It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Urology Message Board


Urology Board Index
Board Index > Urology | 0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


I had been making posts to the thread "UTI symptoms persist after treatment", but it was closed down because there were too many posts on this topic. I have been dealing with a miserable situation since August 25th. I had a UTI that started on that day, and after a week of Macrobid antibiotic, there were no more signs of infection in my urine. However, it is now 3 and 1/2 months later and I am still dealing with this constant miserable symptom of ALWAYS feeling like i need to urinate. It never goes away. I have been to a urologist, a gynecologist, and I have appointments with both an internist & a urogynecologist coming up in the next 2 weeks. I have had numerous urinalyses, urine cultures, 2 pelvic exams, a bladder ultrasound, a cystoscopy, and a CT scan. I have been prescribed both Detrol-LA and Flomax, and neither seem to help. I have an MRI scheduled for Tuesday this week & blood work scheduled for Wednesday. I am awaiting results of a vaginal culture & yet another urinalysis that was done on Thursday. So far, almost EVERY test they have done on me has been completely normal. The only things that they have found wrong are (1) the initial bacterial infection on Aug 25th (shown by bacteria, red & white blood cells & protein in my urine), and (2) microscopic amounts of red blood cells in my urine on 11/20 and 12/2. Other than those 2 things, it seems there is nothing wrong with me except for the CONSTANT feeling I have that I need to pee. I have been on bactrim antibiotic for 4 days now just in case there is a low-grade infection that is not being picked up in a urinalysis, or for a possible infection in the paraurethral glands (these are the glands on the outside of the urethra & can get infected but it can't be picked up by a urinalysis). My urologist wants me to stay on this antibiotic for at least 6 weeks because paraurethral gland infections take a long time to clear up, but after 4 days I have not yet noticed any improvement. The MRI they are doing this week will look for a possible urethral diverticulum (a "pocket" that can form next to the urethra & also can get infected). If none of these things end up being the cause of my misery, I am afraid I will be diagnosed with IC. My gynecologist is already telling me I have IC, but I believe the urologist is the better source of information on these things & he says my symptoms are not typical of IC. He also says people with IC usually do not have red blood cells in their urine. I just don't know what to believe anymore. Has anyone had similar problems? Any advice on what could be wrong or how to treat it? Thanks.
I only have one suggestion and it may be wrong (since I did not have red blood cells showing in my urine). Have someone check your pelvic floor muscle. I kept getting tested for UTI's because I had the irrritated sensation that UTI's give at the beginning of an infection. My ob/gyne finally sent me to a female urologist who, after several tests, suspected that my problem was the pelvic floor muscle. I was referred to a physical therapist who specializes in treating this problem and it has helped. I need to mention that I saw a male urologist in the same practice a year before and he had no idea what was wrong with me. Good luck and keep persevering at finding out what's going on. A lot of doctors don't keep up with breakthroughs in what causes certain problems and how to treat them successfully.
hello
im new to these boards and i too suffer from this problem.

i have the constant urge that i need to urinate, even after i have just been to the toilet, i have lived with this issue for over 6 years and the last 12-18 months have been fine, then all of a sudden it has come back, my moods have been affected, i feel so miserable and dont know what i can do about it.

i have had previous checks at the doctors which showed nothing, can anyone please suggest something i can do/try to get this to go away.

i am 26 years old and feel so low and depressed over this that life feels very hard to cope with some days, i have a loving family with 2 young children and i feel that instead of spending time with them i sit feeling sorry for myself.

many thanks
recarouk,

i too am a 26 year old who has been living with this problem. however, i've only been dealing with it for a little less than 4 months. i cannot imagine living like this for 6 years! i have been losing my mind! but i seem to have finally found a cure! i have done A LOT of research online. my whole problem started with an actual UTI that was detectable in my urine on Aug 25th. after 1 week of antibiotics i still had mild symptoms, so i went back to the doctor for another urinalysis. this one came back negative for infection. ever since then i have been to multiple doctors and have had every test imaginable done, but they could find nothing wrong with me except for microscopic amounts of blood in my urine. anyway, i have found articles online that say my symptoms could be due to an infection of the paraurethral glands, or a bladder infection in which the bacteria have gone inside the bladder lining, and cannot be detected in a urine sample. the cure for either of these infections is a LONG course of tissue-penetrating antibiotics (as long as 8-12 weeks). so i tried bactrim and after 8 days, my bladder-symptoms were completely gone. unfortunately, that same day i also had an allergic reaction this the antibiotic which caused a rash all over my body & made me the itchiest i've ever been in my life. so i stopped taking that obviously, and i am now on doxycycline. this is the 3rd day i've been on it, and i am feeling almost completely better. i think if i can just stay on this antibiotic for a long time without having an allergic reaction, i will be cured. so my advice is to at least try a long course of bactrim, doxycycline, cipro, or some other tissue-penetrating antibiotic before trying anything else. i have had doctors diagnose me with interstitial cystitis, tell me it's all in my head, etc. they are all morons. try a long course of antibiotics! it just may make the problem go away! goodluck.
hi kristyn

thats great that youve found something that works, i think i might make an apointment to see our family GP and tell her about the issues ive had and see what happens.

thank you for the advice its much apreciated if and when i get seen/cured ill report back with my results.

