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Pages: 1 2 Showing 1 - 20 of 38 for orbital myositis. (0.000 seconds)

... My daughter was diagnosed in 2009 (age 11) and has at least one major flare up a year. Up until this year she was treated with steroids. Gained a tremendous amount of weight and all the sef-esteem issues associated with it. It has taken us 4 years to find a regiment of steroidal drops which keep the eyes open and IBuprofen 600 for the pain. Can't seem to find an expert. (13 replies)
... The surgery was in 1999, well over 10 years ago. I have never had an episode of Orbital Myositis since that time, at least nothing I felt. ... (13 replies)
... I too was diagnosed with Orbital Myositis in the early 1990's. I was put on high doses of steriods for many years. I saw many eye specialists both near my home and in Boston. ... (13 replies)

... (13 replies)
... So sorry to hear you have Orbital Myositis also known as Psudo Tumor I have battled this debilitating desease for over 20 years and try to avoid Prednisone (steroid) as much as possible because of the dreadfull side affects but some of the lucky ones do and have either kept the condition at bay or are "cured" with just one dose. I would be extremly cautious about taking... (13 replies)
... I am sorry to hear you have that condition. Anything to do with the eyes can be rather scary, to me at least. After being officially diagnosed with the Orbital Myositis (has similar symptoms) I went through the fear and denial, then acceptance. I have a 'condition' that is random, comes and goes whenever and that's just how it is. I found my biggest trigger, rubbing my... (13 replies)
... Official diagnosis of orbital myositis. ... (13 replies)
Orbital Myositis
Jan 6, 2008
... I just had an MRI of the brain and orbits on Friday and the radiologist wrote it could be "orbital pseudo tumor" or "orbital myositis". I have had symptoms in my right eye ( eye bulge/double vision/now headaches) going back at least 1 year. I saw an eye doctor Friday afternoon and am undergoing lab tests tomorrow for Graves Disease. Not sure yet the true diagnosis and/or... (4 replies)
Orbital Myositis
Jun 28, 2007
... Sorry I am a PM suffer and don't know much about OM however you could check out this web page for support and information Wishing you well and keep fighting (4 replies)
Orbital Myositis
Jun 6, 2007
... I am greatful to have found this site but so sad the many out there suffering. For aprox 20 years, have had this dreadful monster "they" call OM orbital myositis. Is there anyone else with this form of myositis I really hope not but if there is please PLEASE reply. Feeling very alone. ... (4 replies)
... Hunt Syndrome or Orbital Myositis, I think they both are pretty rare. He put me on 100mg of prednisone for 2 days and then taper to 60 mg until further notice. ... (0 replies)
... Hi there. I just joined this site and am wondering how many people here have Inclusion Body Myositis. So, i want to let you know about one of best product about myositis message like that Slendertone. Slendertone help you to make more powerful myositis message. ... (13 replies)
... that was causing the orbital myositis, I don't and the Rheumy confirmed that. Is your rheumatologist only to start the immune suppressive treatment, not to treat the orbital myositis? ... (9 replies)
... So sorry to hear you have been diagnosed with Orbital Myositis. ... (9 replies)
... I have also just been diagnosed. Just curious as to how you are responding to treatment. Originally I responded well than had a flare up, I'm on 80 mg of prednisone and waiting to see a rheumotologist to start immune suppressant therapy. Very interested in hearing how other s are fairing. Thanks. (9 replies)
... I was just diagnosed 6/26/11, similar experience that you have, I have an appointment to see a rheumotologist on Tuesday to start immune suppressant. Very interested in hearing how you are doing. Thanks. (9 replies)
... Has your Myositis cleared up? ... (13 replies)
... I have just been diagnosed with Orbital Myositis, and I have to say thank you for posting your story. ... (9 replies)
... although only diagnosed mid 1999 after suspicions of orbital cullulitis, metastases after breast cancer etc.. ... (9 replies)
... (9 replies)

Associated Tags: cellcept, orbital myostis, prednisolone

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