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Multiple Sclerosis Board Index
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... yesterday. For years, I have suffered with sensitivity to cold on my toes and feet where the only thing that happened, is areas turned white and they went numb. As they warmed up and blood came back to the area, I got the pins and needles feeling. ... (0 replies)
Feb 28, 2015
... There has been mention of whether or not I may have moved on from R/R as well; I havent had any major changes in the past 5 years except radiolgraphically. No real new symptoms....however, I do not find that I am losing energy. Have you ever considered looking into LDN? Low Dose Naltrexone. Its not FDA approved for MS in the United States; but its used off label. In Europe,... (3 replies)
... Thank you for clarifying! SO, you havent actually seen a neurologist yet. Your primary doctor sent you for the MRI and LP and made the preliminary diagnosis. SO, that doctor is sending you to the MS Specialist. Wow. Well, Kudos to your regular doctor! For him/her to get this far is pretty amazing. HOWEVER, depending on how familiar they actually are with MS, they could be... (9 replies)

... Thank you as always for your thoughts. ... (17 replies)
... Thanks for your update. Your neuro is, I believe, spot-on to send you to an MS Specialist to confirm. "Dead spots" Was this a "Black Hole"?? Black holes can be spots where lesions are absorbed by the body. Black holes do not present with every MSer. As to a clean LP, 15% of MSers have clean LPs. A clean LP or a positive result cannot confirm or deny MS. Keep... (9 replies)
... osting them to my Neurologist. The surgeon thought this a good idea, and he will also speak with my Neurologist, about Neurological review. All yet again a guess as to what's really my Neurologists thinking. ... (17 replies)
... So many mixed messages, so many unanswered questions, and when all is said and done, i am left with no answer as to what is or may be causing my symptoms. ... (17 replies)
... VetteGrid, The MRI can neither confirm or deny MS. As to the contrast dye, it is eliminated quickly. :angel: (33 replies)
... Went ahead and got the EMG and EEG... EMG came out great- they said no signs at all of anything bad. EEG results are coming tomorrow. In all honesty the only symptom I have is this crazy motion sickness/dizziness. It makes my head so full. I think this is what hurts my train of thought and possibly cognitive issues. I have a follow up with my neuro in two weeks. I'm not sure... (9 replies)
... Indierock As always, my prayers are with you for answers and for strength! I wish you the answers you seek... Let us know when they have that meeting what you decide to do. Until you see a MS specialist, I do not believe you are going to have concrete answers on why the neurologist wrote what he did. Your interpretation of the McDonald Criteria will be better explained by... (17 replies)
Quick question
Feb 25, 2015
... up in your system. Depending on what dosage you are taking, you need to be aware that you should not quite "cold turkey" as a withdrawal can have adverse reactions. ... (7 replies)
... the future is low. He then says, nonetheless I need to be monitored with clinical review and Mri on at least an annual basis. Here i interpret his words to mean as having a suspicion about MS.If he doesn't have a suspicion, why do i need both clinical and Mri review? ... (17 replies)
... Im sure your doctor will argue to get you in to see an MS specialist as well... ... (2 replies)
Quick question
Feb 24, 2015
... Firemom. As you stated, a benchmark is all you are going to get out of the old MRIs if you request them. Yes, if there had been something there, no matter what they were doing them for- something would have showed up and you would have been notified. Chances are, at that time, there was nothing there; however that can change in a matter of days....when the first MRI was that... (7 replies)
... Thanks very much for your helpful reply.I just remembered that a couple of bangles that I could wear quite comfortably a few months ago have been quite difficult to put on & take off lately.I think also that I have put on weight since using Lyrics.I really don't want to stop it though as it has been brilliant for treating nerve pain after a serious MS attack last... (6 replies)
... I have nothing to lose by seeing an MS specialist,especially when i am getting no answer as to the cause of my symptoms thus far. ... (17 replies)
... MSJAYHAWK, He said they are non specific. Can be seen in smokers, hypertension, migraines and also in people who have none of the above. It's just not good enough, all these symptoms and reading letters about low risk of MS, and annual Mri's, its all very vague. Indierock (17 replies)
... MSJAYHAWK, I am awaiting the radiologist to do a comparison of my Mri's. My neurologist never said anything in his letter relating to comparison of my last September Mri and this recent one. An MS specialist is the one who will sort me out once and for all. As always thank you for your invaluable advice. I need to be evaluated by an MS specialist and am so glad i am... (17 replies)
... sions present are of the type which are associated with MS and there are at least two lesions which are such, then you would meet the Revised McDonald Criteria. As MS is not within the experience of this neuro, they simply may not be able to properly ascertain the image. ... (17 replies)
... Now they've authorized a second brain MRI this time with contract, and the cervical spine as well. ... (2 replies)

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