thanks again.
hi all been reading your posts on your problems and i have the same thing i feel need to urinate all the time . going to docs today
my sister had these problems after being diagnosed with sjogrens which is an auti immume disease and she cannott produce salava . tears and also gets very dry bladder and vagina . she had her bladder stretched which helped for a while but it came back over and over again in the end we got anew doctor at our practice very young with new ideas who suggested because her bladder is very dry to try a hormonal cream and she uses it all the time and now has been clear for months now.. as i have came off hrt after total hyterectomy 6 years ago am wondering if that is my problem also as i am very dry down below also
am gonna mention it to my doc today i live in uk let you know what she says thanks viv
hi, I have had this problem for about a year on and off. It is quite annoying. I went to see a urogynecologist, all the blood tests, urine tests, cystoscopy and CT scans, all negative. I also suffer from mild anxiety attacks for which I am prescribed klonopin. When I would have the urinary symptoms and took the kolonopin and at the same time had that annoying feeling, that feeling in my bladder subsided completely. So I had an appt. with the uro and told her this, and she told me that some people have sensitive bladders and have sensitive nerves and are calmed down with anti anxiety meds. So she put me on amytriptaline which really worked for a long time. I had some side effects from it, mostly dry mouth and muscle twitching. I decided to go off that medication and take the klonopin as needed. Knock on wood, it has helped a great deal. I don't have the "bladder attacks" that often, and when I do I just take a half of the klonopin and if that doesn't work I will take the other half. I found also too that a heating pad helps especially to fall asleep. Hope this post helps.
I think you should see my post on "Re: Can a UTI cause interstitial cystitis?"... I've found some interesting information about using Calcium Citrate Supplements to helps relieve symptoms... :bouncing: I'm exited!!!!
[QUOTE=laurabo;3871144][/QUOTE]
A few years ago I had a similar situation with frequent urges to urinate and a slight burning which made me feel I had to use the bathroom. Doctors found nothing wrong until I coincidentally had a yearly gyno check-up with a female doctor who said I had severe vaginal dryness and prescribed a vaginal moisturizer (Replens) to be used daily for a week and then reduce the frequency or use, and now I use it about once a week or even less. Its worth asking your gyno about it. Good luck.
I am so glad I finally found some people who are having the same problem as me! I have had the constant feeling of having to urinate for the last 6 months, and like several of you, I have been to the Dr, Uro/gyno multiple times, had samples and cultures taken, pelvic exams, tried a few different antibiotics, abstained from all caffeine, chocolate, and alcohol, even tried a homeopathic remedy...all of which could find nothing and did not help.
I have been going out of my mind, and have become irritable and short-tempered because of how uncomfortable this is! I feel like I've researched the entire web with no luck, and have become so discouraged I just want to sit and cry. I will definitely try just about anything. Here's a question for any of you ladies out there: Does the urge seem to get worse during menstruation? I find that it gets significantly worse during that time of the month, as well as after I go running. Not sure what the significance could be, but it has been happening regularly now.
Thanks for any comments!
I don't know if this will apply to anybody, but I had symptoms of a UTI for many months. Hot urine, having to urinate all the time, etc. Yet the urine tested negative for a UTI and actually looked very light and healthy. It turns out that I had a huge ovarian cyst that was pushing down on the bladder. I had it removed last month, and all the bladder symptoms I was having are gone. I can even sleep all night w/o having to go urinate once.
I have been there, mine turned out to be Intetstitial Cystitis, this is when the linning of your bladder is to thin, from what ny docter told me. I delt with feeling like I had to pee like that for 3 years, just about drove me crazy. here is a site that you can look at to compare your symptems.
[url]http://www.ichelp.org/[/url]
My doc, has me on Flomax and Ampatrinalin, I thank the Ampatrinalin is the one that is doing the job and that's only 4 bucks a month at Wal-mart.
The Ampatrinalin is accually a med for depression but is used for other treatments as well.
If that is what you have stay away from cafine, dark soft dranks, spicy foods, tomatoes and anything your system dosn't process very good. I can't have milk or ice cream. I went for years like that, always having to pee, and then just a brip to two second stream. Sometimes I felt tender in my pelvic region at my bladder.
Check it out, and I hope this helps.
gd72
Hi, i wont waste very much time introducing myself..i just want to say that recently..about 1 or 2 months now i have had the feeling of needing to urinate almost all the time. I dont know when it started or why..but when i go urniate, at the end of peeing, i feel a heavy feeling from the vaginal area..like its going to fall out or something.. along with that, even after i pee, i feel like there is still some left.. you know like when you feel like you have just a teeny amount of pee left that you didnt pee out. its that kind of feeling that is annoying. and when i sit to go again, not no more then a pinch of pee comes out. its not like i have a full bladder, but just like i didnt go all of it. I have been taking hyoscyamine, for my ibs problem..and i know that is made to relax muscles, like bladder and uterus also. but it didnt do the pee problem until recently. i dont know if its that that caused it..i heard the muscles can get loose or weak, and kegal exercises have helped people. But its very weird..and I would like to know whats wrong :(
While pregnant with my 3rd child at the age of 27 I started having feeling of constantly wanting to urinate and I mean constantly, they thought it might be twins but no just the 1 gorgeous wee girl. I thought the problem would go away but that was 10 years ago and many test, pills, sleeping pills and doctors telling me it's all in my head and alot of depression and the death of my husband 2 years ago. Life hasn't been alot of fun but my kids keep me going and maybe after reading you're stories I hope maybe to find some sort of help for my problem I'm not sure I can live like this forever but I live in hope that help is out there somewhere thank you for shareing you experiences it has made me feel like i'm not alone for the first time in 10 years
I want to know how you got to see other Dr. My husband has been going through the same thing as you but when he got a referal from his Primary Dr. to see another urologest he was told that she couldn't see him for 90 days after the last treatment he had from the one who did his surgery. Since his current one did a third procedure on the 17th of Aug. Then the new one can't see him until Nov.21. They said this is the law. If this continues he will be in a very deep state of depression by then. He is now. Has anyone heard of this law?
[QUOTE=Gramshe;4842642]I want to know how you got to see other Dr. My husband has been going through the same thing as you but when he got a referal from his Primary Dr. to see another urologest he was told that she couldn't see him for 90 days after the last treatment he had from the one who did his surgery. Since his current one did a third procedure on the 17th of Aug. Then the new one can't see him until Nov.21. They said this is the law. If this continues he will be in a very deep state of depression by then. He is now. Has anyone heard of this law?[/QUOTE]

I have certainly never heard of a law like this in the US. It makes no sense. Maybe it is the type of insurance your husband has? I had Anthem Blue Cross insurance when I was dealing with all of these problems, and I was able to see as many doctors as I wanted whenever they had appointments available. I don't know anything about what your husband has going on or what type of surgery he had, but make sure he has his prostate checked out. Prostate infections can cause urinary symptoms in men. Good luck. Let me know if I can answer any more questions. I know how miserable and depressing these issues can make a person, but tell him not to give up hope! It took me over 2 years to really figure out what was wrong with me, and I was miserable and depressed that whole time, but now I have my life back and can smile again :)
I have very similar issues. With both the need to urinate, which started off as my only symptom, and then later on with the inguinal pain as well, which sometimes moves into my abdomen. Did you have any luck as you continued to see doctors?
[QUOTE=miked01;4861130]I have very similar issues. With both the need to urinate, which started off as my only symptom, and then later on with the inguinal pain as well, which sometimes moves into my abdomen. Did you have any luck as you continued to see doctors?[/QUOTE]

