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First post. In short I had an allergic reaction to sulfa in 1997 which started abnormal parasthesias. No diagnosis. Mri was fine. 2005 had mycobacterial infection in leg after losing 20 lbs with stomach upset...after a year on antibiotics--got better and then suddenly numbness down right side during a stressful sales meeting...no mri issues. Two tests within 4 months...all resolved. Then in march 2012 miscarriage (first pregnancy). Hurt back a week before and had some bad back pain...lower back...tons of stress...no sleep...and began having numbness in foot...then both feet...then legs then abdomen. Kept working and travelling...called them my numb hubs...and finally got to a doc. Had numb tongue a bit and felt swollen plus felt my words could not come out right if I didn't concentrate...July 13 mri showed innumerable lesions on brain and spinal lesions...symptoms were almost gone. Doc scared me. Went for Mayo 2nd opinion...and everyone agrees Ms although ana levels were off the chart. The other immune tests were fine though so they decided potential for connective tissue disorder later and stuck with Ms. I immediately went to swank diet and best bet diet. Cut everything. Tried to start copaxone but the first shot caused 7-8 bumps down my arm. Called doc and said benadryl. Took one and 3 minutes later noticed nasal passages felt tight...could breathe but just seemed strange. Some tiny lip tingles 10 minutes later...just a few...but benadryl was in system now...and after 30 benadryl minutes all was fine. I'm not sure I should try it again. Shared solutions said they were concerned. Doc said try with benadryl...then they all changed...and are sending me to an allergist. I remember in 1997 the allergist found me allergic to a lot and tried shots but he found he couldn't increase the dosages to build immunity...had arm reactions and felt strange. I stopped going. I feel perfectly healthy...and aside from these episodes always have. I am always an insomniac so have had sleep deprivation but that's about it...mono and chicken pox...but after the copaxone reaction I'm worried. Do I really have Ms or is my immune system crazy. Or both? Do I try it again? The nurse said it could react worse...they are all too scared of lawsuits to really answer. I'm just scared period. Lol. Its all overwhelming...and I don't feel like anyone knows what's going on or what I really have...anyone else anything close with immune funk and Ms?
[QUOTE=princesst;5055044]First post. In short I had an allergic reaction to sulfa in 1997 which started abnormal parasthesias. No diagnosis. Mri was fine. 2005 had mycobacterial infection in leg after losing 20 lbs with stomach upset...after a year on antibiotics--got better and then suddenly numbness down right side during a stressful sales meeting...no mri issues. Two tests within 4 months...all resolved. Then in march 2012 miscarriage (first pregnancy). Hurt back a week before and had some bad back pain...lower back...tons of stress...no sleep...and began having numbness in foot...then both feet...then legs then abdomen. Kept working and travelling...called them my numb hubs...and finally got to a doc. Had numb tongue a bit and felt swollen plus felt my words could not come out right if I didn't concentrate...July 13 mri showed innumerable lesions on brain and spinal lesions...symptoms were almost gone. Doc scared me. Went for Mayo 2nd opinion...and everyone agrees Ms although ana levels were off the chart. The other immune tests were fine though so they decided potential for connective tissue disorder later and stuck with Ms. I immediately went to swank diet and best bet diet. Cut everything. Tried to start copaxone but the first shot caused 7-8 bumps down my arm. Called doc and said benadryl. Took one and 3 minutes later noticed nasal passages felt tight...could breathe but just seemed strange. Some tiny lip tingles 10 minutes later...just a few...but benadryl was in system now...and after 30 benadryl minutes all was fine. I'm not sure I should try it again. Shared solutions said they were concerned. Doc said try with benadryl...then they all changed...and are sending me to an allergist. I remember in 1997 the allergist found me allergic to a lot and tried shots but he found he couldn't increase the dosages to build immunity...had arm reactions and felt strange. I stopped going. I feel perfectly healthy...and aside from these episodes always have. I am always an insomniac so have had sleep deprivation but that's about it...mono and chicken pox...but after the copaxone reaction I'm worried. Do I really have Ms or is my immune system crazy. Or both? Do I try it again? The nurse said it could react worse...they are all too scared of lawsuits to really answer. I'm just scared period. Lol. Its all overwhelming...and I don't feel like anyone knows what's going on or what I really have...anyone else anything close with immune funk and Ms?[/QUOTE]
I am assuming your ms specialists at the Mayo clinic is an neuroimmunologist.
If not, seek a second opinion. It is obviously hard to sort out here. Your reaction to Copaxone should be brought to the attention of your neurologist. You may need to change your DMD if you are going to continue down that road.

I understand your reluctance, I think a second opinion would help.





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