... Hi sue, I'm newly diagnosed with CRPS type2 as well a month ago. I'm scared and confused as well. I had an ankle dislocation and fractured tibia and fibula in 2009. My last surgery was in 2013 and I've gone downhill ever since. The accident was in my left ankle and now my right foot aches equally. I continually feel like all10 of my toes are broken and my feet are on fire. My... (17 replies)
... are there rsd specialists in Arkansas? ... (2 replies)
I'm trying to find some information for my 71-year-old sister who fell three months ago, breaking her upper arm and tearing her rotator cuff, resulting in RSD. Does anyone know of anyone in the Jackson, Tennessee area, or as far as Memphis, who specializes in RSD? She is on Medicare and BlueCare.
Thanks for any help you can give! (0 replies)
... be careful not all pain clinics have RSD specialists. The one at mine claimed after treating me that he was an RSD Specialist. He had given me nerve blocks which I found out later were declared ineffective against RSD 17 years earlier. ... (4 replies)
... Great to hear that there is such a thing as rsd specialist. I live in mission viejo ca. ... (8 replies)
... I'm so sorry to hear about the problems you are having. Rsd isn't bad enough,let alone having doctors that won't listen to you,or just write you off like your pain doesn't matter. ... (1 replies)
... Just checked out your other thread and thought I would add some thoughts. So here are some things to keep in mind regarding how Rsd can come about. ... (15 replies)
... ssion and that would be wonderful. All of us react differently to a medication and all of us react differently to the PT, and all of us react differently to the RSD itself so it's very strange stuff. ... (14 replies)
... Hi Bella,
I'm so sorry that you are suffering like you are without a diagnosis. That is terrible to deal with. I too have the "dead" fealing in my limbs, and at times have the crawling sensation. My RSD is mostly in my right foot - but is spreading up my leg and into my hip - not diagnosed as doing so but I feel it. For releaf I sit under a heating lamp or in the sun - or in... (11 replies)
... diary of symptoms etc...she said she has never heard of RSD and fevers. During the worst part it was up to 103 daily for like 3 months..now it is normal to low grade. Good to know that fevers are a possibility. ... (11 replies)
... ate the feeling of it all. I went for some Lidocaine infusions which helped me out big time.. I have never been back to where I was prior regarding pain.. My RSD has spread but I learn how to manage it.. I know what I can and cannot do at this point.. ... (11 replies)
... Thanks for the info. I was on cymbalta but it didn't help. I occasionally take soma too. I am currently on SSI and totally poverty level...thank god for my parents help. Plus I have a 7 1/2 yr old boy. There is absolutely no way I can work.
Also have a question: I have daily fevers they used to start @ 1:00 pm and go up to 103.0 like clock work everyday. Now they... (11 replies)
... Where did they inject you and I thought injections can "spread" the RSD ! This concerns me! ... (11 replies)
... different times so they can scan to see how the blood is absorbed, etc etc. I had a surgery in my foot in July of 2007 and I was diagnosed with RSD September 2nd, 2007. We've got an RSD specialist here in the San Diego area. The MRI tests shows if there are bone problems associated with RSD. ... (11 replies)
... Thank you for the information about the ice...I thought it made me feel worse! I have RSD allover but more significant in my wrists/hands/arms...pain get HORRIBLE even with pain meds. Some days so unbearable. My swelling is quite significant too. My C-Reactive protein is very high and even on Prednisone it didn't go down, my Rheumy. was perplexed.
I also used to get... (11 replies)
... no is ice. Do not put ice on the rsd limb because it just causes further constriction of the blood vessels and also more pain. Epsom salts in the bath has helped the pain for a lot of people. ... (11 replies)
... Does anyone know any specialist for RSD in Connecticut? ... (11 replies)
... Hi Barbara, there is a doctor name Dr. Robert Harbut from St. Joseph's Mercy Health Center in Hot Springs, Arkansas who handles RSD patients. I believe he also has a clinic for which he gives his patients the Ketamine treatments. ... (2 replies)
... Hello. I was diagnosed in April 2011 with RSD/CRPS deriving from an auto accident. I received 6 nerve blocks which weren't much help. The Pain doc also put me on Neurontin which scared the crap out of me. I hated how it made me feel and didn't feel safe driving my kids around so I stopped taking it. The pain doc told me the ONLY other treatment option would be to have a... (1 replies)
... On April 3rd, 2012, my daughter had a nuclear gall bladder scan. Within hours of the procedure she began having discomfort/pain from the IV site (elbow bend of right arm) up to her shoulder. She experienced other discomfort throughout her body, but that eventually went away.
She was examined the next day and told it was phlebitis. There was no redness or rash, but her... (13 replies)