Hi,

I had no luck with doctors at all. I saw 5 different doctors and had all of their expensive tests done and it just ended up being a waste of my time and money. They found nothing wrong with me. I ended up diagnosing myself in December of last year with something called cytolytic vaginosis. One day I decided to just start from scratch and search online for problems that cause my symptoms. I got lucky, and finally found a rare problem that perfectly described my symptoms. Only then did I go back to a gynecologist and have her verify my diagnosis.

My advice would still be to try to see as many different doctors as possible. Maybe you will get luckier than I did. But also, remember that YOU have to take responsibility for your own health. No one cares about your health as much as you do, and no one will work as hard to diagnose and treat your problem as you will. The internet was a lifesaver for me. After over 2 years of suffering and going broke paying for medical tests and doctors that got me nowhere, ultimately it was me and the internet that found out what my problem was. So search the internet for your symptoms & their possible causes... then go to different doctors armed with that information and make them test for every possible diagnosis you have found online.

Goodluck. I hope you get answers more quickly than I did. Let me know if I can answer any more questions.
just wondering how you're feeling now?
[QUOTE=kris447;5061804]Hi,

My diagnosis ended up being cytolytic vaginosis. My symptoms were extremely similar to yours, so you should look into this possibility. It's an overgrowth of lactobacillis (the "good" bacteria) in the vagina. The treatment is baking soda sitz baths, which have given me my life back! I also had to stop taking probiotics and stop eating yogurt. It's much easier to deal with than a urethral diverticulum would have been... and that's one thing I also thought I may have had when I was searching for answers. But I had an MRI that showed no problems. I would suggest researching cytolytic vaginosis & trying baking soda baths if your symptoms fit. After 15 minute baths daily for about 10 days I started to feel so much better! Good luck and let me know if I can answer any more questions.[/QUOTE]

Hi,

My problems are exactly like yours. Do you also flare after sex? It's a nightmare for me. I also have a milky discharge (no odor) from vagina which gynos find normal however I know it's bothering me because my problems occur either after i pee or either this discharge contacts my urethral opening and vulva. As long as im laying down, im fine. Also I used a vaginal capsule called Donaxyl and i swear i was healed %100. The discharge disappeared as well. However a few weeks later it was back. However no pain..just the discharge so had sex and back to nightmare. My boyfriend is still with me with lack of sex :( anyway...my vaginal cultures show a lot of lactobilissis. I'm curios, how are you doing? Did you solve your problem? and there are 2 sicknesses, the one you are talking about CV and also lactobolissis. Very hard to differentiate. Does the baking soda help?
Yes, it's always worse after sex. And the discharge is a symptom of both cytolytic vaginosis and lactobacillosis. I don't know anything about Donaxyl, and I couldn't find anything about in online that was in English... you must live outside of the US? But if it helped you and made your symptoms and discharge go away, it probably killed off a lot of the lactobacillus. If your vaginal cultures show nothing except lots of lactobacillus, baking soda baths will help you tremendously. I am doing great. I just take baking soda baths whenever I start to notice a bit of irritation, which is usually after having sex & also during the second half of my monthly cycle. So the problem is not completely gone, but it is very manageable & no more than a minor inconvenience now. This is major improvement since it used to control my life!

Yes, there are actually 2 separate conditions, one called cytolytic vaginosis and another called lactobacillosis. Essentially, they are the same thing... an overgrowth of lactobacillus. The difference is that in cytolytic vaginosis there is so much lactobacillus that it actually starts to destroy the vaginal tissue, which causes pain. So they're really just the same problem, but I think cytolytic vaginosis is essentially a very advanced form of lactobacillosis.

Anyway, I would STRONGLY recommend the baking soda baths. You can look up how to do baking soda sitz baths online. You'll need to make them pretty strong (only a couple inches of water and a good amount of baking soda). You can also make a paste with baking soda and water & put it directly in the vagina & on the vulva. But this was way too strong for me when I tried it & actually ended up causing me to have more irritation for a while after doing it. So be careful with that. You'll have to give the baking soda baths some time to work. You can take them 2x a day if you have time to do so. I just did them once a day and finally started feeling much better after taking baths about 10 days in a row. Also, you should try not to use tampons if you can avoid it. Blood is very alkalizing and will kill off a lot of the lactobacillus during your period, but it works better without a tampon there to absorb it.

Also, you should avoid eating anything containing lactobacillus, such as yogurt, sour cream, or probiotic pills. Your body has too much lactobacillus already, so you don't want to give it any more.

Good luck. I know exactly what you're going through and how frustrating and depressing it can be. But believe me, there are far worse problems you could have. This one is actually quite easy to treat once you get it under control. Let me know how it goes & feel free to ask me any other questions you come up with. I'm always happy to help someone else try to get rid of this terrible problem and get their life back!

