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... I have just been suspected having CIDP by my neurologist and he wants to try 80 mg Depo-medrol....he is not sure of the diagnosis and so does not wish to try oral steroids or High dose of iv-methyl prednisolone.(solu-medrol) Can anyone please advise...Has Depo-medrol been used in CIDP. (0 replies)
... Hi Miss Diagnosed.. I am truly sorry for your pain suffering and dealings with Dr's that are non caring. I have nonsystemic vascultic, small fiber neuropathy and auto immune neuropathy. It took me a few Dr's to get rid of. My new DR's proved to be my right choices. They understand my disease and medications and tests etc... I don't have MS but there is a chance I have CIDP.... (1 replies)
... Can someone tell me how they got diagnosed with CIDP and if they were first labeled as probable MS or Guillian Barre. I have severe Fibromialgia which I developed in the last 7 years. ... (1 replies)

Dec 7, 2012
... Hi folks. This is my first post. I have an unusual form of polyneuropathy called CIDP. It's an illness in which the body incorrectly identifies the peripheral nervous system as 'foreign' and therefore attempts to remove it similar to an organ transplant that's being rejected. My neurologist states that treatment will be more harmful than allowing the disease to run it's... (2 replies)
Aug 23, 2010
... Hi. I do have IVIG which i've had for the last 2yrs. Was having every 4 wks but now been cut to 8 weeks due to the cost. I was told that IVIG could cause blood clots so I have a Claxane injection before each infusion. I'm not sure what Claxane is but they always give it people who come in with DVT. I've just had my IVIG last week and feeling alot better but as I had to... (4 replies)
Aug 21, 2010
... The Dr.s have told me I have had cidp for 7 years. I have all the systoms you do and have spent the last 2 years mostly in bed. ... (4 replies)
CIDP-new diagnosis
Jun 16, 2009
... My boyfriend was just diagnosed with CIDP from a well known neurologist in NYC. We are now waiting for the insurance to approve the IVIG treatment. ... (1 replies)
Jun 15, 2009
... I've been suffering from CIDP for about 10 years now and haven't had symptoms you describe, although I know it can affect different parts of the body. ... (4 replies)
CIDP - new member
Jun 14, 2009
... I have CIDP and have been having IVIG treatment for nearly a year now. ... (4 replies)
Mar 26, 2009
... I have Chronic Fatigue Syndrome and have been dx for 2 yrs. Been sick for 3.7 yrs. Recently my infectious disease specialist referred me to a neorologist and on the referral form it says to rule out other diseases like MS and CIDP. Now I did have an mri 3 yrs ago to rule out ms. It was negative. Also the nerve conduction 3 yrs ago was negative. I was telling the doc that the... (4 replies)
... yrs old and is suffering with neuropathy.The doctors here have been unable to decide whether this is CIDP or HMSN.Can anybody tell me about a hospital where they specialise in Paediatric Neurology so that I can send the reports over and get this confirmation. ... (4 replies)
Feb 18, 2009
... It's similar to MS but the peripheral nerves are affected in CIDP where the central nerves are affected in MS. It's rare, hard to diagnose and hard to treat. ... (2 replies)
Feb 18, 2009
... Hi. its Chronic Inflammatory Demyelinating Polyneuropathy, the " de myelinating" refers to the loss of the myelin sheath that covers the nerves, "poly just means many," neuro" refers to the nerves and " pathy " means damage. (2 replies)
Feb 17, 2009
... what is CIDP (2 replies)
CIDP - new member
Oct 29, 2008
... Hi Ryan, i don't know all that much about Gamunex, i have read that it may help improve muscle function in patients with CIDP by modulating the immune system's response to the inflammation that damages the myelin sheaths of the large nerves. ... (4 replies)
CIDP - new member
Oct 27, 2008
... for the CIDP yet I am not better, but worse. ... (4 replies)
Can CIDP recur?
Jan 26, 2007
... of cases, but, they are very expensive and require a lot of medical supervision.... If you or your friend 'webs' up CIDP or GBS, I'm sure you will find a lot of resources that address the whole condition and treatments. ... (2 replies)
Can CIDP recur?
Jan 25, 2007
... texasgirl....yes its quite possible alot of CIDP is remitting/relasping. Also the same T-Cells that attacked when she had GBS have memory so possibly something is causing the inflammation again hence the attacks... She should see a neurologist and get an EMG and an NCV to see whats going on..... (2 replies)
Can CIDP recur?
Jan 25, 2007
... My coworker was told that she had CIDP or GBS 4 years ago. The symptoms went away but are now coming back starting with the complete numbness in hands. Does this stuff come back? ... (2 replies)
... Cidp...Chronic Inflammatory Demyelinating Poly Neuropathy.. Is caused by the T-Cells attacking the Myelin Sheath in the spinal cord causing this form of Neuropathy. The Lumbar Puncture is the Gold standard for diagnosis on this as an elevated serum protein count is the giveaway here. What is the Protein, well i searched high and low to find this and what i found is as the... (4 replies)

Associated Tags: cidp, polyneuropathy

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