It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Message Board

Myositis Board Index
Board Index > Myositis | 0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z
Pages: 1 Showing 1 - 20 of 27 for polymyositis medications. (0.005 seconds)

... First of all, I am sorry you have to take on this battle. I was diagnosed 2 years ago, and I am still trying to get back to my normal self. Did it get caught pretty early or had the muscle deterioration been going on for a while? That is one of the big determiners on how quickly you can get back to your normal tasks.... For me, it took a while for the drugs to work - a... (1 replies)
Jul 18, 2012
... dose. My numbers were going down slowly but it was rising again and i was worried i wont get better. I was told by another that i need to be aggressive with the medications so i increase the steriods to 40 mg a day and 10 methotrexate a week. I did that for three months and finaly the doctor told me my numbers were normal. ... (16 replies)
Nov 10, 2011
... He would likely have to go to a group home especially for people with disabilities and that would kill me. I pray this information helps and that they find the medications for you ASAP. And I've never tried natural remedies but think it's a great idea. Anything is better than meds. ... (4 replies)

... Yes Patti is my name. I have had a very stressful life. I believe that in time it effected my auto immune system, polymyositis is an auto immune condition. ... (23 replies)
... might not want to hear this, but one thing that really helped was getting off all of the medication. The only thing I take now is my blood pressure medicine. The medications were making me worse. At first I thought they were helping me, but all they were doing is making my body dependent on them. ... (4 replies)
... Now what medications are advised and how's the effect. ... (9 replies)
... Boy we have a lot in common. I was diagnosed in 1985. I am now 64 and I retired from teaching in June 2010. I am lucky though my CPK has been low for a while. I am now trying to get off the Medrol, a steroid. Pred did not work for me so they put me on Medrol.(I consider Medrol GOD sent.) My poly is very painful. I know not all of them are. But the Medrol took the pain... (14 replies)
... story is basically, I was diagnosed with polymyositis after bloodwork and a muscle biopsy. ... (3 replies)
... Well..I understand the pain from polymyositis and have been living with it since 1998 and have tried everything... ... (14 replies)
... CPK is creatine phosphokinase also known as creatine kinase (CK), not to be confused with creatinine which is a break-down product of creatine phosphate in muscle - creatinine is filtered by the kidneys and its levels in blood and urine indicate if the kidneys are working properly. CK or CPK is considered normal between 60 and 400 U/L. Usually, the lab will alert the... (14 replies)
... I was wondering what are CPK numbers? My numbers right now are 4,000 but when diagnose with the condition it hit 12,000. (14 replies)
... Elaine, as a long veteran with this disease i was hoping you could give me some advise. I also was diagnosis with polymyositis three years ago. I am very depress because my condition has not improve. My CPK numbers are still very high and i am weaker than when i first diagnose. ... (14 replies)
... Hi, my name is Elaine. I was diagnosed with Polymyositis in 1984. I am 65 years of age and recently retired. I have been on steroids since 1984. ... (14 replies)
... I never got into remission. They kept interrupting my IVIG to see if other medications were working. Now we are past that, and there are no other medications to try, they have all failed. So I'll be getting the IVIG every 1 to 2 months steadily now. ... (20 replies)
... (20 replies)
... and it was showing good results but never got to finish to see if it would have gotten me off the drugs and caused my symptoms to get better alot faster than the medications do. Sorry couldn't be more help. ... (20 replies)
... hi ken -- everything you are saying is the exact same as my mom ... i was wondering if you have had any luck since this posting with anything new... my mom has stopped taking all medications because she was getting nowhere & was really discouraged-- especially because of her weight gain ... she has since lost alot of weight which made her feel better...but i have noticed... (11 replies)
... rse they were of no help. I have tried many medications, but since I went so long without a diagnosis, and, thus proper treatment, I am refractory to all of the medications I have tried. ... (11 replies)
... Are you on any medications? Sometimes medication side effects can cause these symptoms but nothing shows up on tests. (1 replies)
... I was diagnosed with Polymyositis over six years ago. Like you, I did not have a good response with the Prednisone. . . or Methotrexate. . . or Cellcept. ... (3 replies)

Associated Tags: polymyositis, polymysitis, pregnancy

Pages: 1

All times are GMT -7. The time now is 03:05 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!