[QUOTE=lujimar;5074743]Hi,

My problems are exactly like yours. Do you also flare after sex? It's a nightmare for me. I also have a milky discharge (no odor) from vagina which gynos find normal however I know it's bothering me because my problems occur either after i pee or either this discharge contacts my urethral opening and vulva. As long as im laying down, im fine. Also I used a vaginal capsule called Donaxyl and i swear i was healed %100. The discharge disappeared as well. However a few weeks later it was back. However no pain..just the discharge so had sex and back to nightmare. My boyfriend is still with me with lack of sex :( anyway...my vaginal cultures show a lot of lactobilissis. I'm curios, how are you doing? Did you solve your problem? and there are 2 sicknesses, the one you are talking about CV and also lactobolissis. Very hard to differentiate. Does the baking soda help?[/QUOTE]
Hello Kristy,

Thank you so much for your reply. I meant to reply it earlier but now that i feel good for the last few days, i tried to take care of the things outside of my apt like shopping etc. Unbelievable but i've tried baking soda even before i wrote here upon reading your posts and i guess it's working. I dont have a bath, i have a shower so what i did was putting the mix in a little bottle and spray it in the shower. One time I did it a bit too much i think, and tried to wash a little more towards inside the opening and ahhhh it was a bad bad day. But the next day i got better, better and better. So i kept washing one day with baking soda (not like that one time which caused me pain) and then i rinse it a bit with hot water..(HOT MAKES ME FEEL SOOOO GOOD)..and then one day i wash it with regular hot water. So far there is still irritation but really very very little (yesssss :))) and the discharge seems to disappear. I told my gyno about this and she said this might be it, too much good bacteria and she told me to wash with apple vinegar (??!!) isnt this supposed to create good bacteria and kill the yeast? im confused, can we also use apple vinegar?
im so happy to see a few people including you has searched so much as much as I did. I was hopeless then i brought the clues together, took me 1.5 years old, tons of tests, a lot of money spent on ignorant doctors, depression, job loss (now im pursuing a different career), and a weak stomach with acid reflux. I feel like my body is full of ACID. I might be growing an alien inside :) if we dont laugh, how can we cope with this right? anyway, im also drinking baking soda because my stomach is developing too much acid...thanks to the doctors who gave me antibiotics and when i told them im having acid reflux, they said KEEP TAKING..i did not..as a result of 2 pills of monodox, i had to start nexium and once you are on nexium, it's very hard to leave because your body wants this medicine to keep the acid balance. This medicine companies are monsters!!! (not all) Now that we are talking about medicine, it's time to talk about this Donaxyl tablet i used. Yes i live in Europe and English is my second language (sorry for grammar mistakes)... here is the ingredients:Dequalinium Chloride...i guess it's good for gram negative and positive bacterias, yeast and trischomonas (although i am negative for all). i searched it, here it is:Fluomizin - Flu omizin is used for the treatment of vaginal infections. It exerts its action locally within the vagina. Marked relief with regard to discharge and inflammation generally occurs within 24-72 hrs. Indications: vaginal infections

I will let this baking soda showers go for a while and if i continue to feel good, i will try some action in bed to see if i will again be sick.

QUESTIONS:
1) How come good bacteria causes urination problems? why did it happen after a UTI? (i actually used lactobolisis vaginal tablets after the antibiotic because the doctor has asked). After sex I have a hard time starting urine...it's like prostates in men. Then burning...days and days...ah God it gives me the chills even to think about it. It continues for months..I was suspicious of a skene's gland infection. What do u think about this?

2) What about augmentine ?

Looking forward to hear from you..
Hi,

I'm so glad to hear the baking soda is helping you. It definitely can sting a little bit if you use too much, but I always take that as a sure sign that it's working. I would suggest you keep doing what you're doing. Eventually you shouldn't have to use the baking soda as often.

I would NOT suggest using apple vinegar. I have no idea where your doctor came up with this. But vinegar is very acidic, and you already have too much acidity. Stick to the baking soda, which is alkalizing.

Like you, It took me way too long to figure out what my problem was. I suffered through 2.5 years of tests, doctors visits, and medical bills, all for nothing. Then one day I decided to start from scratch & just search for my symptoms on the internet to see what could be causing them. I happened to get lucky and come across the cytolytic vaginosis diagnosis, which fit my symptoms perfectly. I immediately went to the store and bought a big box of baking soda.

Yes, it definitely helps to keep a sense of humor about this! If you feel like your entire body is too acidic, you're probably right. I also had digestive issues when I was at the peak of my cytolytic vaginosis misery. But I was taking probiotics, and as soon as I found out I had too much lactobacillus, I stopped taking the probiotics (which contained 5 different species of lactobacillus). That solved my digestive issues. But you could keep drinking the baking soda mixed with water, that should help you. You should also try sticking to very alkalizing foods for a while (lots of veggies mostly), and avoid acidic foods like tomatoes and oranges. You could even buy some pH test strips if you wanted to. You can pee on them to see how acidic your urine (& thus probably your whole body) is. I followed an alkalizing diet very strictly for 8 weeks when doctors told me I had interstitial cystitis. I would pee on the pH strips every time I went and if my urine was very acidic I would make sure to eat more alkalizing foods.

I think antibiotics could be part of what causes this bacterial imbalance. Maybe you and I took too many antibiotics prescribed by doctors (I know I did), and our bodies started making more lactobacillus to try to balance everything out. You're right though... most of these prescription medicines are bad and cause more problems than they solve. The donaxyl tablets you used probably killed off a lot of the lactobacillus you had at first and made you feel a bit better. But then the lactobacillus eventually comes back and you feel worse again. I went through this a lot with different antibiotics I was on. I would feel better for a couple days when I first started a new antibiotic, and then after a couple days I would feel even worse than before.

To try to answer some of your questions... I think the lactobacillus causes urinary symptoms because there is just way too much of it. The lactobacillus actually starts to destroy the vaginal tissue once there is way too much of it. Since the urethra & glands are right up there in the vagina, they also get red, sore, swollen & damaged by the lactobacillus overgrowth. This is my theory anyway. As for why it happened after a UTI, my guess is that the imbalance was caused by the antibiotics they gave us for the UTI. At one point I thought I had a skene's gland infection too. I went on a 12-week course of doxycycline antibiotic because this is what I read was effective in treating a skene's gland infection. No surprise, it only made my real problem worse. I really think the glands just become swollen & sore when there is too much lactobacillus around. But I think the problem is outside the glands, not inside.

Augmentin is just another antibiotic. If I was you, I would stay away from all antibiotics, and all prescription drugs completely for a while if you can. I have had better results just educating myself on the internet, using baking soda baths, eating a healthy diet, taking supplements & seeing my naturopathic doctor from time to time. So that would be my recommendation. I have given up on conventional medicine & doctors. All they do is take your money & give you prescription drugs.

Let me know how it goes & if I can be of any more help. Again, I'm so happy to hear that you're seeing improvement in your condition!

