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Lately I have been experiencing a lot of muscle twitching. It happens at any time of the day. I usually notice it more when resting or standing still. I feel the muscle twitching all over my body. I even feel it in some really weird places like the bottom of my feet or even my butt. It only lasts a few seconds and isn't painful, although it is really annoying. I usually notice more than 24 twitches a day. It's probably more, itís hard to tell.

I have also been experiencing jerking of my arms and legs. This only occurs when I'm resting. I have notice an increase in the jerking of the limbs. I feel terrible because I feel as if I have no control over these jerks. I am thankful though that it only happens when I'm resting. :)

I have noticed an increase in the twitching and jerking. I'm wondering what is causing it and if it is something I should be worried about. I have already looked into the medications I'm taking and none of them have muscle twitching or jerking as a side effect. I'm without insurance right now and would like some advice from anyone who may know what this may be caused by. I feel as if this is abnormal. I have asked around to find out if this is normal. I do understand that some muscle twitching is normal (like in the eyes, etc). But what I'm experiencing is a lot and canít possibly be normal.

I also have other symptoms that could be or not be related. I have also been experiencing dizziness and fatigue. I get dizzy from standing up from a sitting or laying down position. I also feel really tired and irritable by 2-3pm. I get plenty of sleep (more than 8 hours), so I know this isn't causing my fatigue. I have also been experiencing chest pain. This has been an issue for some time now. I thought it was due to stress and/or anxiety. I'm on medications to help with my anxiety so the chest pain can't possibly be anxiety related. I do believe I have arrhythmias. I have seen a cardiologist in the past concerning my chest pain. They concluded that it was anxiety related and to continue taking and/or increasing my meds (which Iíve done both). Like I said, I don't know if these other symptoms have anything to do with my muscle twitching or jerking.

I appreciate any advice or any information anyone could give me. I hope to figure out the cause and get this under control. Thank you!!! ;)
I am so sorry for you that have to live with this! I am witness to all of these symptoms, I've stayed up so many nights video taping (24 hours a day) imagining what it must be like to have these symptoms and not know why. My son is 4 now and suffers from it too plus more... I started to reply and it turned into this long story... if you would like to hear all the details please let me know.
We are waiting for him to be admitted into The Children's Hospital- Boston, MA for a week long period of all sorts of testing... I will let you know anything that might be of value. His sleep studies and EEGs and MRI have been normal> Check your iron levels... his were low at first. They thought he had a brain tumor ( prolactin levels in the blood were elevated) thank God! MRI was fine.
He has myoclonous twitching it is 24 hours a day also, but it has progressed into something else , possibly many things... Have you ever heard of Myoclonous twithcing? ( Beyond the normal twitching when you begin to fall asleep) Or have you heard of Dystonia? ( Cramping and /or spasms) A couple of neurologists almost killed him with Carbatrol ( Carbanazapine-benzo family) so now I have him off all his meds to start over with the symptoms- Thats my answer " Get off of everything and see what is really going on again... I have a vidoe camera ready to go, to tape any symptom for proof and to help any one who can help him.... Its not Normal!!!! Have any of you gone as far as dopamine levels in the brain? His new neurologist didn't look at me funny when I asked if we could test for it? So maybe I am on to something.
My sons symptoms appear to get worse if I play with his electrolytes- a shift to quickly? And he really has bad spells- Shock?TIA's? Plus big myoclonus jerking episodes in the arms and legs when he's explosed to any VIRAL> KEY>VIRAL...almost like something is being reactivated? I need help too! Any tests that you've had done, anything that a doctor has recommended or guessed... my boy isn't well and the twitching/ jerking that I've caught on video no one can explain as of yet...
I do want to tell you that it is okay and I do recommend that you bring yourself right to the ER after a jerking spell so they can do some clinical diagnostics on you immediately following the spell...for your records... and its always good to get fresh eyes and doctors with different experiences... may I recommend an ER where your doctor is not an affiliate or where you haven't been before...It has helped us! Be brave...DO SEE A Nerologist but be careful if they want to put you on an anticonvulsant. The drugs made my sons problem worse!!! Also I am going to ask about a hair analysis for heavy metals. I am always asked what kind of water do you have? I learned today that some mothers who have children with neuro problems had the hair test and they found large levels of arsenic, aluminum? Etc... My son had a tingling senstaion in his lower back and then whole body paralysis after I fed him Taco bell with ingredients containing aluminum. ??????? Let me know how your doing!! Good luck!
Hello everyone!

Itís been some time since I wrote. I wanted to update my experiences with my muscle twitching & muscle jerking. It has gotten worse!!! Not only have they increased in number, but they have also become more intense. I have also been experiencing shooting muscle pain that is very painful. This shooting pain only last a few seconds and is very painful. It takes my breath away. At first in only occurred at the back of my head where the head meets the neck. It would shoot from the top of the base of my head and come down to my neck (where the head meets the neck). Very sharp intense feeling! For the longest time it only occurred on my right side of the back of my head. Now that I am becoming more aware of my problems I have noticed that it's also occurring on the left side as well. Not only is it happening at the back of my head, but I have also experienced it in my arms and back. I am also experiencing increased and intense headaches & migraines. I also experience chest pain. The reason why I brought up the headaches and chest pain is the fact that the heart are said to be a muscle. The brain on the other hand...? These symptoms could also be part of my problem.

