... Hey, anybody know what they mean when they say "demyelinating disease"? ... (18 replies)
... dear ll,
Just wanted to say that Heddi is right, Susac Syndrome DOES mimic MS, and is often mis-dx'd as that.
I am newly dx'd w/ Susac Syndrome, and it's quite rare......but ~ not as debilitating, IMHO as MS.
kk (18 replies)
... I think your question is a very good one and I for one would sure like to know the answer. Everything I have read about MS always starts with the old "have to have many tests done to rule out MS because so many disease mimic MS" I have yet to hear of more than two or three. ... (18 replies)
... My husband has been sort of diagnosed with susac's syndrome. They are still looking into things and trying to manage the symptoms. I know this post is old, but if you want to chat about it, let me know. (18 replies)
... Here is an excerpt that I cut and pasted from a website:
It is critical to exclude other diseases that can mimic multiple sclerosis, including vascular disease, spinal cord compression, vitamin B12 deficiency, central nervous system infection (e.g., Lyme disease, syphilis), and other inflammatory conditions (e.g., sarcoidosis, systemic lupus erythematosus, Sjögren's... (4 replies)
... Syndrome last year and am still recovering from the attack that brought the diagnosis. I'm interested in talking about it a little more with you and finding out what your experience has been. ... (18 replies)
... Didn't read the rest of the posts too closely, but the most obvious is:
......a narrowing of the spinal column at one or more points which in turn place pressure on the spinal cord. This condition can be mild to severe, can come on slowly, can be induced by neck trauma (e.g. whiplash)....and can cause symptoms exactly like many forms of MS. Three... (18 replies)
... been waiting several months and symptoms are getting worse no better and everyone is passing the buck to another dr instead of doing the tests and figuring out what is wrong. I guess because its not their quality of life effected hey who cares let em wait.. ... (18 replies)
... OH PREACH IT SISTER!!! I'M OUT HERE SHOUTING AMEN! My original internist was GREAT...she was a pit bull,called in personal favors with other specialists to get me moved to the top of their lists for testing... ... (18 replies)
... Hey Dad, I just wanted to tell you I'm being tested for MS and I just found out I have Hasimoto's. I am suposed to see the neuro soon. I would like to think this could be my thyroid. ... (18 replies)
... I've been doing research on some of the symptoms that I have been having and many of them seem to also fit in with mitral valve prolapse so that may be another one that mimics ms.....
topsi (18 replies)
... I read a post by a doctor the other day that offered a suggestion to someone looking for a good specialist. ... (18 replies)
... nd these doctors that put off doing testing. Don't they realize how hard it is to have strange symptoms, some of which affect your quality of life, and not know what is causing it? ... (18 replies)
... i can symthyse with the waiting! im it took a year untill i got listened to and saw neauro, and its been 5 months and i havent had mri yet. they dont think its ms but said just wait and see what happens untill mri! so frustrating and upsetting! ... (18 replies)
... months to see a neuro, im wondering cripes how come so long....... i question everyone....... what my understanding is...... ... (18 replies)
... ped with B12 injections, there are a couple of posts already with mroe info about it. OR Arnold Chiari Malformation like I have. Initially I was being tested for MS cause I had CLASSIC symtpoms alot fo stories I read shw alot of other people had possible MS diagnosis. ... (18 replies)
... There are posts on the SUSAC Syndrome that someone wrote mimics MS. (18 replies)
... Everyone is always saying there are a million things that have the same symptoms as MS. Does anyone really know what those are aside from Lyme's disease? ... (18 replies)
... hi. I know this is a old post,but my wife just was diagnosed with sucac syndrome.
I hope all is well,and you could tell me something about treatments your husband rec ieved.thankyou and god bless. (18 replies)
... I just got off of the phone with my insurance company and I think I can safely say why the doctors don't send us for all of the tests all at once.
Mine called me because of all the tests that I'm having done on Feb. 21st. (MRIs of my brain and complete spinal cord, both with and without contrast, an MRI angiogram of my head, BSER, VER, and SSER) They... (18 replies)