Kristyn

[QUOTE=lujimar;5076241]Hello Kristy,

Thank you so much for your reply. I meant to reply it earlier but now that i feel good for the last few days, i tried to take care of the things outside of my apt like shopping etc. Unbelievable but i've tried baking soda even before i wrote here upon reading your posts and i guess it's working. I dont have a bath, i have a shower so what i did was putting the mix in a little bottle and spray it in the shower. One time I did it a bit too much i think, and tried to wash a little more towards inside the opening and ahhhh it was a bad bad day. But the next day i got better, better and better. So i kept washing one day with baking soda (not like that one time which caused me pain) and then i rinse it a bit with hot water..(HOT MAKES ME FEEL SOOOO GOOD)..and then one day i wash it with regular hot water. So far there is still irritation but really very very little (yesssss :))) and the discharge seems to disappear. I told my gyno about this and she said this might be it, too much good bacteria and she told me to wash with apple vinegar (??!!) isnt this supposed to create good bacteria and kill the yeast? im confused, can we also use apple vinegar?
im so happy to see a few people including you has searched so much as much as I did. I was hopeless then i brought the clues together, took me 1.5 years old, tons of tests, a lot of money spent on ignorant doctors, depression, job loss (now im pursuing a different career), and a weak stomach with acid reflux. I feel like my body is full of ACID. I might be growing an alien inside :) if we dont laugh, how can we cope with this right? anyway, im also drinking baking soda because my stomach is developing too much acid...thanks to the doctors who gave me antibiotics and when i told them im having acid reflux, they said KEEP TAKING..i did not..as a result of 2 pills of monodox, i had to start nexium and once you are on nexium, it's very hard to leave because your body wants this medicine to keep the acid balance. This medicine companies are monsters!!! (not all) Now that we are talking about medicine, it's time to talk about this Donaxyl tablet i used. Yes i live in Europe and English is my second language (sorry for grammar mistakes)... here is the ingredients:Dequalinium Chloride...i guess it's good for gram negative and positive bacterias, yeast and trischomonas (although i am negative for all). i searched it, here it is:Fluomizin - Flu omizin is used for the treatment of vaginal infections. It exerts its action locally within the vagina. Marked relief with regard to discharge and inflammation generally occurs within 24-72 hrs. Indications: vaginal infections

I will let this baking soda showers go for a while and if i continue to feel good, i will try some action in bed to see if i will again be sick.

QUESTIONS:
1) How come good bacteria causes urination problems? why did it happen after a UTI? (i actually used lactobolisis vaginal tablets after the antibiotic because the doctor has asked). After sex I have a hard time starting urine...it's like prostates in men. Then burning...days and days...ah God it gives me the chills even to think about it. It continues for months..I was suspicious of a skene's gland infection. What do u think about this?

2) What about augmentine ?

Looking forward to hear from you..[/QUOTE]
I am having the same problem right now. I had a uti and my urine shows clear now but my symptoms never went away. I feel the constant urge to go to the bathroom. It is driving me crazy, I feel like I want to crawl out of my skin. I just saw a urologist this week so I just went for an ultrasound of my kidneys and bladder today. I just don't understand because I have had utis all of my life and the symptoms went away in a couple of days after starting meds. I'm wondering if you have any updates or successes as of yet?
Hi RaeP - sorry to hear how you have been feeling. I have been there and it was NOT fun.

Have a look through my posts, as your story sounds a bit like mine.

I only ever had one symptom - feeling like I needed the toilet all the time - and that came about from a UTI. After we treated it with antibiotics, the sensation just didn't go away.

I am now 100% better and have been for over 18 months.

Have a read of my posts and if you want any more details, or a sympathetic ear, then let me know.

Jenny
Thanks for replying back. That is awesome that you are fine now. I hope to be there soon too because in this short period of time that I have been going through this it has taken over my life. I am completely miserable with the constant feeling. I am hoping that mine is just an irritation or something from the uti as yours was. It just seems so odd that I have been getting utis for 20 years and this is the first one that has ever acted this way.
Hello Kristyn, I'm in USA now...constantly busy...shooting a film, packing and dealing with jetlag. I'm feeling better now. I'm on my period so :) no pain at all. But once it finishes i feel the irritation again but it's not unbearable. My pharmacist recomended me a oustropath, homeopath and neuropath..he is all of them. He talked to me on the phone (i will see him when i go back home) he asked me questions like "do u have heartburn, do you have gas, do your gums bleed and hurt once in a while,is the area below your chest very small? and then he said my immune system is *ucked up..and i need to use yoghurt on my vagina and i need to eat healthy, 9000mg of omega3 that will gradually go down mg wise..and something called colustram (i dont remember exactly), cranbery pills, vitamine D and lactobillisis tablets. I'm just scared because he didnt understand the part about growing too much good bacteria, he keeps telling me my good bacteria is gone..anyway..will update you guys.
Hi,

I wanted to let you know that this is exactly how my symptoms started too. I had a UTI that went away with antibiotics, but it still felt like I had to pee all the time. My problem ended up being an irritated urethra from cytolytic vaginosis. I think the antibiotics I was on for the UTI caused an imbalance of the good bacteria in the vagina, which is what cytolytic vaginosis is. After about 1 year of feeling like I had to pee all the time, my symptoms got worse and I just felt irritated, itchy, raw & burning down there all the time. But all my tests kept coming back normal. Finally over a year after that I figured out it was cytolytic vaginosis and not any of the other awful things doctors had been telling me it was (like interstitial cystitis). Anyway, after finding out what I was dealing with, the recovery was pretty quick. I took baking soda sitz baths daily and in about 10 days I saw major improvement. Now I just take the baking soda baths from time to time when I start to feel that irritated urethra feeling or get a little itchy down there. Other than that, my life is back to normal! You should look into the cytolytic vaginosis diagnosis as a possibility... goodluck & let me know if I can answer any questions.

