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Neuromuscular Diseases Board Index
Pages: 1Showing 1 - 11 of 11 for bethlem myopathy. (0.000 seconds)


Bethlem Myopathy
Jan 23, 2007
... Sorry not to reply back sooner. I've just gotten the test results and it seems that I do have Bethlem Myopathy. I meet with my genetics doctor in March. ... (9 replies)
Bethlem Myopathy
Oct 14, 2006
... I have submitted a DNA sample to the only university in the states that can test for Bethlem Myopathy using the COL6a tests.. I will know the results in early December. ... (9 replies)
Bethlem Myopathy
Jul 20, 2005
... I was diagnosed with bethlem myopathy 7 years ago when i was pregnant with my first born son. ... (9 replies)

Bethlem Myopathy
Jul 19, 2005
... I hope you are going well and that your recovery continues to improve. How did it come about to you and your family being diagnosed with Bethlem Myopathy? ... (9 replies)
Bethlem Myopathy
Jul 9, 2005
... Hi Christina and Pugs I am 37 and have Bethlem Myopathy I have had 4 kids,they are now 7,2,and 9 months,the 7 and 2 year old seem to be fine,it is to early to tell with the 9 month old. It has been very hard at times,but worth every minute. I have a fantastic husband who does every thing that i can't do,like lifting and carrying the kids. I would love to talk more about... (9 replies)
Bethlem Myopathy
Jun 6, 2004
... I am 28 and I also have Bethlem Myopathy. I too am single and know exactly how you feel about having to tell new boyfriends about your condition. ... (9 replies)
Bethlem Myopathy
Apr 12, 2004
... Hi my names Christina I'm new to this board. I'm 25 years old and at the age of 13 was diagnosed with Bethlem Myopathy. ... (9 replies)
Bethlem Myopathy
Oct 19, 2006
... I proberly have bethlem or ullrich which are now thought to be the same condition. ... (9 replies)
Bethlem Myopathy
Jul 14, 2005
... The doctors were not sure if i could have a baby naturally,as they had not seen anyone with bethlem pregnant,and didn't know if the uterus muscles would be strong enough to push a baby out. ... (9 replies)
Bethlem Myopathy
Aug 15, 2005
... Hi Christina. I haven't heard from you for a while, hope you haven't come down with any of this years colds and flues..... Hope you didn't miss my last post, we are now on page 2. Shelly :) (9 replies)
Bethlem Myopathy
Jul 14, 2005
... Thankyou so much for your replies. Sorry about not posting sooner. I now have a boyfriend and we have been together a year now. He's always been into sports and wants his kids to also be involved in sports. This is worrying for me because I know what it was like at school not being able to keep up with the other kids and always getting picked last if at all for a team! He... (9 replies)




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