I know that something is wrong! I have taken a few steps to figure what is causing this before I see a specialist. I have gotten a chem. 24 done to check my electrolytes. All of them came back normal. I also stopped taking the Cymbalta to rule out that possibility. My doctor has prescribed me Valium to help with the muscle twitching. I have to say that the valium is not working. I'm with out insurance right now, but hope to get some within a few months. Until then, I will not know what is causing my muscle to twitch, jerk and cause pain. I have every reason to get upset and worried about this. On my mothers side of the family there are many with MS including my own mother. I'm worried that this could be a possibility. I'm also worried because I'm only 24 and have two small children. If anyone might know what I'm experiencing based on my symptoms, I would appreciate it! Any advice would be appreciated as well. Thank You!!! ;)
[QUOTE=AngelOfLight82;2226516]Lately I have been experiencing a lot of muscle twitching. It happens at any time of the day. I usually notice it more when resting or standing still. I feel the muscle twitching all over my body. I even feel it in some really weird places like the bottom of my feet or even my butt. It only lasts a few seconds and isn't painful, although it is really annoying. I usually notice more than 24 twitches a day. It's probably more, itís hard to tell.

I have also been experiencing jerking of my arms and legs. This only occurs when I'm resting. I have notice an increase in the jerking of the limbs. I feel terrible because I feel as if I have no control over these jerks. I am thankful though that it only happens when I'm resting. :)[/QUOTE]

I'm not sure if you'll still be on here as it's been a few years since your last post, I hope you are well... I just wanted to let you know that your twitches sound almost exactly like what I have, including the butt and foot twitches. Although I'd like to add that my leg and arm twitches seem to be connected, i.e. my right leg jerks, then it seems to travel through me to my right arm and it jerks too. It started off as little jerks that weren't very noticeable, now they are getting pretty violent.

As far as your other symptoms go, I have Arnold Chiari Malformation type 1, which can cause similar symptoms to MS and is often misdiagnosed as MS, it can be identified by having an MRI, although is often overlooked as it's not very well understood in the medical community. It's possible that this could be the cause of your symptoms, especially the headaches at the back of your head.

If you've been diagnosed with something for your twitches, I'd be interested to know what is causing your twitches as it may be the same thing that's causing mine. I'm not so sure it's caused by the Arnold Chiari Malformation.
Hi Everybody, I'm new here and this is my first post.

I'm glad to see that I'm not the only one with this set of wacky symptoms. I read AngelofLight's description of symptoms and it seems very similar to mine. Mine started 14 years ago and woke me up out of my sleep. It was the sensation of shaking deep inside my body that I could only really perceive when I was laying in bed. I also noticed a little twitch here and there but nothing major at the time. I had a brain MRI and EEG which ruled out MS and Epiliepsy. It eventually went away (shaking took about 6 months to leave).

Over the years I've had the twitching and cramping come and go. Seems like the twitching has gradually replaced the cramping. I've also had periods when it calmed down and did very little. Sometimes my calves would twitch so much that they felt like they were "bubbling". The twitching involves every part of my body including recently my face (lips, eyelids, cheeks, neck). I've also periodically experienced the pulsing, the vibrating, crawling, burning, dizziness/vertigo, and chest pain sensations I've seen others mention.

I've been to see at least 4 neurologists in the past 14 years and no test has revealed anything unusual. I went to John's Hopkins and saw an MS specialist last year. They drew 18 vials of blood and did an MRI of my upper spine and a lumbar puncture. They also used a newly developed machine can confirm whether a patient has ever had an incident of optic neuritis, which is common in MS. All tests came back negative except my knee reflex indicates that something is a little off. The doctor assured me that whatever I have is mild and that I may never know what it is.

This past week I woke up out of a nice sleep to find my head, arms and legs periodically jerking (it's kind of like an orchestra- now the jerking joins in to play with the twitching). This really scares me because it is a new symptom.

I should also note that years ago I was diagnosed with autoimmune arthritis associated with HLAB27 gene. It seems like when I have a flare of this, that the twitching and all other stuff escalates. My arthristis condition is not very bad and the Doctor treating it (along with every written thing describing it) insures me that no neurologic symptoms should accompany it.

Anyhow, I'm debating calling the doctor but I almost feel like a lunatic hypochondriac with the most bizzare set of symptoms. I think I should probably have a test that measures the electrical activity in the muscle itself. Has anyone had one of these?

Thanks for listening to me blather on and on...I appreciate it.
[QUOTE=AngelOfLight82;2226516]Lately I have been experiencing a lot of muscle twitching. It happens at any time of the day. I usually notice it more when resting or standing still. I feel the muscle twitching all over my body. I even feel it in some really weird places like the bottom of my feet or even my butt. It only lasts a few seconds and isn't painful, although it is really annoying. I usually notice more than 24 twitches a day. It's probably more, itís hard to tell.

