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Spinal Cord Disorders Board Index
Pages: 1 Showing 1 - 20 of 22 for tethered cord baby. (0.007 seconds)

... n. My wife and I have a 3 month old daughter, and she has a small lump on the small of her back. We saw a pediatric neurosurgeon today, and he thinks she has a tethered cord. Of course, we wont know for sure until the MRI. It is very difficult to get information, especially for infants. ... (12 replies)
... that I had to join this board just to post a reply. Thank you for sharing his incridible story. Miles has just been recently diagonised with a possible low lying tethered cord. He has had one ultrasond, and he goes for his MRI when he is six months. His ped. ... (12 replies)
... I have a five year old son who was diagnosed with a tethered spinal cord at birth. He had surgery at 2 months old to release his cord. Here is Adam's story. ... (12 replies)

... and diastematomyelia. I have had four spinal cord detetherings, with the most recent one done November 21st, 2011. I'm glad your son is doing better, I know how it feels. ... (12 replies)
... My son is 4 months old and just had a procedure to untether his spinal cord at Tufts Floating Children's Hospital. He was diagnosed at birth with a fatty filum because he was born with a sacral dimple. ... (12 replies)
... Hello, wow I have read all the stories, of the children with tethered spinal cords. I also was born with this, I remember when it starting affecting me was when I was around 10. ... (12 replies)
... I just wanted to say that you don't have to have spinabifida to run in your family in order for it to happen. The key here is to take your prenatal s BEFORE you try to get pregnant. Spinabifida happens withing the first 4 weeks after conception...for most we don't even know we're pregnant yet. My oldest suffers from spinabifida occulta. It took us a year for it to get... (12 replies)
... that has to be one of the hardest things to do when they are in pain. I had the baby positioned at the edge of the bed and I would lean next to him to feed him. ... (12 replies)
... y. We have much in common. My son was born with Lipomyelomeningocele that required surgery by the time he was 5 months old. He had fast growing fat in his spinal cord which had not been seen before by any of the neurosurgeons we had involved. ... (12 replies)
... We have no history of spina bifida in our family. I took my prenatal vitamins every day. Did you take your prenatal vitamins? is a question you will hear anytime that you mention spina bifida. Many times said in the same vocal tone as - "you could have prevented this, you big dummy". I probably am overly sensitive, but I find the question insulting and the first one to ask... (12 replies)
Hi! New here
Apr 14, 2006
... The NS said I had a thingy called a Tethered Cord and a bulging disk and he could just go in and 'nab it' and I'd be right as rain. I took exception to his wording... ... (2 replies)
... I heard from the doctor today, my son does have a thethered cord. They are setting up more test first with checking bladder, ortho, for scorolis. From what I've read about the surg. it takes 4 to 6 hrs. then they are in NICU 4 to 5 days. They will have to lay still for 72hrs. I am not really that scared for him the dr. that will do his surg. has taken care of him when he was 1... (7 replies)
... im, waiting on the dr. now. Not worried he his one of the best in his field. Got to go for now, his diper needs changed. Good luck with your child, you and your baby will be in our prays. ... (7 replies)
... I am glad you baby has had the MRI test. My son has Meningocele with Hydrocephalus. Will not know about teetered cord until March. I found most of my info. about SB at .You should check it they have alot of info. Also ask your dr. ... (7 replies)
... Thanks for the reply. I am so worried about what I don't know yet. I can't help but worry about the worst possible news. The doctor only told me "tethered spinal cord" when I say "spina bifida" on the insurance authorization form I freaked. I had no idea that was an actual form of spina bifida. This is crazy. I just hope every day that goes by without this surgery doesn't... (7 replies)
... oing though this with my 3yr.old. He has spinia bifida and caudal regression. his dr. needs this done it takes about 2 to 3 hrs. for this test. They will put the baby to sleep for it, so make sure the baby doesn't have a cold that day. They will listen to lungs, if any thing is there they will cancel it. I hope this helps you. ... (7 replies)
... I just found out that my 2 month old baby has a tethered spinal cord. The nuerosurgeon needs an MRI to see the extent of the disorder and whether there are any other complications. ... (7 replies)
Spina bifida
Nov 18, 2011
... A sac containing an abnormally formed spinal cord protrudes from an opening in a baby's back. The nerves at and below the defect are damaged. ... (0 replies)
... Hi Debbie - thank you for your post! I did not realize that the first sign of symptoms could mean permanent damage as well as re-tethering. Our son has been complaining off and on about knee pain. I have taken him back to the neurosurgeon and he does not believe its re-tethering but he does want us to come back every 3 months to keep an eye on it. I am starting to think its... (12 replies)
... Just another note if you will be trying to breastfeed him - you will need to slide him from one side of the bed to the other in order to feed from both sides. He should be on a board so that won't be difficult to do and will not cause him any discomfort. I would ask the nurses to help you for example when they are already there for the diaper changes. (12 replies)

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