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Hello everyone!

I wanted to update everyone on my muscle twitches & muscle jerks. I have to say that I'm experiencing way more than a dozen muscle twitches a day. I have been paying more attention to them and have to say I experience hundreds a day. Sometimes when I am really busy it's hard to notice them at all. The twitching and jerking are not painful, but rather annoying. I know that some muscle twitching is normal (like in the eyelids, etc). But, to experience hundreds in a day and have muscle jerking as well isn't normal.

I first thought it could be due to some medications I'm taking. I looked into all of the medications that I am taking and only one could cause muscle twitching. I'm taking an antidepressant for my major depression. This antidepressant is called: Cymbalta. Cymbalta as well as any antidepressant can cause your blood sodium to drop, which is called hyponatremia. When your blood sodium drops it can cause muscle twitching. I'm going to switch to Buspar on my next appointment to rule out this completely. I then thought it could be an electrolyte imbalance such as: potassium, calcium, etc. But, then I got my chem. 24 blood work back and it was normal. This test ruled any possibility that my electrolytes could be the culprit. My sodium and all of my other electrolytes are fine.

So now I'm back to the drawing board! I don't have any medical insurance, so seeing a specialist and getting more testing done would be very costly. I'm looking into some private insurance companies such as: Assurant. Hopefully, I'll have some sort of health insurance within a few months. I would like to see a neurologist and get an MRI or an MRA to rule out any problems neurologically. I suffered from a skull fracture as a child at 1 1/2 years old. I recently in the last 4 years had my first CAT-SCAN on my brain. This came back normal. An MRI and a MRA tests look at things that a CAT-SCAN doesnít. The only reason I'm looking into things are for two reasons. One being that having hundreds of muscle twitches and jerks a day isnít normal. Two being that I have neurological disease in my family. My mother has both Multiple Sclerosis and Epilepsy. I do have some symptoms of MS, but it could also be symptoms from something else. Iím only 23, will be 24 in May. Iím really young to have major health issues, but this doesnít rule me out. Anything can happen at any age! Iím hoping it isnít something major. The MS in our family goes back quite far. But it also skips a generation. This isnít always the cause even though the pattern reflects it. I donít want MS by all means. My mother was diagnosed at 36. She is now 46 years old. She is paralyzed in her right leg and depends on a wheel chair/scooter for means of transportation. Sad, I know! I feel as if she had been cheated out of life and my sisters and brother were cheated out of a mom who couldn't walk. Things were really rough growing up. My mom having MS, I believe has a direct roll on my depression, although there is also Bipolar in our family as well.

I think it is very important to listen to your body, but not obsess over it. It might just save your life!!!

Take care everyone!

Angel
Hello, lately I've been experiencing this as well. No MS or anything like that runs in my family. I'm getting twitches in my left calf. Usually at the same time every night and some chest tightness like on my left side but no heart attack related symptoms, kind of feels like it's bruised in one spot. I get these twitches in my chest sometimes. It comes and goes. I've gone to the doctor and had blood work done and an ekg everything has come out good. I am not on any medication, somewhat skinny as well. I also feel bloated sometimes like I just ate a big meal and short breaths. Think I'm ok?

What can be done and what can I do?
Thanks!
You can take vitamins and it will help only, it wont hurt. However, I am taking vitamins and it doesnt help twitching. Just learn to live with it. Dont worry about it. I worried a lot when i got twitching and I developed anxiety ( I thought it could be something dangerous such as MS, Lyme, ALS,......). I did many tests (MRI,EMG, blood-vitamins) and everything was OK. To calm you down you can request EMG and it will tell you a lot. But as long as you dont have muscle wasting you are OK. The twitching will come and go.
Hello everyone!

Itís been some time since I wrote. I wanted to update my experiences with my muscle twitching & muscle jerking. It has gotten worse!!! Not only have they increased in number, but they have also become more intense. I have also been experiencing shooting muscle pain that is very painful. This shooting pain only last a few seconds and is very painful. It takes my breath away. At first in only occurred at the back of my head where the head meets the neck. It would shoot from the top of the base of my head and come down to my neck (where the head meets the neck). Very sharp intense feeling! For the longest time it only occurred on my right side of the back of my head. Now that I am becoming more aware of my problems I have noticed that it's also occurring on the left side as well. Not only is it happening at the back of my head, but I have also experienced it in my arms and back. I am also experiencing increased and intense headaches & migraines. I also experience chest pain. The reason why I brought up the headaches and chest pain is the fact that the heart are said to be a muscle. The brain on the other hand...? These symptoms could also be part of my problem.

