... Polymyositis...had ck levels about 1000 when I started my prednisone treatment. ... (5 replies)

... s a month since you posted this , but I just got onto this site. You live in the next town from me. You need to see a rheaumotologist if you already haven't. My cpk levels were high and my liver was off before I was diagnosed with myositis The Dr. ... (7 replies)

... I am very anxious. ... (17 replies)

... I was diagnosed in May with Polymyositis after my CPK came back at 40,000. ... (17 replies)

... You most probably know this but a myositis is a muscle inflammation, a myopathy is muscle deterioration. I'm not a doctor, just very informed because of my own condition. ... (17 replies)

... so it is very rare to die from Polymyositis itself. However, the battery of medications that you sometimes have to take is another story. ... (11 replies)

... MS contin, which is slow realease morphine. I have tried very hard when I am feeling better to keep the doses low. I live in Ontario, the weather is humid, and the winters cold, and that has a bad effect of my muscles. ... (4 replies)

... He wants me to bring in past pictures so he can see if it new. He ordered another round of blood tests including the cpk levels, myopathy study, neuropathy study, etc. I have to go for two more MRI's today to test my spine and lower back. ... (11 replies)