[QUOTE=RaeP;5081865]I am having the same problem right now. I had a uti and my urine shows clear now but my symptoms never went away. I feel the constant urge to go to the bathroom. It is driving me crazy, I feel like I want to crawl out of my skin. I just saw a urologist this week so I just went for an ultrasound of my kidneys and bladder today. I just don't understand because I have had utis all of my life and the symptoms went away in a couple of days after starting meds. I'm wondering if you have any updates or successes as of yet?[/QUOTE]
Hi there,

I don't know about this doctor you talked to. I would NOT put yogurt on your vagina or take lactobacillus tablets. You already have too much lactobacillus, why would you want more?? I'm convinced that the lactobacillus tablets I was taking (before I knew what was wrong with me) made my condition much worse. I don't want that to happen to you too. I don't think he understands what your problem really is. I would try to explain to him again what your problem is and why you don't think the yogurt and lactobacillus tabs are a good idea. If he still doesn't get it, you should keep looking for a better doctor. If you're ever in Denver, Colorado USA, I have a good women's health naturopathic doctor I can recommend. For now, just use your head & don't do anything a doctor tells you to do unless you agree with them.

Kristyn

[QUOTE=lujimar;5082048]Hello Kristyn, I'm in USA now...constantly busy...shooting a film, packing and dealing with jetlag. I'm feeling better now. I'm on my period so :) no pain at all. But once it finishes i feel the irritation again but it's not unbearable. My pharmacist recomended me a oustropath, homeopath and neuropath..he is all of them. He talked to me on the phone (i will see him when i go back home) he asked me questions like "do u have heartburn, do you have gas, do your gums bleed and hurt once in a while,is the area below your chest very small? and then he said my immune system is *ucked up..and i need to use yoghurt on my vagina and i need to eat healthy, 9000mg of omega3 that will gradually go down mg wise..and something called colustram (i dont remember exactly), cranbery pills, vitamine D and lactobillisis tablets. I'm just scared because he didnt understand the part about growing too much good bacteria, he keeps telling me my good bacteria is gone..anyway..will update you guys.[/QUOTE]
It is amazing that after all of the doctors and tests that you had done and for the amount of time that you struggled you were diagnosed, treated, and felt better within 10days! I am feeling so frustrated and sad about this entire thing right now. I see the urologist again tomorrow for a cystoscopy. The only symptom that I have is the urge to urinate and it seems to range from mild to super strong throughout the day. No rhyme or reason to it. I just want this all to be over with. Did your doctor ever prescribe you any of the overactive bladder meds?
Good luck with your cystoscopy. I had one done in the early days of trying to diagnose my problem and there was nothing found. That doctor said he didn't think it was an overactive bladder as I didn't have any other symptoms. And it was a different doctor who finally diagnosed me.

It might be worth trying some overactive medicine as if it isn't that, then it won't make any difference and at least you can rule that out.

Initially they gave me oxybutynin, which didn't really work that well, and then I tried Vesicare, which was amazing! Definitely worth trying I think, given that your situation sounds very similar to mine.

Keep your chin up. I know it is hard when you are engulfed in something like this, and it feels like it will never go away, but it will.

Let me know how you get on with your cystoscopy.

Jenny
I know, right!? I spent thousands of dollars, and hours of time trying to figure out what was wrong with me for 2 and 1/2 years before I finally figured out baking soda baths were the cheap & easy cure I needed! I'm convinced the experience made me a better person though, and now I'm eager to help others going through the same agony I went through.

How did your cystoscopy go? Did they see anything abnormal? Mine showed my bladder was completely normal and healthy, but the cystoscopy itself was probably one of the worst experiences in my life. Hurt like HELL and peed blood for 3 days afterwards. I almost passed out in the waiting area after the procedure because I was in so much pain and a nurse had to go get me some water. I really hope your appointment went better than mine.

Yes, the urologist I saw for several months prescribed me both Detrol-LA and Flowmax. I tried each one (separately) for 6 weeks. Neither did anything for me at all. From experience, I would suggest trying to get the doctors to focus on finding out exactly what is wrong with you before you try any prescription drugs. They tend to just throw drugs at you to try to cover up your symptoms instead of focusing on trying to fix the cause of the symptoms. My ONLY initial symptom I had after the UTI was the same as yours... I just felt like I had to pee all the time. So you might want to give the baking soda baths a try before you try a bunch of prescriptions. The baking soda certainly won't cause any harm if it doesn't work, unlike the prescriptions that all have nasty side-effects.

Anyway, hang in there! Let me know how you're doing.

[QUOTE=RaeP;5083995]It is amazing that after all of the doctors and tests that you had done and for the amount of time that you struggled you were diagnosed, treated, and felt better within 10days! I am feeling so frustrated and sad about this entire thing right now. I see the urologist again tomorrow for a cystoscopy. The only symptom that I have is the urge to urinate and it seems to range from mild to super strong throughout the day. No rhyme or reason to it. I just want this all to be over with. Did your doctor ever prescribe you any of the overactive bladder meds?[/QUOTE]
I had my cystoscopy on Tuesday and of course all is well. He sent me for a pelvic ultrasound yesterday and all is good there too. So I don't know what to think. My anxiety levels are definitely getting the best of me because I can't stand feeling like I have to go to the bathroom all of the time!!! Every tells me to just ignore it and it will eventually go away, I can't ignore something that I can feel all of the time!! The urologist did give me a one week supply of Vesicare and I only took the second pill today, so I don't think it's helping as of yet. Another part of this puzzle is that during the last 3 weeks that this has been going on I should have gotten my period and I didn't, so it is about 2 weeks late. I have never skipped periods before except for 3 times and I have 3 daughters! I am definitely not pregnant, but I can't somehow worry that this is all tied together. Could it be that the uti that I had at the beginning of this made this all happen?? I am just so tired and stressed from this. The urologist wants me to call him in a week to let him know how I'm doing and if the medicine is working. I. The meantime, I made an appt with my gyn this Monday.
Hello everyone,

I had a 13 hours of flight on the 30th of October. I was scared, had my cranberry powder ready (cycscontrol) and i had the discomfort but not to bad. And for almost a week i was in heaven. I had started to feel better even before the traveling by baking soda. So i had the courage to have some intimacy with my bf..we only tried!!! he didnt even enter bec i was a bit dry i guess due to stress if the pain will come or not...well yes the next day it was there(usually it's not there right after but maybe 5 hours later or the next day)..applied the baking soda and pre-seed lubricant (heard somewhere that it helps) then the pain went away..of course also took my cranberry powder. I was ok. Then i realized it didnt completely go away..and i tried intimacy again (i dont know why i did this..maybe because i felt that it was coming so i told myself i might as well try sex if the pain will be there regardless)...and yes the last one week was like close to hell...i had seen worse. if i didnt react on time, it would have been worse i KNOW!! Baking soda, pre-seed these didnt work. Again used Donaxyl vaginal tablets. Tonight will be my third night and I'm already feeling disease free...like the good old days, remember those times??? when you completely forget that you have a vagina or urethra down there except when you are peeing or when you are having sex :) im exactly back in my good days. But im not happy because this happened to me before...i had used the tablets and it was gone but a week later it was back with the milky discharge which doctors say nothing other than lactobalisilis.