I have also been experiencing jerking of my arms and legs. This only occurs when I'm resting. I have notice an increase in the jerking of the limbs. I feel terrible because I feel as if I have no control over these jerks. I am thankful though that it only happens when I'm resting. :)

I have noticed an increase in the twitching and jerking. I'm wondering what is causing it and if it is something I should be worried about. I have already looked into the medications I'm taking and none of them have muscle twitching or jerking as a side effect. I'm without insurance right now and would like some advice from anyone who may know what this may be caused by. I feel as if this is abnormal. I have asked around to find out if this is normal. I do understand that some muscle twitching is normal (like in the eyes, etc). But what I'm experiencing is a lot and canít possibly be normal.

I also have other symptoms that could be or not be related. I have also been experiencing dizziness and fatigue. I get dizzy from standing up from a sitting or laying down position. I also feel really tired and irritable by 2-3pm. I get plenty of sleep (more than 8 hours), so I know this isn't causing my fatigue. I have also been experiencing chest pain. This has been an issue for some time now. I thought it was due to stress and/or anxiety. I'm on medications to help with my anxiety so the chest pain can't possibly be anxiety related. I do believe I have arrhythmias. I have seen a cardiologist in the past concerning my chest pain. They concluded that it was anxiety related and to continue taking and/or increasing my meds (which Iíve done both). Like I said, I don't know if these other symptoms have anything to do with my muscle twitching or jerking.

I appreciate any advice or any information anyone could give me. I hope to figure out the cause and get this under control. Thank you!!! ;)[/QUOTE]
[QUOTE=AngelOfLight82;2226516]Lately I have been experiencing a lot of muscle twitching. It happens at any time of the day. I usually notice it more when resting or standing still. I feel the muscle twitching all over my body. I even feel it in some really weird places like the bottom of my feet or even my butt. It only lasts a few seconds and isn't painful, although it is really annoying. I usually notice more than 24 twitches a day. It's probably more, itís hard to tell.

I have also been experiencing jerking of my arms and legs. This only occurs when I'm resting. I have notice an increase in the jerking of the limbs. I feel terrible because I feel as if I have no control over these jerks. I am thankful though that it only happens when I'm resting. :)

I have noticed an increase in the twitching and jerking. I'm wondering what is causing it and if it is something I should be worried about. I have already looked into the medications I'm taking and none of them have muscle twitching or jerking as a side effect. I'm without insurance right now and would like some advice from anyone who may know what this may be caused by. I feel as if this is abnormal. I have asked around to find out if this is normal. I do understand that some muscle twitching is normal (like in the eyes, etc). But what I'm experiencing is a lot and canít possibly be normal.

I also have other symptoms that could be or not be related. I have also been experiencing dizziness and fatigue. I get dizzy from standing up from a sitting or laying down position. I also feel really tired and irritable by 2-3pm. I get plenty of sleep (more than 8 hours), so I know this isn't causing my fatigue. I have also been experiencing chest pain. This has been an issue for some time now. I thought it was due to stress and/or anxiety. I'm on medications to help with my anxiety so the chest pain can't possibly be anxiety related. I do believe I have arrhythmias. I have seen a cardiologist in the past concerning my chest pain. They concluded that it was anxiety related and to continue taking and/or increasing my meds (which Iíve done both). Like I said, I don't know if these other symptoms have anything to do with my muscle twitching or jerking.

I appreciate any advice or any information anyone could give me. I hope to figure out the cause and get this under control. Thank you!!! ;)[/QUOTE]
i have the same thing big time
it goes from the shoulder either left or right then in the legs
never in 2 areas at once
its skips from one area to the other
it is a violent quick jerk then its over for a second or more
it lasts some times for a few minutes to a few days

so this is my advice first when the jerking starts get up and walk around do not lay down it only gets worse
also try some thing that a ms doctor will say don't, take a SHORT hot bath or hot shower then get under the covers in the bed this also seems to help

also one other thing that helps if you have a wife or husband have then scratch your head back and shoulders it seems to also help

last but not least this should actually be first your spouse is needed for this its love time
this seems to stimulate the brain and side track the electrical impulses in the brain that are causing the jerking in the first place
I got one for you all... My tongue spams. That is the crazy feeling I have. I am so used to the legs jumping, I don't even think of them anymore. That have been happing for years and years and years. However just this last 6 months, now my arms, back and neck, and even my tongue are jecking away day and night. So funny to see my arm jerk and hit the computer keyboard.

So I;ve done some reading and Iron is the way to start for self help. But best to get to a head doctor ASAP....then again, I lost my job and now no insurance.

Oh Well...If my mother can live with it for 40 years,,heck I just got 10 to go.

Do stress out to much. Life is to short. Just think, back in the day...we did not have the internet or go to doctors.

:wave:





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