGHT..LOL NOT MY MIND.
Im at peace, no stress except feeling a bit unheard but with no harsh feelings. I just want answers. If you took the time to know me . you would know I am clearly not just making this up..

I have had MRI, CT SCAN, X RAY AND EMG all that I have provided to you. You are my last HOPE for help at alieviating my chronic severe pain both in my neck, shoulders, arms hand, back, thighs, calf leg and foot PAIN. I can not walk without a cane and can not stand for long at all. I cant sit for long either. I cant find a comfortable position in bed and definitely can not sit on a hard surface. whatever I do weather sitting, laying or standing Im in chronic pain. AGAIN, I AM NOT HERE SEEKING PAIN MEDICATION!!!! I am here for the right testing such as a mylogram, and mostly a discogram. these tests as you well know will confirm where the pain is comming from exactly. Also I am not looking for anything to do with workmans comp. For I am on disability and have been for 14 years do to my L4/L5/S1 Siatica, foot drop issues. I am honestly here for answers and RELIEF from the pain that keeps me from my life. Although I live in pain and can barely walk without a cane I am a very faithful Christian women who on a daily bases looks to her God for mental strength and support to deal with being stuck unable to do the things I love most, such as Playing with my daughter PHYSICALLY, pAINTing, ATTENDing MY CHURCH, attending and volunteering church and school activities. FOR A MONTH NOW I HAVE BEEN PRETTY MUCH HOUSE BOUND AND ITS NOT FUN..LOL.I AM A VERY ACTIVE MOTHER OR AT LEAST WAS...

I am A SOLDIER OF THE PLYMOUTH CORE Salvation Army. this is where my life is focused around AND OF COURSE MY CHILDREN. I have been able to help many people in my work there, i FACILITATE GROUPS FOCUSING ON THE POSSITIVE AND DEFINITELY NOT THE NEGATIVE REGAURDLESS OF WHAT LIFE THROWS YOUR WAY INCLUDING MY PRESENT ISSUES WITH MY BACK.

This neck issue caused everything to go south.... I am VERY SANE WOMEN. and have with me and if asked documentation of this along with my enrollment into The Salvation Army and my dedication to my core. I have a written letter from my pastor that discribes who I was "PHYSICALLY" until.... this neck issue that got worse after my left leg giving out on me and falling more than 3 times in a 4 month period.

Cervical region... started many years ago with pain on accasion but nothing like this!!!. three yrs ago my pinky finger on left kinda felt like it was injected with navacaine. some pins needles felt in fingers. it has only progressed from there with left arm pain and shock feeling below elbow, kinda like a toothache in the shoulder arm and hand areas.
this really hurts, just like the thigh and leg pain!!! this went on for over 3 years. No Dr seemed to care much about it. although he did say it was a name i can not remember something like a pinched nerve could be from my neck or not.

My arm fell asleep at night with severe radiating Pain down arm into hand.
RECENTLY.. this neck- arm issue has gotten worse after my left leg giving out on me and falling more than 3 times in a 4 month period. the last being a bit over a month ago. I woke up with a stiff neck that I thought would get better with motrin and ice AFRAID OF GOING TO PCP Thinking he would again say its nothing or in my head. So it has just gotten worse with pins and needles in fingers, radiating, BURNING, pain from my neck to my hands. only half way dowm my right arm though but completely all the way down on left.
I write this because a year ago I had some tingling on the left side on jaw/face and up to head, with confusion, Slurring my words blurred vision, off ballance while I was in class where I could not comprehend what was being said and sent to the ER. where the ER DR said sounds like a stoke/tis? but didnt show on mri.I HAD SENSITIVITY TO LIGHT SO BADLY WITH A HUGE HEADACHE. i WAS GIVEN MOTION SICKNESS PILLS AND MIGRANE PILLS. I was tested many years ago for mineres dissease ? spelling.. at milton hospital.because of severe vertigo attacks and balance issues.. 15 yrs ago maybe? my primaray at the time was Dr ............. after testing I was told I had it and given meclizine? spelling.. so have just lived with being off ballance, nausious, dizzy ringing in ears ever since...

so AGAIN.. I would never be able to remember all of this without writing it. I stutter and slur my words, get numbness in my ear and tongue and often forget my train of thought. I twich a bit and dont know why but it gets worse when i move around or get nervous/ exited?

so It would be very hard for me to "SAY" this to you. This has gone on for a lil over a year now cause unknown until i see a neurologist.

I saw my ent dr, because of involuntary swallowing/or breathing in, while eating causing choking/ balance issues following this stuttering slurring,memory confusion, numbness tingling on lft side of face and tongue thing and also my voice changing with ongoing lyringitis? spelling? and breathing noises mostly at night. waking up gasping for air or being told by family YOLANDAAAAAAA BREATHHHHHH!!!.

he also orderen a meneries testing. the test only showed the inabilty to follow that red light to the right but left was ok? not sure what it was called. ENT dr durantie in plymouth orderd this.

It all seems to be intensified after this neck thing. Im severly off ballance bumping into walls, ears are ringing so loud and the ent sent me for an MRI TO LOOK FOR MS??? But brain looks good. I do know however that a spinal tap along with my history and certain tests by a neurologist is needed a diagnosis.. not that this is what i want!!!! trust that!!!!

dont know who to turn to as my pcp whom Iv seen one time seems to think im nuts..lol so maybe , hopefully you CAN TAKE THE TIME TO READ THIS AND ANY DOCUMENTS/ LETTERS YOU MAY NEED TO GET A BETTER VIEW OF ME. THE PERSON WITH A HEART AND SOUL I WILL PROVIDE TO YOU UPON REQUEST.

YOUR MY ONLY HOPE at this point SO I hope and pray you will take the time to evaluate EVERYYY THINGGG!!! THANK YOU


Yolanda 9/23/11





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