I know that something is wrong! I have taken a few steps to figure what is causing this before I see a specialist. I have gotten a chem. 24 done to check my electrolytes. All of them came back normal. I also stopped taking the Cymbalta to rule out that possibility. My doctor has prescribed me Valium to help with the muscle twitching. I have to say that the valium is not working. I'm with out insurance right now, but hope to get some within a few months. Until then, I will not know what is causing my muscle to twitch, jerk and cause pain. I have every reason to get upset and worried about this. On my mothers side of the family there are many with MS including my own mother. I'm worried that this could be a possibility. I'm also worried because I'm only 24 and have two small children. If anyone might know what I'm experiencing based on my symptoms, I would appreciate it! Any advice would be appreciated as well. Thank You!!! ;)
Hello Everyone!

It's been a while since I've posted last. I'm now 25 years old (since May 2007). My husband had gotten a job that offered health insurance & I have had an MRI. The MRI came back fine. I also had an EEG done. The EEG came back normal as well. It disturbs me that I'm having these problems, but all of the doctors I've seen can't explain why I'm having these problems. My muscle twitching is extreme. It's a constant thing I experience all day long. My muscle jerking comes & goes, but not as bothersome as the twitching. I still get the unusual headaches/head pain from time to time. I also still experience the sharp shooting pain in the back of my head/neck. I also get unusual face pain. The face pain is real sharp intense feeling usually in my cheeks. Sometimes I have eye pain as well.

The neuro said he doesn't think I have MS even though I'm display some symptoms. MS is a HUGE thing in my family & it scares me to death. My motherís youngest sister (my aunt) was just recently diagnosed with MS a few months back. She's like 38 years old. Not to mention my mother has MS as well & is in a wheel chair/scooter (as posted in previous threads). My grandfather's brothers had/have MS. One of my grandfatherís brothers (my great uncle) can't bare the pain any longer & would rather end his life than to keep on living with his daily pain. He saw what his brother went through & what my mother is going through & doesn't want his MS to progress to that level.

My symptoms could very well be something other than MS. I wanted to rule MS out since it's in my family. My neuro also seems to think that I am a young woman & that my symptoms are probably benign. I believe differently, but don't want to over react if it is nothing to worry about. One thing that I can't seem to figure out is why I'm experiencing all of the twitching when I don't workout/exercise. I know I need to, & am going to start soon. But when ever I do some sort of exercising, my muscles seem to twitch even more. I just don't understand! :(

I just wanted to update everyone on my situation. Hope everyone is doing GREAT!!! ;)
[QUOTE=laurilynne3;3339151]I can't believe other people actually have these same symptoms. Mine started years ago with muscle twitching all over my body as well as sharp pains, migraines, fatigue, hot feet, tingling and vibratory feelings in my legs and feet. After having strong syptoms for a year they slowed down and now I occasionally get them, however, I have not felt healthy since then.[/QUOTE]

I have recently updated my lengthy symptoms on the MS forum. Your welcome to check it out. I'm having a lot of MS symptoms as it runs in my family. My main problem is the muscle twitching & jerking, sharp shooting pain (back of neck), facial pain at times including optical nerve pain, tingling/vibration feeling in different parts of body & only lasting a few seconds, pins & needles sensation (but only in different parts on my body like my upper arm & lasting a second or two), & headaches & migraines. The most bothersome is my muscle twitching & jerking. It's real bad & real noticeable when I'm resting, but it occurs at different times of the day.

Your symptoms sound like me as well as MS. I would seek medical attention asap. Does MS run in your family??? Let me know how you are doing! Take care & HAPPY HOLIDAYS!!! ;)

XOXO
[QUOTE=AngelOfLight82;2226516]Lately I have been experiencing a lot of muscle twitching. It happens at any time of the day. I usually notice it more when resting or standing still. I feel the muscle twitching all over my body. I even feel it in some really weird places like the bottom of my feet or even my butt. It only lasts a few seconds and isn't painful, although it is really annoying. I usually notice more than 24 twitches a day. It's probably more, itís hard to tell.

