... des my father, I do not know anyone else who has this kind. My biggest issues are fatigue and endurance right now. I hope to hear back from you and I hope this message finds you doing well. ... (1 replies)
... Hello, everyone. I just joined this forum.
A little bit about me:
I am a 56 year old female, diagnosed with myotonic dystrophy at age 12. I can still walk some by myself, but not very far. I mostly use a walker and a wheelchair. My son is 38 years old and has very severe myotonic dystrophy. He can't walk at all.
I am very happy and I put my trust in Jesus.
If there's... (2 replies)
... HI there,
thanks for the reply back,i was so happy to read this..i am brand new at this site and i got the reply in my e mail and tried to go on the site and couldnt and then lost my password and its taken me till now to request a new password..Anyhow not sure if this will work or get to you but i will give it a go.i have scapulao peroneal muscular dystrophy since i was ... (5 replies)
... disease originated many generations ago. So there's a small group of my family members who have the disease. I'd love to discuss this more with you. Feel free to message me back. ... (5 replies)
... So, it looks like nobody on the Muscular Dystrophy message board has has a dna test for any type of muscular dystrophy? ... (8 replies)
... I know that having someone to talk to is important, and this message board helps me a lot. You will find many answers here. ... (8 replies)
... I've been reading this message board all day today. I've cried plenty of times. Your stories are so real to me. I'm glad I am not alone. ... (3 replies)
... questions just hop on that thread with your question and they will read it as they check in and will send you a reply.If someone replies to a thread you write a message in an email will be sent to you or just check back on this web site. ... (19 replies)
... From your message it does not seem that you are in the room all the time with the docs when they examine her. ... (6 replies)
... similar questions and am trying to figure out how to contact you! I sent a friend request and added you to my contacts, but I'm not sure if that will allow me to message you or not. I hope you don't mind. ... (7 replies)
... this message board I am SO glad to have found it. ... (7 replies)
... Thank you for all your kind words! I too, read constantly, use my online resources, and watch way too much tv. I only leave the house periodically depending on weather, mood, and destination. I have wonderful daughters that ensure all my needs are met, but sometimes I miss my old life. I relocated a few years ago to live with my oldest daughter, so unfortunately, most of... (23 replies)
... I am new to the message boards myself, but it seems like a great place to share info and find support. ... (23 replies)
... Just found this message board today and am relieved to find other people out there who have the same feelings as me both good and bad. ... (23 replies)
... Thats the spirit Rira.
I think test is the word for it.
Hang on in there. You'll have plenty of good days with the bad, hopefully!
Gerry! (13 replies)
... Hi Mark,
First of all thanks alot for your supporting message. I'm glad to meet people like you here.
Today I am in a good mood, I have decided to be more optimistic and less nagging! :) I know I'm not the only person in the world struggling with my illnes and I can have good friends having the same problem... But it was just too fresh and recently there were too much... (13 replies)
... I have the utmost respect for anyone that finds themself in this situation and can come to a message board and share their thoughts and feelings. ... (16 replies)
... I believe that a positive attitude gives your body a message that all is fine and you feel the strength building up and that makes the depression go to hell. ... (16 replies)
... Yes I did a muscle biopsy done and it did tell me what type of dm I have. If anyone on here has dm1 reply to my message. (2 replies)
... We're here for you and if you really need to "talk" to someone that gets it, please feel free to send me a private message through this board if you want. I don't work anymore and am on the computer a lot during the day. ... (9 replies)