... ologist I saw last week thought it was MS he wouldn't be suggesting a cerebral angiogram. I am confused totally. My results from 2014 are all reassuringly normal as I am aware said to me today by the MS specialists Secretary. ... (4 replies)
I think I have not met the McDonald Diagnostic Criteria because if I had, I wouldn't be having a cerebral angiogram. My new neurologist who specializes in MS didn't say if I have or haven't MS, which has confused me about MS once again. I don't know MSjayhawk, maybe I'm all wrong about MS.
I have medical professionals in Asia saying these lesions are MS... (4 replies)
... I have continuously supported you getting a new opinion and only from a MS specialist, as you have spoken about neurologists and neurosurgeons in the past. ... (4 replies)
... Can you give me your thoughts because I feel you guy's really don't share the same view as me in that it could be more likely MS than not and why do you feel the way you all do? ... (4 replies)
Hopefully this new MS specialist will give me answers. I will just have to wait and hope for the best. Thanks for all your thoughts MSNik. I really do appreciate them :)
I know I'm not easy to deal with and very impatient. Forgive me for my ways. I'm just sick of being sick. This board has been of tremendous help to me. I honestly and truly don't know what it is.... (12 replies)
... llowing protocol for diagnosing the disease. Remember that neurologists treat stroke patients, Parkinson's patients, Alztheimers and other dementia like diseases as well as mobility issues....only a MS specialist should be dx the disease.... ... (12 replies)
This is exactly what my first neurologist told me when he admitted me to hospital in 2014. He came to my room and said " You have a few extra spots than on your previous Mri, I'm going to order a lumbar puncture to rule MS in or out". Now this was said after my brain Mri, after he done a whole lot of blood work, Vep's.
He had to have had other evidence... (12 replies)
... urney, but its possible that someone did. You would have to go back through all the posts here to see if you can find someone who has a similar experience to you as far as how many tests they have had and how many doctors they have seen. ... (12 replies)
... ture results were positive. So I figure he had to have had other evidence also which is why I have fought about the lumbar puncture results being used in my case as a given that I am not suffering from MS. ... (12 replies)
... Blathanna, You asked "If this cerebral angiogram is clear, then is MS my answer?"
Absolutely not. A cerebral angiogram is NOT a test for MS and wouldn't show anything related to MS....you have been asking for a biopsy of your brain over and over...a cerebral angiogram will let them know if there is anything besides healthy tissue to biospy.
You also asked "if it were... (12 replies)
... As you know the neurologist has asked for copies of my 2014 lumbar puncture results as well as Lymes and vep's. ... (12 replies)
Yes I went to this neurologist with the frame of mind to start completely afresh. He definitely was very understanding and willing to be help me. He said he knows exactly how I feel because he is a neurologist, and he knows how unwell I am and how awfully hard it is being in the unknown.
He was not bias and he told me that. I'm lucky to have him work with me and... (12 replies)
... have finally found a doctor you can stick with, this should be your new "starting point" and everything prior to this needs to be purged from your head. Treat it as if you have no previous facts to deal with and start fresh. ... (12 replies)
Yes I hope to stay with this new neurologist. At least he is willing to try and figure this all out. I think he will, I hope he will.
Blathanna (12 replies)
... No, because we are not your Dr. or Drs. of any kind. We are people who have MS, have been through the diagnostic process and have some understanding of the disease.
No, that would not be the reason. Remission, when used for MS, simply means the person is not doing as bad as they were when having an exacerbation (relapse attack, flare-up).
When someone with... (12 replies)
... spots in 2010, as to in 2012. I know that up to twenty were noted on my Mri 2014. ... (12 replies)
... n go into periods of "remission" which can last for a short or long period of time. As to reversing MS, I think "remission" might be the line of thought, but as to actually reversing, until objectively shown, I cannot believe in such a line of thought. ... (2 replies)
... In my case, there is a lot of oddness and anyone who is being confused as much as I am, is it any wonder I'm thinking what I'm thinking. I have so many things said to me that makes no sense by all the neurologists I've seen. ... (2 replies)
... Benign means NOT malignant, as in harmless. You are going to make yourself absolutely sick if you keep this up. Stop reading into everything. ... (17 replies)
... I'm just going to have to stop thinking about what it is. It could be anything and there is no point in I trying to understand what the neurologist is thinking. I have to move on and just hope for the best. It's probably nothing. I don't think anyone thinks it's anything.
Maybe I am crazy. What I don't understand is why they won't say I'm crazy if that's what they really... (17 replies)