I have also been experiencing jerking of my arms and legs. This only occurs when I'm resting. I have notice an increase in the jerking of the limbs. I feel terrible because I feel as if I have no control over these jerks. I am thankful though that it only happens when I'm resting. :)[/QUOTE]

I'm not sure if you'll still be on here as it's been a few years since your last post, I hope you are well... I just wanted to let you know that your twitches sound almost exactly like what I have, including the butt and foot twitches. Although I'd like to add that my leg and arm twitches seem to be connected, i.e. my right leg jerks, then it seems to travel through me to my right arm and it jerks too. It started off as little jerks that weren't very noticeable, now they are getting pretty violent.

As far as your other symptoms go, I have Arnold Chiari Malformation type 1, which can cause similar symptoms to MS and is often misdiagnosed as MS, it can be identified by having an MRI, although is often overlooked as it's not very well understood in the medical community. It's possible that this could be the cause of your symptoms, especially the headaches at the back of your head.

If you've been diagnosed with something for your twitches, I'd be interested to know what is causing your twitches as it may be the same thing that's causing mine. I'm not so sure it's caused by the Arnold Chiari Malformation.
Angel,
Definitely see a neurologist. Things like MS, ALS, Parkinsons, etc. do not have a specific test that tells you whether or not you have them. You should really see someone who specializes in diagnosing neurological disorders and get started on figuring out what is going on. My mom is very young but has just been diagnosed with Parkinson's. She has had muscle twitching, tremors, and rigidity for some time and it has taken forever to get a diagnosis. The road can be long, get started early and good luck.
Take Care
Angel of light, have you ever figured out what you have going on with your muscle twitches and shooting pains? I would love to know. I have had the same problem since last august. Here it is April of 2008. I am finally seeing a neurologist on May 7th. I am scared of course. Scared of the unknown. No one is my family has MS, Parkinsons or anything like that. Neithor did they have hypothyroidism and I came down with that two years ago. I have had my blood tested for everything. Its all coming back normal. Thank God! But it still leaves me with no anwer, no diagnoses. I am so frustrated and the twitches are so annoying, expecially at night. No one around home can relate to this because no one has had it happen. I don't know where to turn. I try not to panic. I am 43 and feel like I am still young to fall completely apart. Just know you aren't alone. I am beginning to wonder if the guy talking about the antibiotics might be right. I have taken tons of those for sinus infections. I wonder if this is a delayed reaction of a poisen in my body?? I believe it can be true. The docs won't tell you that though, that is for sure.
Keep me posted please!:angel:
[QUOTE=donkeyflute;3433785]I'm not sure if you'll still be on here as it's been a few years since your last post, I hope you are well... I just wanted to let you know that your twitches sound almost exactly like what I have, including the butt and foot twitches. Although I'd like to add that my leg and arm twitches seem to be connected, i.e. my right leg jerks, then it seems to travel through me to my right arm and it jerks too. It started off as little jerks that weren't very noticeable, now they are getting pretty violent.

As far as your other symptoms go, I have Arnold Chiari Malformation type 1, which can cause similar symptoms to MS and is often misdiagnosed as MS, it can be identified by having an MRI, although is often overlooked as it's not very well understood in the medical community. It's possible that this could be the cause of your symptoms, especially the headaches at the back of your head.

If you've been diagnosed with something for your twitches, I'd be interested to know what is causing your twitches as it may be the same thing that's causing mine. I'm not so sure it's caused by the Arnold Chiari Malformation.[/QUOTE]

It's been awhile since I've visited this site. I'm reading all the last posts made since I was last here. I just got done reading yours & its interested that mentioned Chiari Malformation. My little sister was just diagnosed with Chiari Malformation type 1 last year. I'm sure I don't have it because I have already had an MRI and all is fine. However, I may has something similar to Chiari symptoms. My sister was also diagnosed with ehlers danlos syndrome (which is a connective tissue disorder) as well among other things. I do believe there is a possibility that I could have this condition, due to some symptoms matching. It is also hereditary like MS. I still don't have insurances, but as soon as I do, I'm gonna get everything ruled out.

I am interested in knowing if Chiari is hereditary. What are the chances that two sisters having the same rare condition??? I do know that it is often over looked on an MRI. My sister may not have even known if the doc didn't tell her. She hesitated when giving her the news, because she felt like it was a mild form, that it was nothing to worry about. I'm glad that she got a second look to confirm it.

