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Pages: 1 Showing 1 - 20 of 27 for polymyositis medications. (0.010 seconds)


... so....my story is basically, I was diagnosed with polymyositis after bloodwork and a muscle biopsy. ... (3 replies)
... I was diagnosed with Polymyositis over six years ago. Like you, I did not have a good response with the Prednisone. . . or Methotrexate. . . or Cellcept. ... (3 replies)
... I was diagnosed with Polymyositis March of 2004 but I noticed the symptoms on January of same year. I had a hard time lifting my arms and difficulty walking. I was in ER with 21,000 CPK. ... (3 replies)

... Well..I understand the pain from polymyositis and have been living with it since 1998 and have tried everything... ... (14 replies)
... Elaine, as a long veteran with this disease i was hoping you could give me some advise. I also was diagnosis with polymyositis three years ago. I am very depress because my condition has not improve. My CPK numbers are still very high and i am weaker than when i first diagnose. ... (14 replies)
... Yes Patti is my name. I have had a very stressful life. I believe that in time it effected my auto immune system, polymyositis is an auto immune condition. ... (23 replies)
... Now what medications are advised and how's the effect. ... (9 replies)
... Boy we have a lot in common. I was diagnosed in 1985. I am now 64 and I retired from teaching in June 2010. I am lucky though my CPK has been low for a while. I am now trying to get off the Medrol, a steroid. Pred did not work for me so they put me on Medrol.(I consider Medrol GOD sent.) My poly is very painful. I know not all of them are. But the Medrol took the pain... (14 replies)
... I was wondering what are CPK numbers? My numbers right now are 4,000 but when diagnose with the condition it hit 12,000. (14 replies)
... Hi, my name is Elaine. I was diagnosed with Polymyositis in 1984. I am 65 years of age and recently retired. I have been on steroids since 1984. ... (14 replies)
... mg of imuran, Fosomax and mutivitamin. I have blood work done on regular schedule and see my specialist doctor every 4 months besides my PCP. I am hoping that Polymyositis will never come back. Listen to your body, work with your doctor in your treatment. ... (15 replies)
... I was diagnosed with Dermatomyositis about two and a half years ago. Like you I take Predisone, and the Metho. At different times I am unable to climb stairs and have to get around in a wheelchair. Other times I have alot of energy and am able to get around with little difficulty. For the most part I have good times and bad times. For me the good times are more common... (3 replies)
... I have been dealing with this disease for the last four years. I had a muscle biopsy to confirm that I have Polymyositis. I have been taking predisone and metho injections for the last four years. Just recently, I have been recieving ivg twice a month since september. I am at a point where I can't climb stairs, nor can I walk for a long period of time and can't get... (3 replies)
Polymyositis
Jul 18, 2012
... dose. My numbers were going down slowly but it was rising again and i was worried i wont get better. I was told by another that i need to be aggressive with the medications so i increase the steriods to 40 mg a day and 10 methotrexate a week. I did that for three months and finaly the doctor told me my numbers were normal. ... (16 replies)
... CPK is creatine phosphokinase also known as creatine kinase (CK), not to be confused with creatinine which is a break-down product of creatine phosphate in muscle - creatinine is filtered by the kidneys and its levels in blood and urine indicate if the kidneys are working properly. CK or CPK is considered normal between 60 and 400 U/L. Usually, the lab will alert the... (14 replies)
... I never got into remission. They kept interrupting my IVIG to see if other medications were working. Now we are past that, and there are no other medications to try, they have all failed. So I'll be getting the IVIG every 1 to 2 months steadily now. ... (20 replies)
... rse they were of no help. I have tried many medications, but since I went so long without a diagnosis, and, thus proper treatment, I am refractory to all of the medications I have tried. ... (11 replies)
... First of all, I am sorry you have to take on this battle. I was diagnosed 2 years ago, and I am still trying to get back to my normal self. Did it get caught pretty early or had the muscle deterioration been going on for a while? That is one of the big determiners on how quickly you can get back to your normal tasks.... For me, it took a while for the drugs to work - a... (1 replies)
Polymyositis
Nov 10, 2011
... He would likely have to go to a group home especially for people with disabilities and that would kill me. I pray this information helps and that they find the medications for you ASAP. And I've never tried natural remedies but think it's a great idea. Anything is better than meds. ... (4 replies)
... might not want to hear this, but one thing that really helped was getting off all of the medication. The only thing I take now is my blood pressure medicine. The medications were making me worse. At first I thought they were helping me, but all they were doing is making my body dependent on them. ... (4 replies)


Associated Tags: polymyositis, polymysitis, pregnancy

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