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Pages: 1 2 Showing 1 - 20 of 34 for polymyositis medications. (0.003 seconds)

... First of all, I am sorry you have to take on this battle. I was diagnosed 2 years ago, and I am still trying to get back to my normal self. Did it get caught pretty early or had the muscle deterioration been going on for a while? That is one of the big determiners on how quickly you can get back to your normal tasks.... For me, it took a while for the drugs to work - a... (1 replies)
Jul 18, 2012
... dose. My numbers were going down slowly but it was rising again and i was worried i wont get better. I was told by another that i need to be aggressive with the medications so i increase the steriods to 40 mg a day and 10 methotrexate a week. I did that for three months and finaly the doctor told me my numbers were normal. ... (16 replies)
Nov 10, 2011
... He would likely have to go to a group home especially for people with disabilities and that would kill me. I pray this information helps and that they find the medications for you ASAP. And I've never tried natural remedies but think it's a great idea. Anything is better than meds. ... (4 replies)

... Yes Patti is my name. I have had a very stressful life. I believe that in time it effected my auto immune system, polymyositis is an auto immune condition. ... (23 replies)
... might not want to hear this, but one thing that really helped was getting off all of the medication. The only thing I take now is my blood pressure medicine. The medications were making me worse. At first I thought they were helping me, but all they were doing is making my body dependent on them. ... (4 replies)
... Now what medications are advised and how's the effect. ... (9 replies)
... Boy we have a lot in common. I was diagnosed in 1985. I am now 64 and I retired from teaching in June 2010. I am lucky though my CPK has been low for a while. I am now trying to get off the Medrol, a steroid. Pred did not work for me so they put me on Medrol.(I consider Medrol GOD sent.) My poly is very painful. I know not all of them are. But the Medrol took the pain... (14 replies)
... d her doctor says that there is no study to show that this will help. It is so frustrating because I can see what it can hurt my mother has went thru all of the medications and has had no relief now she is getting worse. I am very interested to hear of your experience. ... (48 replies)
... story is basically, I was diagnosed with polymyositis after bloodwork and a muscle biopsy. ... (3 replies)
... i have been to so many doctors and tryed so many diffrent medications but still in hope . ... (48 replies)
... Well..I understand the pain from polymyositis and have been living with it since 1998 and have tried everything... ... (14 replies)
... CPK is creatine phosphokinase also known as creatine kinase (CK), not to be confused with creatinine which is a break-down product of creatine phosphate in muscle - creatinine is filtered by the kidneys and its levels in blood and urine indicate if the kidneys are working properly. CK or CPK is considered normal between 60 and 400 U/L. Usually, the lab will alert the... (14 replies)
... i, Ricky don't take too many pain pills a day its not safe. I know how much pain you are in I think we are all going through the same pain. I have resisted pain medications for years and have been just dealing with the pain but my doctor told me this week when I saw him that its time I stop resisting taking pain medication. ... (48 replies)
... Have you heard of a low dose antibiotic treatment? (48 replies)
... I have tried it all and done it all but it seems it always goes back to basics and trying any new medications that come out. ... (48 replies)
... doctor tries to wein me off the prednisone my cpk count goes up. So right now I am at a stand still. I feel a flare up coming on and my doctor has tried all the medications out there so far. I am loss as to what to do now. I am trying to keep positive but after suffering with this disease for 30 years it gets harder and harder. ... (48 replies)
... I was wondering what are CPK numbers? My numbers right now are 4,000 but when diagnose with the condition it hit 12,000. (14 replies)
... Elaine, as a long veteran with this disease i was hoping you could give me some advise. I also was diagnosis with polymyositis three years ago. I am very depress because my condition has not improve. My CPK numbers are still very high and i am weaker than when i first diagnose. ... (14 replies)
... Hi, my name is Elaine. I was diagnosed with Polymyositis in 1984. I am 65 years of age and recently retired. I have been on steroids since 1984. ... (14 replies)
... Hi, my name is Elaine and I have tried all the medications you have. I am 65 years old and was diagnosed with polymyositis in 1984. I have been on Prednisone ever since. I am currently also taking Imuran which seems to help in combination with the Prednisone. ... (48 replies)

Associated Tags: polymyositis, polymysitis, pregnancy

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