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Thyroid Disorders Message Board


Thyroid Disorders Board Index


Hi there,
I found this site after searching the internet for hours re my symptoms.
For a little background ~ I've been suffering with constant pain and severe tenderness to the touch down the central-right area of my neck for almost a year now... especially around the right side of my adams apple and below, and under my jaw.
(Unfortunately for me, when it 1st started i had just moved house and had to change my doctors to what i can now term a totally negligent doctors surgery, who basically told me i was a hypochondriac and that it would go away on its own. Eventually, after out-of-hours emergency visits and countless doctors appointments i was treated for a possible viral throat infection (treatment did not stop my symptoms, and i was later instructed that no, i did not have a viral infection) and still treated like i was basically lying).
After around 8 months of suffering with these awful external pains in my neck, under my chin, around the right side of my adams apple and at the right-front base of my neck (plus difficulty/pain when swallowing, hoarse voice, a feeling of a lump in my throat, and for a while even difficulty in breathing) i had such a bad turn that i ended up in A&E at hospital twice, totally terrified and in agony.
The A&E doctors sent me for blood-tests (i wish i kew which ones) and a chest x-ray, plus a physical examination of my throat with her torch and could find nothing wrong ~ but told me i needed to get myself referred to an ENT specialist.
Eventually my mum had to complain to the practice manager at my doctors surgery to get a doctor to refer me to ENT.
At last i saw the ENT specialist who ordered more blood-tests, and on 2 seperate occasions stuck a lighted camera up my nose to look at part of my throat. She prescribed me Omeprazole PPI and Peptic liquid for possible GERD/LPR, which i've now been taking for 2-3 months ~ with no relief.
I had an Endoscopy yesterday with a Gastroscope which showed all of my gullet and stomach to be completely normal, so the ENT was wrong ~ it is not GERD or LPR.

Now i'm absolutely *terrified* that it could be thyroid cancer or some other cancer.... im also terrified that it is being left for so long (12months+) and i desperately dont want it to spread if it is cancer.

The pain in my neck/under my chin/around my adams apple is just horrible ~ whenever i swallow, talk, eat, drink or move my neck, im constantly reminded of it ~ i would describe it as *extremely* tender to the touch (i cant even very gently rub moisturiser into or cleanse my neck properly anymore b/c it hurts me too much), plus theres a constant ache and sense of pressure/strangling sensation and stabbing/sharp pains also from time to time. ... along with a feeling of a lump in my throat and difficulty/pain in swallowing, and on-and-off pain in my right-chest and back of neck/ear. I also occasionally get awful pain in the back of head/base of my skull.

Im sorry for such a long message ~ im just so very scared about this and iv been suffering so long with it i feel drained and desperate as the doctors arent working quickly enough to help me.

Do my symptoms sound like anything you have heard of or personally experienced?.. my web searches keep sending me back to potential thyroid cancer :(

Please help ~ im terrified. xxxxxxx
[QUOTE=trychocolate;3985543]I really appreciate Reece's post; very informative and helpful!

Xiancub, I don't mean to bug you here, but I just read your last post and am wondering if you still can have an issue in that neck without it affecting arms or hands yet. If by some remote chance you have any jaw problem combined with neck problem on the same side, it can be very painful in those nerves. I'm sorry that it's so painful you don't even want to touch it. I remember when my symptoms first became evident, other than the tumor theory, it felt like I had swallowed a sharp chicken bone and it was lodged in the neck! But then there were different types of pain, discomfort and sensations over time and with arthritic flare-ups. Talking, singing, even eating are painful and alot of work, at times as it has weakened the muscles a bit.

