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Multiple Sclerosis Board Index
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... Tammy70ms, Thanks for your update. Sorry it is not working for you. Your body might have a resistance to the various DMDs. Another thing to consider is where you fit on the disease progression charts. If you have moved to a progressive type, the DMDs are not recommended. If you have not gone that far, you still have to consider the possibility that the DMDs are not... (1 replies)
... Hi all I'm back again my yearly or so problem check in :/ maybe you might recall me I started tecfidera in Sept, repeat MRI 7 months later showed multiple new and enhancing lesions obviously this drug is not for me either Not surprised this is my 4th med and none of them stopped lesion progression but rebif did give me no activity on one mri first time ever since 1991, then... (1 replies)
... our neuro to recommend one, call your insurance company to see if anyone is in network, or look at your local hospital to see if they have a MS specialist listed as being on staff. ... (3 replies)

... Potiga, one of the FDA approved drugs for epilepsy approved by the FDA in 2011, can cause problems emptying the bladder. Studies indicate that the problem known as urinary retention is common among seizure medications. ... (3 replies)
... There is no textbook presentation for the bladder as it relates to MS. My first thought would be a urologist. The neuro who treats epilepsy is going to probably focus on epilepsy and not MS. ... (3 replies)
... Carbo... Again, I applaud the fact you don't just go along with anything the medical community tells you to do with your own body. Please continue to do your own research. That is how I found the article on medscape about three years being the effective time from for dmd's about 10 years ago. There was also a study released I read in the New York Time in July of 2012 that... (8 replies)
Ms hug?
Jul 24, 2014
... inflammatories. The other less common one is pericarditis, inflammation of the sac around the heart. It usually makes people feel sicker, as pleurisy just causes pain. It can best be diagnosed by echocardiogram, but may show up on EKG as well. ... (3 replies)
... If your feet turn blue while seated on an examination table, I do not understand how that would be or could be dismissed as nothing. Yes, we will always meet those who think we are nuts, but in the end, most of us are vindicated. ... (9 replies)
Newly Diagnosed
Jul 24, 2014
... I also want to add that watching a documentary to "learn" about MS is not a wise decision. As Snoopy said, it will probably scare you and Jason DeSilva has a very severe case of MS, which is highly progressive. ... (9 replies)
... As far as the comment that DMDs only help for the first 3 years. "I have read a great deal over the years and they all still tell me the same thing... ... (8 replies)
Ms hug?
Jul 24, 2014
... Angie, I personally have never heard of anyone having a MS hug described as a stabbing pain. Most everyone describes it as a tightening, squeezing feeling and my MS hug is also the latter. ... (3 replies)
... Like everyone said, turning blue, is not a MS thing. Vascular issues can confuse the MS diagnosis, but a problem like that, might get you closer to answers as long as it is seen by someone. ... (9 replies)
Ms hug?
Jul 23, 2014
... Angie1970, :wave: Welcome. Long term use of Plaquenil can lead to muscle weakness as a side effect which is to be reported to the prescribing doctor immediately (as well as vision problems). MS Hugs can vary. My personal dealing with MS Hugs have had the tightness and squeezing continue for 2 -3 days before getting any relief. Lupus has tests to identify it,... (3 replies)
... If your feet are literally turning blue, please go to the ER as this would be serious and not due to MS. ... (9 replies)
... Agreed..I misspoke. MRI's do not give off what everyone thinks of as "radiation" however for some like myself...the "radio waves" they do give off gave me severe headaches and nausea. ... (8 replies)
Newly Diagnosed
Jul 21, 2014
... he rules are different in Canada. I used a service dog and my friend in Canada had to get her service dog through a certified school and renew the certification as needed. ... (9 replies)
Newly Diagnosed
Jul 21, 2014
... MS affects each person differently. There is a good possibility that one of those documentaries, such as the one you mentioned, will show a more severe, progressive side of the disease. ... (9 replies)
... I congratulate you on standing by what you believe is best for your body and your life. As stated by others, MS can look like other conditions so it is important to have everything else ruled out as best you can. ... (8 replies)
Newly Diagnosed
Jul 21, 2014
... as, for example, disabled persons are eligible to be sent back to the university if needed to learn a new career and to get assistance to complete there training as well as a monthly stipend. Each state varies, but I would certainly make inquiries. ... (9 replies)
... But I have been to several neurologists all of whom have different opinions as to whether or not this is what I have. ... (8 replies)

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