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Cancer: Cervical & Ovarian Message Board


Cancer: Cervical & Ovarian Board Index


Hello,
I was diagnosed w/ the high risk HPV type last year (not the wart
kind, but the kind that causes dysplasia and cervical cancer). Anyways,
at that time the dysplasia was always very mild and I've simply been
monitoring it w/ paps every 3 months and colposcopies. I even
tried this alternative treatment of Vitamin E/aloe called Beta Mannan
for three months. However, my condition has now gotten worse, and the
dysplasia is now mild to moderate. My doctor recommended the
LEEP, but I'm concerned to have that done because I don't have children yet, and I have heard that this procedure can cause fertility problems later. I guess my biggest fear is to have it done and
then have the dysplasia come back, resulting in additional LEEP's,
which would cause more damage to the cervix. I am wondering if anyone
here has had the LEEP done, and if dysplasia has reoccured for you. I don't really understand why the dysplasia WOULDN'T come back, as
the LEEP simply removes the cells, but it doesn't kill the virus, so
why wouldn't dyplasia reoccur????

IN addition, does anyone have any information about alternative treatments for dysplasia?? I have read that folic acid, Vitamin A and Vitamin C supplements work, but I am not sure what is a healthy dose. I have also heard of something called Indoplex (which is Indo-Carbitol), but I'm not sure exactly what that is or what it does at this point. I have to do further research.

Thanks for any info. anyone can give me!!!! I'm new to this board and hope to feel a little better about this HPV stuff....
[QUOTE=cocoeyes]So, if he smokes it really wouldn't hurt or make the dysplasa re-appear again? We always use condoms since I am not on the pill right now although I've heard that being on the pill makes it (the dysplasia) come again also. I feel as though I'm domed either way with this whole Dysplasia thing. Mine has only been the Mild stage and my doctor is monitoring it and I pray and hope it just goes away. But being that my boyfriend smokes and I'm sure he has been exposed to it will it make my dypslaisa worst??[/QUOTE]

A lot of factors can determine if your dysplasia will get worse or not. The biggest thing is if you have HPV or not. If you have HPV, the dysplasia will almost certainly not go away on its own and may likely have to be removed by a procedure, whether LEEP, cone etc. But these procedures have a high success rate, you just have to follow up and monitor it through your life regularly to make sure that if it does come back again, you can remove it again. If you dont have HPV, it is very possible that your dysplasia, esp since it is mild, can go away on its own. About the effect of second hand smoke from your boyfriend, I would assume that since smoking yourself can make dysplasia worse, that second hand smoke could also make it worse, especially if youre constantly exposed to it in the house or something. But ask your doc about that. Dysplasia is scary, mine was moderate/severe and i had it removed with LEEP and it was successful. You are not doomed so long as you always follow it closely so that you dont let it progress to something further. If you keep all your gyno apointments to a T, you can be one step ahead of the game and treat it accordingly.
[QUOTE=cocoeyes]I've read about the cone operation thing making pregnancy more difficult but as far as the other procedures... Loop and cryosurgery I hear that if it is used more than once it can have an affect of having kids but I also hear that the doctor can stitch up the cervics as well... Did anyone hear differently?[/QUOTE]

That is what my doctor has told me as well. Having LEEP (the loop one) once should not have an effect on your fertility, but repeated procedures can wear out the cervix and make it weak. I am less familiar with cone since i myself had the LEEP, but since cone is more invasive than LEEP, i think indeed that its a bit more destructive to the cervix. But from what ive read, it is still very possible to have children after cone. I think its really after repeated proceedures if necessary that it starts getting more difficult. Yes there is a procedure doctors can do where they put a stich on the opening (i think) of your cervix and make it stronger. Hope that helps!
[QUOTE=alexandraB]A lot of factors can determine if your dysplasia will get worse or not. The biggest thing is if you have HPV or not. If you have HPV, the dysplasia will almost certainly not go away on its own and may likely have to be removed by a procedure, whether LEEP, cone etc. But these procedures have a high success rate, you just have to follow up and monitor it through your life regularly to make sure that if it does come back again, you can remove it again. If you dont have HPV, it is very possible that your dysplasia, esp since it is mild, can go away on its own. About the effect of second hand smoke from your boyfriend, I would assume that since smoking yourself can make dysplasia worse, that second hand smoke could also make it worse, especially if youre constantly exposed to it in the house or something. But ask your doc about that. Dysplasia is scary, mine was moderate/severe and i had it removed with LEEP and it was successful. You are not doomed so long as you always follow it closely so that you dont let it progress to something further. If you keep all your gyno apointments to a T, you can be one step ahead of the game and treat it accordingly.[/QUOTE]