Anyway, I'm sorry to carry on here again, am just hoping that you get some satisfaction at your appointment today!

choc[/QUOTE]

Thanks so much for your reply ~ i guess its a possibility, but i've never heard of your conditions before, so im really not sure :confused:

I went to the docs tonight and at last i managed to get myself referred for a thyroid scan ~ it was a different doctor and i told him what i felt i needed rather than vice-versa and i was very strong about it, as i was advised to do on another support forum... thank goodness this doctor listened and agreed that my symptoms *were* indicative of a number of thyroid conditions, eg Thyroiditis/Goitre, Hypo/Hyper-Thyroidism, Papillary Cancer etc.. He also agreed that all of the above conditions can be present despite apparently 'normal' blood results.
Of course nobody knows what is causing my neck/thyroid-area pain, occasional lymph-node pain on the same side, feeling of lump in my throat, feeling of strangling/pressure/swelling of the neck, tiredness but inability to sleep properly, hot and cold flashes, loss of weight for no reason, brain-fog/constant confusion etc etc.... but i'm confident that a scan is obviously what i need to be either diagnosed or cleared of any thyroid diseases.

I'm still scared and hurting but positive action and a feeling that something is being done to diagnose then treat me is helping me to deal with this a little bit better in my own head ~ the unknown is so terrifying.

Thanks so much for your response,
love marie xxxxxx
Just wanted you to know you are not alone. I've been dealing with it for 3 years. I know exactly what you are going through.















[QUOTE=Xiancub;3984675]Hi there,
I found this site after searching the internet for hours re my symptoms.
For a little background ~ I've been suffering with constant pain and severe tenderness to the touch down the central-right area of my neck for almost a year now... especially around the right side of my adams apple and below, and under my jaw.
(Unfortunately for me, when it 1st started i had just moved house and had to change my doctors to what i can now term a totally negligent doctors surgery, who basically told me i was a hypochondriac and that it would go away on its own. Eventually, after out-of-hours emergency visits and countless doctors appointments i was treated for a possible viral throat infection (treatment did not stop my symptoms, and i was later instructed that no, i did not have a viral infection) and still treated like i was basically lying).
After around 8 months of suffering with these awful external pains in my neck, under my chin, around the right side of my adams apple and at the right-front base of my neck (plus difficulty/pain when swallowing, hoarse voice, a feeling of a lump in my throat, and for a while even difficulty in breathing) i had such a bad turn that i ended up in A&E at hospital twice, totally terrified and in agony.
The A&E doctors sent me for blood-tests (i wish i kew which ones) and a chest x-ray, plus a physical examination of my throat with her torch and could find nothing wrong ~ but told me i needed to get myself referred to an ENT specialist.
Eventually my mum had to complain to the practice manager at my doctors surgery to get a doctor to refer me to ENT.
At last i saw the ENT specialist who ordered more blood-tests, and on 2 seperate occasions stuck a lighted camera up my nose to look at part of my throat. She prescribed me Omeprazole PPI and Peptic liquid for possible GERD/LPR, which i've now been taking for 2-3 months ~ with no relief.
I had an Endoscopy yesterday with a Gastroscope which showed all of my gullet and stomach to be completely normal, so the ENT was wrong ~ it is not GERD or LPR.

Now i'm absolutely *terrified* that it could be thyroid cancer or some other cancer.... im also terrified that it is being left for so long (12months+) and i desperately dont want it to spread if it is cancer.

The pain in my neck/under my chin/around my adams apple is just horrible ~ whenever i swallow, talk, eat, drink or move my neck, im constantly reminded of it ~ i would describe it as *extremely* tender to the touch (i cant even very gently rub moisturiser into or cleanse my neck properly anymore b/c it hurts me too much), plus theres a constant ache and sense of pressure/strangling sensation and stabbing/sharp pains also from time to time. ... along with a feeling of a lump in my throat and difficulty/pain in swallowing, and on-and-off pain in my right-chest and back of neck/ear. I also occasionally get awful pain in the back of head/base of my skull.

Im sorry for such a long message ~ im just so very scared about this and iv been suffering so long with it i feel drained and desperate as the doctors arent working quickly enough to help me.

Do my symptoms sound like anything you have heard of or personally experienced?.. my web searches keep sending me back to potential thyroid cancer :(

Please help ~ im terrified. xxxxxxx[/QUOTE]





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