Here is my theory: I think the urethral problem appears because of the the increased lactobasilis? does anyone know if that can cause irritation in urethra and bladder? Because i think if it doesnt get into the urethra, we wont have any problems. So although we believe we have a bladder problem, in fact we have a vaginal flora problem. This donaxyl table is supposed to kill the BV, any kind...and as u know, normally it kills your good bacteria as well and in some women it causes yeast infection. However for me, they actually give me a relief not a yeast infection. They give me a relief because they kills the good bacteria not because they kill the non-existing BV (that's what the cultures say, no BV). So for a while i feel good but again the good bacteria increases and im in HELL... :( is there a way to stop this stupid good bacteria? I think our body is attacking itself thinking there is a sickness in our vaginas. At some point, the antibiotics must have ruined our regular system..maybe we used the wrong antibiotics. i dont know :( i'm considering augmentine since i heard it helped some people with increased lactobolisis...however I'm trying to avoid it for a while since im scared to take any drugs.. i might also try ornidazol like BITERAL OR ORNISID, in case i have a secret BV. I'm considering this because the vaginal tablet that gives me comfort is also supposed to kill BV and other vaginal infections. What i dont understand is, how come Augmentine works for? whats the difference of it compared to other antibiotics we tried?
So sorry to hear you are still having problems. For me, I still use the baking soda weekly to keep the lactobacillus numbers down. That irritated urethra feeling always comes back though and reminds me it's time for another bath. It never completely goes away, I just manage it the best I can with baking soda baths. I'm convinced that the lactobacillus just grows out of control on the outside & opening to the urethra & this is what causes the irritation & feeling of constantly needing to pee. Baking soda baths always improve my condition, but like I said, I have to keep taking them.

I also think that antibiotics are what caused me to have this imbalance of vaginal flora in the first place. So now I try to avoid antibiotics at all costs. Maybe you just need more baking soda baths? Try them daily, or 2 times a day if you can find the time. 15-20 minutes each time & make sure you get a lot of baking soda "up there". This is just my advice though, after dealing with this for over 4 years now. If you do try more antibiotics, please make sure to let us know if they work! Good luck.

[QUOTE=lujimar;5091209]Hello everyone,

I had a 13 hours of flight on the 30th of October. I was scared, had my cranberry powder ready (cycscontrol) and i had the discomfort but not to bad. And for almost a week i was in heaven. I had started to feel better even before the traveling by baking soda. So i had the courage to have some intimacy with my bf..we only tried!!! he didnt even enter bec i was a bit dry i guess due to stress if the pain will come or not...well yes the next day it was there(usually it's not there right after but maybe 5 hours later or the next day)..applied the baking soda and pre-seed lubricant (heard somewhere that it helps) then the pain went away..of course also took my cranberry powder. I was ok. Then i realized it didnt completely go away..and i tried intimacy again (i dont know why i did this..maybe because i felt that it was coming so i told myself i might as well try sex if the pain will be there regardless)...and yes the last one week was like close to hell...i had seen worse. if i didnt react on time, it would have been worse i KNOW!! Baking soda, pre-seed these didnt work. Again used Donaxyl vaginal tablets. Tonight will be my third night and I'm already feeling disease free...like the good old days, remember those times??? when you completely forget that you have a vagina or urethra down there except when you are peeing or when you are having sex :) im exactly back in my good days. But im not happy because this happened to me before...i had used the tablets and it was gone but a week later it was back with the milky discharge which doctors say nothing other than lactobalisilis.

Here is my theory: I think the urethral problem appears because of the the increased lactobasilis? does anyone know if that can cause irritation in urethra and bladder? Because i think if it doesnt get into the urethra, we wont have any problems. So although we believe we have a bladder problem, in fact we have a vaginal flora problem. This donaxyl table is supposed to kill the BV, any kind...and as u know, normally it kills your good bacteria as well and in some women it causes yeast infection. However for me, they actually give me a relief not a yeast infection. They give me a relief because they kills the good bacteria not because they kill the non-existing BV (that's what the cultures say, no BV). So for a while i feel good but again the good bacteria increases and im in HELL... :( is there a way to stop this stupid good bacteria? I think our body is attacking itself thinking there is a sickness in our vaginas. At some point, the antibiotics must have ruined our regular system..maybe we used the wrong antibiotics. i dont know :( i'm considering augmentine since i heard it helped some people with increased lactobolisis...however I'm trying to avoid it for a while since im scared to take any drugs.. i might also try ornidazol like BITERAL OR ORNISID, in case i have a secret BV. I'm considering this because the vaginal tablet that gives me comfort is also supposed to kill BV and other vaginal infections. What i dont understand is, how come Augmentine works for? whats the difference of it compared to other antibiotics we tried?[/QUOTE]
Hello Kristy,

Well, i changed my mind. Dont have the courage to try the augmentine. The donaxyl tablets are done a few days ago. The last day i started to notice that my milky white discharge turned into a bit greenish yellow and it's not liquid anymore but instead it's like a gel...hmm..i dont want to disgust anyone but like a big buggy. anyway... the normal irritation is gone except when this stuff is trying to get out of my vagina. however the opening is very red and it burns when this gely stuff is trying to come out. Maybe the medicine is cleaning. All i know is im tired of this and it's really crushing my confidence as a woman..i totally feel like disabled. the vagina is not in use but it gives pain..then maybe i should get rid of it, at least i wouldnt feel any pain. I'm certain that the vaginal flora is irritating my urethra and i dont have any problems with my bladder.

