It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Multiple Sclerosis Message Board


Multiple Sclerosis Board Index


Re: Scared!
Apr 1, 2013
zipster,

The unknown is almost always scary- you are not alone in your feelings. I can well empathize. For me, it was a relief to learn my diagnosis. Some of your symptoms might be emanating from your fears. That is, anxiety can mimic MS. I can only encourage you to find a way to lay aside your fears. If you have things you can do which remove the focus off of your problems, please jump into that activity.

With symptoms worsening, this can also be due to the added problems of anxiety. Anxiety is not a friend to MSers or any one for that matter. The anxiety could have made your symptoms worsen.

I do not know what appeared on your CT images, but it remains true that MS Lesions would not appear. Ghost images can also appear on CTs. Here is a link regarding causes of false images: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3259390/

At this time, the waiting game when you are in pain can be one of the worst times. For me, the waiting game was more stressful than any other time. Limbo land is not a pleasant journey, but rest assured that most MSers have a shared experience in that aspect of life.

You are still in my prayers. Try to take time out to rest and indulge in some self-pampering. You need it and you deserve it!! :) :angel:
Re: Scared!
Apr 1, 2013
Zipster,
Although it does sound like something isnt right; right now, Id have to agree that you may be unknowingly be bringing some of this on yourself through anxiety....every symptom you mention, can also be brought on by anxiety- which isnt uncomon at this stage of the game...however, what are you so scared of?

MS - if thats what you are dealing with- isnt a big deal in the grand scheme of things...its very livable- over 400,000 people in the USA alone live with it. Its simply a hindrance, and at times, causes pain and feelings of not being "right", but its not a life threatening disease......the symptoms you describe, sound like they could be any number of things....and until you see the right neurologist, who is able to help you and order the right tests- you arent going to get answers. You said you have an appointment next week? Whats going to happen at this appointment? Because none of the tests you have had, are MS related in nature...will he then order MRIs of both the brain and Cspine? Take blood and do full panels? Are you looking at EMGs? (nerve conduction tests). These are the types of things that neuros generally do....and unfortunately, the waiting really IS the hardest part.

Im so sorry that you are scared. We have all been where you are- but you need to handle it and take your mind off this - thinking about it and dwelling on it the way you describe, isnt healthy for you......your body reacts to stress, primarily through bathroom related issues, GI (stomach)issues and also through your skin (as in breakouts). Try really hard to not let this destroy you....because whatever it is- youll get help and it will be behind you soon enough. Like Jayhawk, most of us were much relieved when we got a dx- its an explanation for what has been going on which has made us feel so badly- however, a few of the things you mention, arent MS related....but possibly are being triggered by your own anxiety.

Try to hang in there.....we are here for you.
Nikki
Re: Scared!
Apr 1, 2013
Zipster,
I think its really important that you discover why you are having this fatigue before you start thinking about how to treat it. MS, does cause fatigue....so does Lupus, Lymes, CFS and a host of other diseases- each have their own drugs which help. There are drugs, used for narcolepsy, which are used for MS fatigue. Some people claim they help; others do not....but its really important for you to know that ANXIETY causes fatigue, too.

MS pain isnt constant. It comes and goes- it does not affect every part of the body or every muscle as you describe- it affects the areas where nerve damage takes place...and very simply, a MRI will determine where that is- if it exists at all.

Im sure that having all these appointments is stressing you out- it would stress out anyone! But until you have them, you wont know what is going on with your body- so they are important. There is no test for MS- its diagnosed by ruling out everything else. You said your GP is testing for antibodies- antibodies to what? What have you been on that you may have developed antibodies to? Thats important, when starting any new medication- to know what antibodies you might have ....