Thanks for responding to my questions. Although I hear that even if one has HPV and it's a CIN 1 it can go away on it's own. That's why doctors want to do the "Wait and see" procedure. I will talk to my doctor about the second hand smoke situation. My doctor didn't tell me ANYTHING about what to avoid while having this condition. I don't know what strain I even have but most likely it's probably the High-risk type because I know I've been exposed to this for three years now but just finding out about it.
Hello, To your question if dyslasia comes back, I am 33 years old and today I Go have the leep procedure done after 14 years. I had the same thing when i was 18 years old. I am engaged to a 44 year old man, and I dont know if he is the cause of this happening again, but I know that i was married for 9 years and it never reaccured. But I am very scared, but I have to be strong, I was told after the first time haveing a leep, that it wouldnt come back, well it has. It is hard to deal with the first time, but being 33 and having to go through it again, is worse. No sex is safe from any type of virus. I dont know how many times this can come back, but mine did after 14 years, and I guess I will find out today whats going on, They tried to biopsy me a month ago but was unable to get to where the infected cells are at, so they are doing the leep today at 3:30. I am scared, but not knowing is worse. I have a 14 year old daughter and I know if I dont take care of me, who will take care of her. So all women, God knows what we can take and what we cant, he will never put more on us than we can handle, I have faith that god can help all of us, and he will, we just have to believe that. My prayers and thoughts are with each women who has had to deal with dysplasia, and I hope all of you keep your strength up and know we didnt do anything wrong to deserve this, its part of life.
Ill keep you informed of how my leep went in a few weeks, thanks
I don't know if its the same thing, but I mentioned to my doctor that I would get a weird "pinching" ache off to my right side - same place, hip meets leg - and she said it was probably just the healing process. But yours could be totally different as I had a LEEP done, not your procedure. I also had (and still have) really annoying discharge, greenish (I know, eww) and smelly (double eww) and I had my LEEP done over 3 weeks ago. She took a culture of the dishcharge last week to make sure it was ok, and called me this morning to say there was nothing to it - just normal healing discharge, which hopefully should end soon.

BUt I would ask your doctor - I was a little worried about my pangs, so that's what I did - can't hurt to give them a quick call. :wave:
[QUOTE=girl.101]I don't know if its the same thing, but I mentioned to my doctor that I would get a weird "pinching" ache off to my right side - same place, hip meets leg - and she said it was probably just the healing process. But yours could be totally different as I had a LEEP done, not your procedure. I also had (and still have) really annoying discharge, greenish (I know, eww) and smelly (double eww) and I had my LEEP done over 3 weeks ago. She took a culture of the dishcharge last week to make sure it was ok, and called me this morning to say there was nothing to it - just normal healing discharge, which hopefully should end soon.

BUt I would ask your doctor - I was a little worried about my pangs, so that's what I did - can't hurt to give them a quick call. :wave:[/QUOTE]

thanks for the response! i really appreciate it.
and good luck to you! ;)
[QUOTE=sarasota2004]Just would like to give my story...

In 1996 (25 years old) I was diagnosed with HPV and Moderate Cervical Dysplasia. They tried freezing the cells and I later had an abnormal pap again so it didn't work. Then, they did a LEEP and every year since then I have been HPV free (meaning they don't even detect it anymore) and normal cells.

I feel relieved each year. In 1999 I got pregnant (very easily) and was nervous about my cervix. Doctors monitored me closely to make sure my cervix was strong and wasn't in need of a cerclage. Everything went perfect and I delivered 2 days late.