I'll keep everyone posted as soon as I find out any information that is causing my problems. ;)
[QUOTE=TEdds83;3533397]Angel of light, have you ever figured out what you have going on with your muscle twitches and shooting pains? I would love to know. I have had the same problem since last august. Here it is April of 2008. I am finally seeing a neurologist on May 7th. I am scared of course. Scared of the unknown. No one is my family has MS, Parkinsons or anything like that. Neithor did they have hypothyroidism and I came down with that two years ago. I have had my blood tested for everything. Its all coming back normal. Thank God! But it still leaves me with no anwer, no diagnoses. I am so frustrated and the twitches are so annoying, expecially at night. No one around home can relate to this because no one has had it happen. I don't know where to turn. I try not to panic. I am 43 and feel like I am still young to fall completely apart. Just know you aren't alone. I am beginning to wonder if the guy talking about the antibiotics might be right. I have taken tons of those for sinus infections. I wonder if this is a delayed reaction of a poisen in my body?? I believe it can be true. The docs won't tell you that though, that is for sure.
Keep me posted please!:angel:[/QUOTE]

I have not found out anything yet, but when I do, everyone here will be first to know. ;)
It's good to hear I'm not alone in the symptoms. Though mine differ a bit.

I'm having varying degrees of twitching. Some days, it's constant, other days, I only notice the muscle twitching at night or when trying to rest. I also occasionally get this sharp, stabbing pain at the back of the upper/centerish side of my head. Occasionally I get these sort of "pulse points" random pulse sensations in various parts of my body. The most often impacted area is my right abdomen or my shoulders. These symptoms make noooo sense to me and my doctor is telling me it's stress, which, I can't rule out, for life has been ridiculously stressful as of late. Plus, I'm a webMDer and I've already diagnosed myself with MS and that really doesn't help my hypochondriac self. It just stresses me out more, which if that's part of the root of these twitches, just messes me up. Also, rarely, but it does happen on occasion, the right and left side of my head kind of...numb up. It really makes no sense whatsoever to me.

And lemme just say, butt twitches? Whattheheck. This is ridiculous.
Hi Everybody, I'm new here and this is my first post.

I'm glad to see that I'm not the only one with this set of wacky symptoms. I read AngelofLight's description of symptoms and it seems very similar to mine. Mine started 14 years ago and woke me up out of my sleep. It was the sensation of shaking deep inside my body that I could only really perceive when I was laying in bed. I also noticed a little twitch here and there but nothing major at the time. I had a brain MRI and EEG which ruled out MS and Epiliepsy. It eventually went away (shaking took about 6 months to leave).

Over the years I've had the twitching and cramping come and go. Seems like the twitching has gradually replaced the cramping. I've also had periods when it calmed down and did very little. Sometimes my calves would twitch so much that they felt like they were "bubbling". The twitching involves every part of my body including recently my face (lips, eyelids, cheeks, neck). I've also periodically experienced the pulsing, the vibrating, crawling, burning, dizziness/vertigo, and chest pain sensations I've seen others mention.

I've been to see at least 4 neurologists in the past 14 years and no test has revealed anything unusual. I went to John's Hopkins and saw an MS specialist last year. They drew 18 vials of blood and did an MRI of my upper spine and a lumbar puncture. They also used a newly developed machine can confirm whether a patient has ever had an incident of optic neuritis, which is common in MS. All tests came back negative except my knee reflex indicates that something is a little off. The doctor assured me that whatever I have is mild and that I may never know what it is.

This past week I woke up out of a nice sleep to find my head, arms and legs periodically jerking (it's kind of like an orchestra- now the jerking joins in to play with the twitching). This really scares me because it is a new symptom.

I should also note that years ago I was diagnosed with autoimmune arthritis associated with HLAB27 gene. It seems like when I have a flare of this, that the twitching and all other stuff escalates. My arthristis condition is not very bad and the Doctor treating it (along with every written thing describing it) insures me that no neurologic symptoms should accompany it.

Anyhow, I'm debating calling the doctor but I almost feel like a lunatic hypochondriac with the most bizzare set of symptoms. I think I should probably have a test that measures the electrical activity in the muscle itself. Has anyone had one of these?

