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Pages: 1 Showing 1 - 20 of 26 for polymyositis flare up. (0.043 seconds)

... years ago. I began having pain in my left arm recently, but the only part that was affected during my polymyositis flare up was my entire right side. It may sound strange, but my pain is only bad when I have long term exposure to the sun. ... (23 replies)
... I am a 67 year old man who had a bad case of polymyositis 10 months ago. ... (1 replies)
... I, like you in the past, everytime they lowered the steroids the Poly would raise its ugly head and up we would go back up on the Medrol. I have also been on Imuran and methotrexate. Both of wich I stopped because they damaged my liver. My GI doctor said do not take that poison. ... (14 replies)

Dec 2, 2010
... thought I might have polymyositis. Because I was taking the prednisone when I visited the rheumatologist, no symptoms were presenting. She said if I had another flare up I would need a muscle biopsy. ... (0 replies)
... Well..I understand the pain from polymyositis and have been living with it since 1998 and have tried everything... ... (14 replies)
... Oh gosh! I thought i was the only who gets bad advise by people but i think is because they don't know what to say after you tell them about your disease. I have people tell me to take vitamins or think is my bones and take calcium. When i fell last month i needed stiches and my husband took me to emergency and i had to convince them that i am not in a abusive relationship and... (48 replies)
... oh i see. Then i have flare ups. I got off the meds. ... (48 replies)
... A flare up for me is when my doctor tries to lower my medication dose because my cpk numbers have come down and he thinks maybe we can lower my prednisone intake. ... (48 replies)
... you will know a flare up when you can not wipe your own butt, get dressed, roll over in bed. bassically you have no energy or strength to move. ... (48 replies)
... When you say have a flare up what does that mean? ... (48 replies)
... I think it is very important to hear how others feel and how they are dealing with this desease. I really find myself alienated when I go to the hospital with a flare up ,and have to explain myself to the doctor's as if I were crazy they look at me, or do not believe that I am in pain. ... (48 replies)
... it has not done. My CPK count fluctuates. When my doctor tries to wein me off the prednisone my cpk count goes up. So right now I am at a stand still. I feel a flare up coming on and my doctor has tried all the medications out there so far. I am loss as to what to do now. ... (48 replies)
... I was wondering what are CPK numbers? My numbers right now are 4,000 but when diagnose with the condition it hit 12,000. (14 replies)
... Elaine, as a long veteran with this disease i was hoping you could give me some advise. I also was diagnosis with polymyositis three years ago. I am very depress because my condition has not improve. My CPK numbers are still very high and i am weaker than when i first diagnose. ... (14 replies)
... Hi, my name is Elaine. I was diagnosed with Polymyositis in 1984. I am 65 years of age and recently retired. I have been on steroids since 1984. ... (14 replies)
? polymyositis
Jan 2, 2009
... I'm embarrassed to say that I am still not up on the proper language after 10 years. I usually try to ignore it until I have a flare up and then I start investigating again for any new info. Best wishes to you. ... (7 replies)
... answers soon, the wait is at least as tough to bear as being sick itself. I just got my new blood test results back now and once again, my white blood cells are up and double of what they should be, while a month ago they were normal but I've had this before so I tend to worry less by now. ... (5 replies)
... Sometimes medication side effects can cause these symptoms but nothing shows up on tests. ... (1 replies)
... I only took 10 mg of Methotrexate and I feel so weak in 3 days that my voice fades away when I talked. My Physician removed it from my treatment and replaced it with Imuran 150mg. In addition I was also taking Prednisone but 40 mg made my muscles weaker and brought my blood sugar up. My doctor reduced it to 20. It took 1 1/2 years to wean me off 20mg of Prednisone. I am down... (15 replies)
... I am a 36 yo female that was just diagnosed with Polymyositis last month. My doctor sent me to the hospital with a CPK level of 39,000. I spent a week in there on IV Fluids and high doses of Prednisone. ... (15 replies)

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