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Multiple Sclerosis Board Index
Pages: 1Showing 1 - 13 of 13 for sarcoidosis specialist. (0.006 seconds)

... This neurologist is an MS specialist and he looked at my MRI images in combination with the symptoms and said that I most likely do have a mild form of MS. ... (11 replies)
... I was one of the first MSers to use an MRI. KUMC had just opened their new MRI wing and they had a slot open for each department. My MS Specialist had already diagnosed me but asked me to volunteer. The machines then were nothing like we have nowadays. Still, lesions were noted. ... (12 replies)
... at everything is looking normal. But from my research an elevated CSF ACE level of 7 isn't normal, and could point to sarcoidosis. I had never actually heard of sarcoidosis or neurosarcoidosis until a couple of days ago when researching some of my LP results. Neurosarcoidosis is a mimic of MS and the other way around. ... (12 replies)

Making progress
May 15, 2013
... Well hello there strangers! Been away for a minute. How has everyone been? I am hoping well considering. I finally got a LP w/fluroscopy done last week on Wednesday. It was horrible, did I mention...haha I can laugh now but I was crying last week. No awful headache but couldn't walk for a few days due to pain and weakness. Still having awful lowback pain. It took her a... (1 replies)
... Hi, me again! Had my appointment this afternoon with the director of the local chapter of the National MS Society. Turns out he is a specialist in Parkinson's, but an overall sharp doc (on MS as well). I came away with mixed feelings, but I know now, at least, that I'm on the right track. He took a look through my tests and, while never saying anything (AT ALL)... (65 replies)
More Tests....
Mar 13, 2008
... Well, the endocrinologist, allergist, and infectious disease specialist all found nothing in my blood work that was alarming. ... (7 replies)
... I am also only 23yrs old and should not be experiencing this so young! I am not overweight or anything, and I try to work out when I can. I go to see my MS specialist tomorrow and we'll see what she has to say. I just had a bunch of testing done that has been negative so far, besides a positive spinal tap. ... (2 replies)
3T MRI Results
Feb 28, 2008
... t is wrong!! I had an excellent rheumotogist, plain neuro, and immunologist but I am still left with no real answer. So we'll see. I am supposed to see the ms specialist again next thursday if all my test get back in time. ... (2 replies)
... doc, gastroenterologist, ms specialist and 2 general practicioners to figure this whole mess out. ... (11 replies)
Still no answers
Feb 19, 2008
... I haven't posted for a little while so I just wanted to keep you all updated with my health. I went to see the MS specialist in Jan 31 who was phenomenal and very understanding. ... (3 replies)
... Kris, I am right there with you and have been so frustrated. I see other people are having the same problem I have been seeing doctor, specialist, after specialist and have been referred to my 3rd NEURO!! Nobody seems to think it's MS, even though all the symptoms I've seen match. The fatigue is the worst. ... (9 replies)
... Yes, I had to borrow clothes from my Mom too, and she said the same thing your Mom said to you!!!! No, nothing can be done. No specialist or physical therapy. I can't afford them. ... (13 replies)
... With the symptoms that you are experiencing, they can mean a host of conditions. One, with the vasculitis possibility, your MS specialist will be looking at ruling out lupus as the cause. Lupus can affect the brain causing lesions as well. It is also a vasculitis. ... (3 replies)

Associated Tags: lumbar puncture, symptoms, test results

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