... Hi everyone - I've been around for a while, but afraid I've not been very active here.
I guess my thread title says it all... I've had CRPS for nearly 13 years, full body for nearly four. I've also got very severe dystonia/contractures of both feet and ankles - to the extent that I'm mostly wheelchair bound. If I use crutches, it means taking weight on the top of my right... (14 replies)
... Has anyone tried Botox Therapy related to CRPS? ... (0 replies)
... Hi, I've had RSD for about 9 yrs. I'm a granny of 68 yrs. ... (30 replies)
... Hi Natalie, I suffer from both RSD and Cervical Dystonia. Cervical Dystonia is severe and uncontrollable muscles spasms of the neck. I have full upper body RSD in both arms, neck and shoulders. My spasms started in my neck and then moved down my left arm. ... (2 replies)
... Thanks for the helpful info on the nerve blocks! After talking a bit to everyone here and my neurologist, I think I've had RSD on my foot for a while now, but I never thought I did because it wasn't painful to touch and shiny and red. ... (13 replies)
... So, I sent Dr. Schwartzman an email. After explaining that I have Systemic RSD and what I have been through the past 6 years, I asked the following questions and Dr. ... (9 replies)
... I have TOS and RSD, but my TOS is secondary, and not severe, compared to the RSD. My neuro thinks that IF we can get the swelling down from the RSD that is so active in my shoulder, clavical, and scapula down, the TOS may improve enough to become tolerable. ... (12 replies)
... Well, the Neuro said that he has done thousands of botox injections and never had anyone with the same reactions I have had. ... (8 replies)
... Just scanning the board and saw your description of the injections....it has also left me wondering if there is a connection with the RSD and ANY injections. ... (8 replies)
... Usng botox in this manner is completely 'off label'. I have heard plenty of horror stories. Botox is not chemically similar to cortizone, it is botulism toxin, a poison. I have tumors along the nerves in my brachial plexus. ... (8 replies)
... I got back to the botox neuro on Friday. ... (8 replies)
... I just had a thought. I had an allergic reaction to cortizone since RSD. Everytime they tried injecting me with it, it hurt so bad, the RSD just flared up. The dr. kept injecting in the left RSD shoulder, and the 3rd shot, my left breast implant exploded. ... (8 replies)
... I was hoping someone here had done botox since having RSD. I did research it before, and had read positive responses to it. Otherwise, I would not have tried it. ... (8 replies)
... Wow Jules!:eek:
Sorry to hear about the botox. I wonder if anyone else out there has had that reaction???:confused: i I read about it somewhere, but never actually heard of anyone having it done for RSD. I wish I could help you. I've had frozen shoulder in my left from RSD, but I can't even begin to imagine. It must have hit the wrong nerve. Sounds like my experience... (8 replies)
... Just a heads up for anyone thinking of trying botox injections. ... (8 replies)
... Im not sure where they were gonna inject it at.. But she said that botox doesnt help with the pain only dystonia? ... (5 replies)
... I know they are using botox injections for migraine headaches. And that probably would work by relaxing muscles and tendons. ... (5 replies)
... I saw a doc on Aug. 1st that specializes in Botox injections for pain patients. And I went and saw her and what she said is that the botox actually relaxes the muscles and tendons to help with the dystonia and pulling sensation. It doesnt help with the pain itself she said. ... (5 replies)
... I just wanted to let you know that you are not the only one that has these same feelings to RSD and the medical profession either. ... (12 replies)
... so neither one work for where the severeity of my RSD is. ... (8 replies)
