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Neuropathy Message Board


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Hello,

I have been on the dental forums and infectious disease forums and now to the neuropathy forums. Hey, at least I am moving around LOL. I have read a lot of posts here and my heart goes out to each and every one of you, as the patient or caregiver.

I too suffer from facial neuropathy. Mine started as a porcelain veneer on my front tooth in May 02, followed by severe pain few days later, 2 root canals, an apicoectomy, an extraction, finally diagnosed with osteomyelitis (a jawbone and marrow infection), was on IV abx for 11 weeks with 2 debridements (scraping of bone and removing dead tissue/bone) went through Hyperbaric Oxygen Therapy. I have been done with this for about 8 months. Except the HBO ended 2 months ago.

It has been "deduced" that I am suffering with neuropathy due to the infection, trauma and surgeries. I thank g-d I beat the infection, it never spread or became systemic, causing horrible illnesses and possible death. So, with that said, I am lucky. BUT, I have pain every day. Neurologists (and I have seen more than 3) do tell me that this takes a long time to heal that sometimes there is damage to the nerves and to the sheath (myelin - that is a protective covering on the nerve) - and yes, it grows so slowly, but it does grow and it can heal.

I think that facial pain is maddening. I meditate, am starting yoga, get massages since pain refers to my neck, head and shoulders. I am also giving a LOT of consideration to the glutine removal from my diet. I don't know much about nerve blocks, and will research more. I am on Lexapro and Ativan and will be adding Neurontin to help get rid of this pain. Sometimes our brains become "wired" and an actual chemical change in the brain is noted, that sends pain signals. I think that it is NOT in the mind, however, I think the mind CAN do miraculous things, especially when the body is in top form and the brain has the right signals.

I hope I will be able to help people here, and of course, vice versa. Any recommendations on where the "beginner" should go online for this?

In health,
Trying...





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