Thanks for listening to me blather on and on...I appreciate it.
[QUOTE=AngelOfLight82;2226516]Lately I have been experiencing a lot of muscle twitching. It happens at any time of the day. I usually notice it more when resting or standing still. I feel the muscle twitching all over my body. I even feel it in some really weird places like the bottom of my feet or even my butt. It only lasts a few seconds and isn't painful, although it is really annoying. I usually notice more than 24 twitches a day. It's probably more, itís hard to tell.

I have also been experiencing jerking of my arms and legs. This only occurs when I'm resting. I have notice an increase in the jerking of the limbs. I feel terrible because I feel as if I have no control over these jerks. I am thankful though that it only happens when I'm resting. :)

I have noticed an increase in the twitching and jerking. I'm wondering what is causing it and if it is something I should be worried about. I have already looked into the medications I'm taking and none of them have muscle twitching or jerking as a side effect. I'm without insurance right now and would like some advice from anyone who may know what this may be caused by. I feel as if this is abnormal. I have asked around to find out if this is normal. I do understand that some muscle twitching is normal (like in the eyes, etc). But what I'm experiencing is a lot and canít possibly be normal.

I also have other symptoms that could be or not be related. I have also been experiencing dizziness and fatigue. I get dizzy from standing up from a sitting or laying down position. I also feel really tired and irritable by 2-3pm. I get plenty of sleep (more than 8 hours), so I know this isn't causing my fatigue. I have also been experiencing chest pain. This has been an issue for some time now. I thought it was due to stress and/or anxiety. I'm on medications to help with my anxiety so the chest pain can't possibly be anxiety related. I do believe I have arrhythmias. I have seen a cardiologist in the past concerning my chest pain. They concluded that it was anxiety related and to continue taking and/or increasing my meds (which Iíve done both). Like I said, I don't know if these other symptoms have anything to do with my muscle twitching or jerking.

I appreciate any advice or any information anyone could give me. I hope to figure out the cause and get this under control. Thank you!!! ;)[/QUOTE]
i have the same thing big time
it goes from the shoulder either left or right then in the legs
never in 2 areas at once
its skips from one area to the other
it is a violent quick jerk then its over for a second or more
it lasts some times for a few minutes to a few days

so this is my advice first when the jerking starts get up and walk around do not lay down it only gets worse
also try some thing that a ms doctor will say don't, take a SHORT hot bath or hot shower then get under the covers in the bed this also seems to help

also one other thing that helps if you have a wife or husband have then scratch your head back and shoulders it seems to also help

last but not least this should actually be first your spouse is needed for this its love time
this seems to stimulate the brain and side track the electrical impulses in the brain that are causing the jerking in the first place
I've twitched for several years. Random twitches all over my body. A few weeks ago I started jerking. A leg, and arm, my torso, neck. I've had back problems as long as I can remember and wonder if that might be the cause of all this nonsense.

I had an MRI a few years ago to rule out MS, that was normal. Seen the neurologist a month or so ago about the twitching and he diagnosed it as BFS, benign fasciculation syndrome. Now the jerking has started so I'm off to see my family Doc today.

It's driving me crazy because I don't know what it is and pray it's not something really serious. I can deal with twitching and jerking, but I have two young kids and need to be there for them. Any info is much appreciated.
Hi everyone. I'm new. This is my first post and the reason I am here. Found this thread in a search. I too have this. Started out as the lighter twitching but over the years as progressed to large jerking. I have an autoimmune disorder, which flarred after a viral infection last fall and the jerking got even more pronounced. I have other neoro symptoms too, just like alot of you.
The dizzyness/vertigo, I have woke up with paralysis on the right side of my face, the second and third time it also included my right arm.. after a month or so the paralysis went away. MRI was negative for MS, no stroke.
That was in 2000, CCAT in 2006 after ER visit was also negative. Havent had a test since. But it seems the jerking has once again got worse now its where people look at you they notice the big jerk! My vision also gets so but I have to use a magnifying glass along with my reading glasses when I have a flare.. My neuro symptoms are when I'm flarring with my autoimmune disorder and they are part of it.. always thought the jerking was just part of it. I also get problems with slurred speach and have balance issues.
I am seeing a new RA Doctor on 2-16 to go over the battery of blood and urine work she did on me. I will let you know if I find anything out.. in the mean time.. please keep posting how you are doing everyone and if you any new news.. take care..





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