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Multiple Sclerosis Board Index
Pages: 1Showing 1 - 16 of 16 for susac syndrome. (0.003 seconds)

Susac syndrome
Nov 26, 2010
... Like Jayhawk said, Susac Syndrome is not exactly like MS and is hardly diagnosed the same way....who diagnosed her MS and why did they think she had it? ... (4 replies)
Susac syndrome
Nov 25, 2010
... If your wife was first diagnosed with MS, I cannot imagine them missing problems with her blood vessels. I would seek out a second opinion. Could she have both Susac and MS? ... (4 replies)
Susac syndrome
Nov 25, 2010
... has any one have or heard of this susac syndrome? ... (4 replies)

Susac syndrome
Nov 26, 2010
... ek a second opinion because of the previous diagnosis of MS. If it is only Susac, it may take some time, but it does get better. Mental confusion is part of the Susac progress. Still, I would urge a detailed second opinion to assure you and your wife that it is only susac and not both susac and MS. ... (4 replies)
Susac syndrome
Nov 26, 2010
... elination disease..when she responed to infusion he put her on rebif and imurdan she got worst.he than suggested a ms clinic for more testing the clinic said its susac syrndrome afther several eye tests and looking at her mri's very confused,she can hardly walk can't hear well and is very confused. ... (4 replies)
... dear ll, Just wanted to say that Heddi is right, Susac Syndrome DOES mimic MS, and is often mis-dx'd as that. I am newly dx'd w/ Susac Syndrome, and it's quite rare......but ~ not as debilitating, IMHO as MS. kk (18 replies)
... There are posts on the SUSAC Syndrome that someone wrote mimics MS. ... (18 replies)
... My husband has been sort of diagnosed with susac's syndrome. They are still looking into things and trying to manage the symptoms. I know this post is old, but if you want to chat about it, let me know. (18 replies)
... I think this thread of messages is old, so I realized I may not get a response. I was diagnosed with Susac's Syndrome last year and am still recovering from the attack that brought the diagnosis. ... (18 replies)
... Hey Sweetie! Good to hear from you! I haven't been on the computer for awhile and found your post a supreme delight to find! :D That is interesting the PCP is suspecting vasculitis. Do you have any venous stasis in your eyes? I hope the rheumie is very helpful. Your ANA is a good clue as well as the hi cholesterol, and he'll probably do more tests. I can't remember... (7 replies)
MS mimicers
Sep 21, 2004
... Susac's Syndrome, a rare disorder. See post on this board for more info about it. (20 replies)
... Hi-- Trust your gut. MS symptoms can be mimicked by other conditions and because it is so hard to diagnose and affects people differently, it is possible he has another condition that is mimicking MS. See Susac's Syndrome. It is a rare neurological disorder, and speech up to inability to speak can be one of the symptoms caused by the encephalopathy. It affects the... (2 replies)
... can affect vision as well and can be a cause of ON. Susac's Syndrome affects the Branch retinal artery by occluding it, and the patient may or may not notice any visual disturbances. ... (3 replies)
... Hello and Welcome to the Healthboards! :wave: I can surely understand your concern and other feelings that you are experiencing at this time. With the symptoms that you are experiencing, they can mean a host of conditions. One, with the vasculitis possibility, your MS specialist will be looking at ruling out lupus as the cause. Lupus can affect the brain causing... (3 replies)
... Hi Yawn, I was just screened for a rare neurological disorder that gets misdianosed as MS or complicated migraine. Just for your FYI, see my post about Susac's Syndrome. (4 replies)
Eye Pain
Aug 12, 2004
... Hi Dana, Check out the post about Susac's Syndrome. It was brought to my attention by my physicians. I posted info on this board since it is a rare disorder that physicians can mistake the signs and symptoms for MS, including vertigo & tinnitus. It can affect the brain, movement, hearing, and vision. It can be mild to severe. Severe conditions can leave residual affects... (27 replies)

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