... mitochondrial myopathies but wanted to push me to the neuromuscular specialists and doesn't seem to want to see me again. ... (1 replies)
... My neuromuscular specialist mentioned that there is a very good specialist in Dallas and told me his name. I have forgotten it and while I could call back and ask for the info, it may take a while to get an answer. So... ... (0 replies)
... I'm in the process of ruling out cardiac causes, organ causes, etc... I guess my next step would be a neurologist or is there a neuromuscular specialist? ... (6 replies)
... My general neurologist is referring me to a neuromuscular specialist as my case is out of his expertise, but said that it's possible that I have this condition. ... (1 replies)
... specialist and I am having a lumbar puncture and a muscle biopsy done on Tuesday which should hopefully help in reaching a diagnosis, and the next time I see the specialist I will definitely ask about the blood tests. ... (15 replies)
... Your Mom is fortunate to have you as an advocate. The first specialist at KU saw Jack in the morning, and he actually ruled out ALS within 5 minutes and ended up coming up with a dx of Duschains sp? ... (8 replies)
... I have muscle weakness for some time. Went to a Rheumatologist who thought it miht be muscle disease. EMG showed abnormal readings (Fibs. PSW's, decreased AMP, Decreased DUR, and Increased POLY). Muscle biopsy showed no signs of inflamation or necrosis. Only neurogenic processes (denervation, nuclear clumps, angualr atrophic myofibers and some typing). Rheumatologist has... (0 replies)
... Hi, patriciaf!
Good to hear from you....
I'm really not worried about the mestinon, because the GWI was caused by a combination of things; the vaccines, the pesticides and insecticides, the munitions dumps and the fumes from the burning oil. In combination, they damaged the immune systems of vets, and caused them to become seriously ill and even be able to pass on their... (15 replies)
... I have to say, I was pretty relieved that I never got hooked on the mestinon but perhaps I don't know enough. When do you see your new neuromuscular specialist? ... (15 replies)
... Hi annie,
Thanks for the reply; it's great to hear from you!
Interesting about you and twin; both with Hashimoto's (is that diffrent than hypothyroid?) and breast lumps. She has sonogram tomorrow. Keeping fingers crossed.
I don't know if she can get further testing; she as no insurance and I don't have enough money to pay for her tests. She has no income, I pay her rent and... (15 replies)
... But I digress. I will hold good thoughts that you will find a competent neuromuscular specialist who will help you get to the bottom of this. ... (15 replies)
... Could you go with her to a Neuromuscular specialist? ... (1 replies)
... When I seen my neuromuscular specialist it was at the cleveland clinic,they done a very extensive neurological exam it took about 45 minutes.They drew blood,11 viles and urine samples. ... (33 replies)
... Can you tell me all the medications that your are taking...including suplements? (33 replies)
... I was sent to a neuromuscular specialist at the Cleveland Clinic.Basically all the test that my neuro done was repeated,with better technology. ... (33 replies)
... Before my diagnoses of MS I went to a neuromuscular specialist at the Cleveland clinic to rule out any and all forms of muscle diseases.This DR diagnosed me with benign cramp fasciculation or something like that. ... (9 replies)
... scle jerks I have experienced have been in all 4 limbs and can happen at rest or sitting in a chair,occasionally they are painful.My neurologist has sent me to a neuromuscular specialist to check other routes.Multiple Sclerosis is an avenue they have not ruled out.The neuro specialist is looking into polyneuropathy and myopathy. ... (57 replies)
... I think it is critical that your mother seek the opinion of a neuromuscular specialist, if she hasn't already done so. Most "regular" neurologists simply do not see enough MG patients to know much about the disease. ... (12 replies)
... was all normal. I've had an MRI of my brain and it was normal. I am really at a loss here and desperate to find something. I am currently being referred to a Neuromuscular specialist, but I don't know when I'll get an appointment. ... (2 replies)
... In the thread I mention finding a TMJ specialist who does ALF orthodontics, but the other kind of TMJ specialist who is really good is a neuromuscular dentist. ... (3 replies)