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Muscular Dystrophy Board Index
Pages: 1 2 3 Showing 1 - 20 of 54 for miyoshi myopathy. (0.005 seconds)


... hey there, my name is chelsea. I dont know much about Miyoshi Myopathy but I have Muscular Dystrophy. I have problems getting up and walking a long time things like that. ... (7 replies)
... Miyoshi myopathy is a form of muscle degeneration or muscular dystrophy that begins in young adults, causing progressive muscle weakness. ... (7 replies)
... Hello Elly and Kayeloo I have LGMD 2B and was diagnosed with this in October 2006. We have different types of dysferlinopathy but I think we have a lot of things in common. Just now I am little confused about the differences between Miyoshi Myopathy and Limb-Girdle Muscular Dystrophy type 2B. I have been reading alot about both types, but it isn’t clear to me anyway. I... (7 replies)

... years ago since then i have had amuscle biopsy and have been cofirmed as having miyoshi myopathy. ... (7 replies)
... I have Miyoshi Myopathy and was diagnosed so only about a year ago. ... (8 replies)
... I am very happy I found this website, because I have been looking allover for more information about Miyoshi Myopathy. ... (7 replies)
Miyoshi Myopathy
Jun 30, 2006
... ining in 2002 indicated a dysferlin deficiency, but a recent Western Blot Test showed Dysferlin to be about normal. My symptoms are almost completely opposite of Miyoshi Myopathy but with the same devistating results..... ... (23 replies)
Miyoshi Myopathy
Jun 29, 2006
... My husband was diagnosed with Miyoshi Myopathy yesterday. He was originally diagnosed with LGMD 16 years ago at age 18. ... (23 replies)
Miyoshi Myopathy
Jun 27, 2006
... My name is Paloma and I just recently found out that my cousin whom is like a brother to me and is my same age 20 has miyoshi myopathy. He has not been oficially diagnosed because he has not gone back to get a biopsy done. I don't know what to do to help him. ... (23 replies)
Miyoshi Myopathy
May 7, 2006
... I totally understand how you feel. I have not been diagnosed with miyoshi myopathy, but I have MD of unknown origin. ... (23 replies)
Miyoshi Myopathy
Sep 5, 2005
... Both my parents were fine. Neither of them showed symptoms of Miyoshi Myopathy. No one in my family has shown symptoms of Miyoshi. Both parents must be carrier of Miyoshi in order for any of their children to have it. ... (23 replies)
Miyoshi Myopathy
Aug 12, 2005
... Miyoshi Myopathy sufferers; please share with me - Did either of your parents have muscular dystrophy.??? I have Dysferlinopathy with Miyoshi-like symptoms, but dysferlin dystrophies are recessive inherited. My father had MD, my mother was "normal" so this is making my diagnosis difficult. I'm just trying to "poll" a few dysferlin patients to ask how they inherited thier... (23 replies)
Miyoshi Myopathy
Aug 12, 2005
... Otherwise it was good to see people continuing normal lives as usual. Despite certain inconveniences, I think miyoshi myopathy can me made a minor factor affecting us. ... (23 replies)
Miyoshi Myopathy
Apr 3, 2005
... blood test on myself and my mother to look for increased levels of Creatine Kinase. I also heard that now they can just test blood and they can see if you have miyoshi myopathy without doing any further testing. I had a muscle biopsy and an emg test. ... (23 replies)
Miyoshi Myopathy
Mar 20, 2005
... I first discovered that my legs were getting weak at around age 17 or 18. I went through many tests and was told that I have Miyoshi Myopathy. I'm glad to meet someone that is going through the same problem that I'm having. ... (23 replies)
Miyoshi Myopathy
Mar 24, 2004
... i was diagnosed with miyoshi myopathy earlier this year and now have no idea what to do. i feel very alone and i don't like any of the doctor's that i've seen. ... (23 replies)
... How long have you had Miyoshi Dystrophy? ... (17 replies)
... I too have Miyoshi Myopathy. I am 40. Feel free to ask me anything. It is good to meet other needles in the haystack. ... (17 replies)
... Hey Mike! I have Miyoshi Myopathy and I am a criminal defense attorney... ... (17 replies)
... Hey Claire! I am 28 years old and was diagnosed with miyoshi myopathy when I was 19. I experience the same symptoms as you explained. ... (17 replies)




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