It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Multiple Sclerosis Message Board


Multiple Sclerosis Board Index


Jayhawk,
My Neuro-Opthamologist told me about this, which would make sense, since he is "all about eyes". I did talk to my MS Specialist and my MS neuro about it; both laughed at me and told me that this was done with very few patients and is in no way accurate. I was also told about a blood test, which can predict disability rates- again, I was laughed at.

I did some research on my own. I learned that my doctors were correct, this was done with a very limited amount of study subjects. Im not buying it based on the fact that relapses DO NOT always equate disability. I have not had a single relapse in 4 years. Not one day of missed work/ school; however I now have 25 additional lesions. Yet, even with that statistic, I feel wonderful and appear to be physical stable. No new symptoms, no new issues.

I think studies like this are scare tactics. If someone is starting out on a DMD and has a new relapse/ attack- they immediately assume it isnt working (I know, I was one of those people 6 years ago) however, after taking the drug for 6 months to a year, all relapses stopped for me. Since then, I havent actually had a relapse; but I do have new MRI activity (glandolinium-enhancing) and yet not one new symptom. SO, does that mean IM progressing? Its the million dollar question. My case is being studied by quite a few Neurologists and MS specialists across the country; Ive been written up in medical journals- no one understands why the lesions, but no actual symptoms. I dont have just a few lesions. I now have over 100! But physicallly and mentally, Im 100%...

For the record, I have a very thin retina. Its actually torn twice. I have had laser surgery twice to fix it. The best eye doctors at Wills Eye Hospital in Philadelphia assure me that this has nothing to do with MS.

Nikki





All times are GMT -7. The time now is 06:34 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2017 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!