I got pregnant again in 2001 and Dr. said since my cervix proved it held up, I was no longer at any risk and was treated like anyone else prenatally. I delivered that baby 2 days late also!

So, now I have 2 healthy girls who are the apple of my eye. I guess it all depends on how much scaring there is on the cervix itself. They can look at it closely and get an idea on whether you'd have problems or not.[/QUOTE].

Thank you so much for sharing that story..it was very inspirational. I too was diagnosed with HPV (both visible warts and dysplasia) kind. My warts occured once..and reoccured again..but since haven't come back. Yesterday, I just had my conization procedure done..and I was relieved until I was informed by my sister that it was only diagnostic. As far as I knew, I always thought it was a treatment...since I'm on CIN Stage II (precancer), I figured this treatment would be effective. I'm worried now...and I'm afraid I will have to go through a hysterectomy.

People tell me not to worry...but how can I not? I'm 23 years old...yet to be married...and already thoughts of adoption are going through my head. I don't know what the point of this entry really is...but I guess I just need support and motivation right now. I've been depressed since I heard of the diagnosis in March. Maybe I'm overreacting...but I get sad everytime I look at my fiance...and think...I may not be able to bear children for him. Someone..please provide words of encouragement =T
wow, i feel a lot better now about the infertility thing. i was really worried about that because im only 20. unfortunately im on an immunosuppressant called immuran which also poses a possible risk for infertility. also im wondering if the possibility of dysplasia reoccurring is increased since i am on an immunosuppressant....so i guess ill have to talk to my doc about that one. i have systemic lupus and i have a feeling that i may be seeking out some naturopathic remedies if the leep procedure is recommended a second time.
I had a LEEP done (2 weeks ago this Thurs.) and my Dr. said that having children down the road should not be a problem. It only becomes a problem if you have to have multiple LEEP procedures and more and more of the cervix is removed. But even people who have had multiple LEEP procedures have kids, the Drs. simply sew the baby in so to speak. Also, one or two who have had a LEEP procedure have had pre-term labor but my Dr. said it was very rare.

As far as recurrence is concerned, my Dr. said he didn't think it would be a likely possibility as he removed all the bad cells. He told me as long as I quit smoking, stayed with one partner, etc. I should be fine. But what if the partner I choose to stay with is the one who gave it to me in the first place? One would think reinfection would occur. Unfortunately, there is no way to test males for the virus and most of the time they have no symptoms, so us women are pretty much sunk in that regard I think. I'm just praying this vaccine everyone is talking about can be used in people who have already been infected and gone through a LEEP. This is DEFINATELY not something I want to go through again! If I find anything more out I'll keep you informed.

Hope this provides at least a little information. Hang in there and good luck!
[QUOTE=CEB]I had a LEEP done (2 weeks ago this Thurs.) and my Dr. said that having children down the road should not be a problem. It only becomes a problem if you have to have multiple LEEP procedures and more and more of the cervix is removed. But even people who have had multiple LEEP procedures have kids, the Drs. simply sew the baby in so to speak. Also, one or two who have had a LEEP procedure have had pre-term labor but my Dr. said it was very rare.

As far as recurrence is concerned, my Dr. said he didn't think it would be a likely possibility as he removed all the bad cells. He told me as long as I quit smoking, stayed with one partner, etc. I should be fine. But what if the partner I choose to stay with is the one who gave it to me in the first place? One would think reinfection would occur. Unfortunately, there is no way to test males for the virus and most of the time they have no symptoms, so us women are pretty much sunk in that regard I think. I'm just praying this vaccine everyone is talking about can be used in people who have already been infected and gone through a LEEP. This is DEFINATELY not something I want to go through again! If I find anything more out I'll keep you informed.

Hope this provides at least a little information. Hang in there and good luck![/QUOTE]


You don't know if your partner was the one who gave it to you unless he was your first... You cannot re-infect your self with the same strain like herpes so don't worry about passing it back and forth. But, if you meet someone new, you are at risk for catching the low strains (warts).





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