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Multiple Sclerosis Board Index
Pages: 1 2 Showing 1 - 20 of 39 for secondary progressive ms rebif. (0.007 seconds)

... I've had MS since 1990 and it has slowly gotten worse. I was first on Avonex, then moved to Rebif. ... (3 replies)
... In 2010 my mother was diagnosed with relapsing-remitting MS and in 2013 she had developed secondary-progressive MS. Her condition was diagnosed early and our family educated ourselves about her condition, understanding the possible outcomes without proper treatment, believing we were involved enough in her care to prevent her MS from advancing – in hindsight I believe we put... (11 replies)
... R MS. I havent progressed and the rest of my symtoms, the MS hug, the unbearable heat intolerance, etc all come and go randomly. ... (14 replies)

... Its not a "given" that all forms of MS will progress. Its possible, but for you to go from RRMS to PPMS, would be very odd. ... (14 replies)
... Liza, I have been on rebif for over two years now and at first I had the same problems and issues as you. ... (10 replies)
... I guess the best way for me to describe my ongoing experience with MS is to liken it to a person that was on a ship that sunk. ... (10 replies)
... And how long were you on Rebif and Avonex for? ... (3 replies)
... I Have Spms,i'm Staying On My Rebif Even Though It's Not Approved For Far As I Know At The Present Time There Aren't Any Disease Modifying Meds For Spms. ... (3 replies)
... MRI showed 3 new lesions vs 2000, visual potentials were abnormal and my neurologist confirmed MS and put me on Rebif in November 2007. ... (18 replies)
Rebif and Liver
Dec 3, 2007
... Well, I'm feeling mean and cranky and scared. When I was at Mayo I had all sorts of urgent messages from the neuro office STOP TAKING REBIF which I'd been on for about 3 months. Turns out my liver enzymes were WAY elevated. He said quit for a month. we'll look at new blood tests. ... (5 replies)
... hi Cindy...very good to educate yourself and my information is coming from the National MS society .just in my own words...ok? ... (27 replies)
... remitting kind, which is secondary progressive. When my neuro told me that I had it, I asked if I wasn't kind of old for it, because I remember it as being "the crippler of young adults". ... (14 replies)
... I wasn't given a choice about a DMD; I was sent home with Avonex. It was good for me, but I had flu-like symptoms EVERY week. After a year or more without any drugs (my annual insurance limit was reached in a few months), I tried Copaxone because I could get on the company's program to help get it cheaply. That was not successful for me, so I went off meds again until I got... (4 replies)
... No test will tell what type of MS any of us have. MS is catagorized by the amount of time we have between relapses. ... (9 replies)
... R MS. Primary progressive is the one which doesnt have any drugs approved for at this time....however, all of this is subject to interpretation. ... (18 replies)
S.P. Meds
Apr 6, 2009
... Even though someone has transitioned to SP the DMDs can still be used. The National Multiple Sclerosis Society has information on this topic (3 replies)
S.P. Meds
Apr 6, 2009
... Rebif and Avonex are not approved for Secondary Progressive MS in the USA. ... (3 replies)
... this with you didnt know why they wanted to do an LP...Lumbar Punctures, or spinal taps are done to rule out infection, to check for Obands, which are commong in MS patients and to help get closer to a dx.. ... (49 replies)
S.P. Meds
Jun 2, 2008
... My friend's mother who is SPMS began on Avonex, and is now on Rebif actually :) (19 replies)
... This type of MS experience clearly defined attacks. ... (18 replies)

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