You asked how we manage our symptoms. For me, its mind over matter. I refuse to let MS have me- I control my MS. I eat properly....I exercise at least 3-4 times a week (exercising keeps me from being so fatigued. When I dont do it, Im more exhausted and have more muscle spasms in my legs). I exercise my mind as well. I take college courses and I write papers, but I also do fun things to exercise my mind...I do alot of things online- playing games, for coordination, using Lumosity, which is a brain strengthening site- and I still do the things that need to be done in my home, such as managing a checkbook and staying on top of online banking. I also work...my job is highly stressful, in fact I was just recently promoted and now have 15 people reporting to me and depending on me. Being in this type of work environment requires me to be sharp- so I force myself to get out of bed each day and do what I must. I dont like it-but Im not ready to quit the work force.

I realize you are having extreme pain, but you still need to force yourself to do what you can...whether its getting up and walking each day- or lifting some light weights to strengthen your arms- sitting on a balance ball to stengthen your core- anything is better than nothing. AND you can work on your cognitive skills by simply doing puzzles- or finding brain teasers online.

MS is not the type of disease which forces you to stay horizontal all day for the most part...although, we DO have our days....you could very well be in the middle of a bad relapse, in which case, you need a Neuro- NOW. But wait and see what the GI doc says and get the blood work done- both are important, as your symptoms seem to revolve around GI and bathroom issues....

I honestly hope you feel better .. no one should be in as much pain as you are.
NIkki
Re: Scared!
Apr 3, 2013
zipster,
Weight loss is NOT a MS thing...nor is loose stools....the pain you are describing, isnt either... it sounds like a pulled muscle, or pinched nerve. MS pain is nerve pain, its neuropathic, meaning tingles and numbness- NOT like a pulled muscle, and it wouldnt happen when you "sniffed".
I honestly think the whole thing you are describing is not attributed to anxiety- which would also explain the loose stools and lack of gaining weight. Another thought would be thyroid....which needs to be checked out in your next blood work again.

Try NOT to worry! I know for you its very hard and I admit its easier said than done; however you are over thinking this...and spending all your time worried about it- its not good for you, no matter what your diagnosis is...you need to find a way to let this go and occupy your mind with positive thoughts...

Nikki
Re: Scared!
Apr 3, 2013
[QUOTE=zipster;5156507]Do you mean is attributed to anxiety and not?
I see a gastroenterologist and immunologist on the 15th and 17th of this month so they should rule a few things out.
I am my own worst enemy with worrying. I am worrying because I have a holiday booked to lanzarote on the 1st of july and the way I feel I am worried I won't make it.[/QUOTE]

Anxiety can be a stand alone problem or a subset of MS. Even if you have MS, you can learn to control the anxiety.

I find that loose stools and frequent bowel increases are due to stress building in my life. If I take intervening action, I only have to deal with it for 2-3 days. :angel:
Re: Scared!
Apr 3, 2013
I agree. You have told us numerous times that you have anxiety issues- this could be a stand alone problem, OR it could be related to a disease- MS or otherwise...but losing weight, or not gaining weight, loose stools- those are NOT MS related issues....

I think if you worry yourself into not going on the vacation- you wont go. If you make up your mind now to GO- and tell yourself that you will be FINE to GO- you will go. The mind is a powerful thing...and you can talk yourself into or out of just about anything.

Yes, the immunologist and GI doc will rule out many things.....but when they DO rule out things, will you then give yourself other things to worry about? Do you think you should maybe be talking to your General Practioner about prescribing something to help you with the anxiety? Some Xanax, or Ativan might help you to get thru the immediate hurdles which you are facing...there is nothing wrong for asking for some help...many a patient who IS diagnosed with MS needs some help handling the initial shock of hearing the diagnosis....abusing anxiety medication is one thing- but using it under a physicians care in order to help yourself to get this under control is quite another.

I really think you are opening up to us about your fears....and you are already expressing a history of being anxious and self diagnosing, but Im hearing that you need more help than you are getting in handling this, my suggestion is just something for you to consider...

Nikki





All times are GMT -7. The time now is 06:41 AM.





Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!