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Neuromuscular Diseases Message Board


Neuromuscular Diseases Board Index


Hi Sandra:

I would have loved to been at the conference. I actually couldn't go because of another trip scheduled which ultimately fell through at the last minute. It was too late to make reasonable $$ arrangements to be at the conf. I was really disapointed about that. I'm going to plan on being in Washington DC for sure. Are you participating in the Mito-connect? Funny you mention GI problems because I haven't heard much about that with CPEO. In talking about some problems on a doctors visit recently I discovered that my problems may be related to my CPEO. Just a pain in the butt.... something else to deal with.

I haven't had the time to really sit down and go through the UMDF website thoroughly. I think during the next month I'll just schedule time to explore online. I'm almost afraid since it seems like in the last year I've discovered that so many things could be related to CPEO but that the frustration is that it's so different for each person.

Glad to hear you got your car back!! :) I head to Indianapolis at the end of next month for a business trip. Any suggestions on places to eat or where to go?

Charlene





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