I will also try a natural remedy. It's something i did before the last time i felt disease free. I totally forgot about it but maybe it had an effect on me when i used it with baking soda. i had used the onion cleanse. It's supposed to get rid of any kind of BV in vagina so maybe it can cure CV as well. You need to buy normal or small size onions (only the ones with light brown skin, not red, not white) and then cut the onion into 4. Boil these in one and a half glass of good water (not tap) for 5 minutes. You can boil the water in a kettle and then pour it in a pan with onions and boil. Then let is cool. Drink it on an empty stomach. You can drink it warm or cold. However it has to be FRESH daily. You do this in the morning and at night. for the ones who cant do this in the morning then before the meal at night and before going to bed. Try to do this 10 days after the last day of your period for 15days. dont do it while u r on your period. it's supposed to cure POC as well.Then repeat a one week session the next month. It's supposed to reset the vaginal flora. This is not a medical advice, im just sharing my own experience. i didnt have any side effect s but this doesnt mean it will be the same with you. I would recommend stop doing baking soda and just do this to see if it's working.

I'm having a bad day today.. :( it's a bit painful and sore down there.
I have never heard of the onion cleanse... thanks for the info! I'm sorry to hear you're having a bad day. I hope you can find something that helps you feel better soon.

[QUOTE=lujimar;5094468]Hello Kristy,

Well, i changed my mind. Dont have the courage to try the augmentine. The donaxyl tablets are done a few days ago. The last day i started to notice that my milky white discharge turned into a bit greenish yellow and it's not liquid anymore but instead it's like a gel...hmm..i dont want to disgust anyone but like a big buggy. anyway... the normal irritation is gone except when this stuff is trying to get out of my vagina. however the opening is very red and it burns when this gely stuff is trying to come out. Maybe the medicine is cleaning. All i know is im tired of this and it's really crushing my confidence as a woman..i totally feel like disabled. the vagina is not in use but it gives pain..then maybe i should get rid of it, at least i wouldnt feel any pain. I'm certain that the vaginal flora is irritating my urethra and i dont have any problems with my bladder.

I will also try a natural remedy. It's something i did before the last time i felt disease free. I totally forgot about it but maybe it had an effect on me when i used it with baking soda. i had used the onion cleanse. It's supposed to get rid of any kind of BV in vagina so maybe it can cure CV as well. You need to buy normal or small size onions (only the ones with light brown skin, not red, not white) and then cut the onion into 4. Boil these in one and a half glass of good water (not tap) for 5 minutes. You can boil the water in a kettle and then pour it in a pan with onions and boil. Then let is cool. Drink it on an empty stomach. You can drink it warm or cold. However it has to be FRESH daily. You do this in the morning and at night. for the ones who cant do this in the morning then before the meal at night and before going to bed. Try to do this 10 days after the last day of your period for 15days. dont do it while u r on your period. it's supposed to cure POC as well.Then repeat a one week session the next month. It's supposed to reset the vaginal flora. This is not a medical advice, im just sharing my own experience. i didnt have any side effect s but this doesnt mean it will be the same with you. I would recommend stop doing baking soda and just do this to see if it's working.

I'm having a bad day today.. :( it's a bit painful and sore down there.[/QUOTE]
I suffer from IC.And it sucks,I hate going places,cause im scared i will have to pee.I also get pain in lower back and were the bladder is. Im on meds for it,but it only helps a little.I wish the best of luck to you and everyone else.
Hello teacup and kristy, i did some terrible things. After the donaxyl tablets i had a greenish yellow jelly like discharge as i told in my previous post. then i thought it's maybe yeast (i know doesnt make any sense) so i used a tablet for yeast called gyno-lomexin...and yes, this got rid of that greenish yellow..and i just had white clumps for a week (probably the medicine was cleaning)...anyway towards the end, i was red down there and the irritation started to show its ugly face again. Since this yeast infection tablet helped i thought maybe i have yeast infection and tried YOGHURT...OH MY GOD!!! DONT EVER USE IT...and it was home made just as my homeopathic doctor told. i remember years ago having an itchy yeast and i had used yoghurt which has helped a lot but this time I WAS BURNING, IT WAS LIKE THE TERRIBLE FLARE i've ever had. i couldnt even function. Anyway, immediately thought about baking soda..and guess what?? immediate comfort :) the next day even better. I'm all confused. the tablets seemed working but then once they are done the discomfort is back. I didnt have time to do the onion remedy since i'm terribly busy with work..but i will give it a try. Teacup, how is it going with the cream?
it really sounds to me like you should stick with the baking soda. if applying yogurt (which is filled with lactobacillus) made things worse & baking soda makes it better, it really sounds like you have too much lactobacillus to me. i also used to think i had constant yeast infections & i would use the yeast infection treatment cream all the time. at first i think it just kills off everything down there so you get a bit of relief (same as when you start a new antibiotic). but then i think once you use it for a while the lactobacillus starts to come back and take over and i would always end up feeling worse than before.

i'll be interested to hear about the onion treatment if you give it a try, so please let me know. goodluck, and stay away from that yogurt!

[QUOTE=lujimar;5101046]Hello teacup and kristy, i did some terrible things. After the donaxyl tablets i had a greenish yellow jelly like discharge as i told in my previous post. then i thought it's maybe yeast (i know doesnt make any sense) so i used a tablet for yeast called gyno-lomexin...and yes, this got rid of that greenish yellow..and i just had white clumps for a week (probably the medicine was cleaning)...anyway towards the end, i was red down there and the irritation started to show its ugly face again. Since this yeast infection tablet helped i thought maybe i have yeast infection and tried YOGHURT...OH MY GOD!!! DONT EVER USE IT...and it was home made just as my homeopathic doctor told. i remember years ago having an itchy yeast and i had used yoghurt which has helped a lot but this time I WAS BURNING, IT WAS LIKE THE TERRIBLE FLARE i've ever had. i couldnt even function. Anyway, immediately thought about baking soda..and guess what?? immediate comfort :) the next day even better. I'm all confused. the tablets seemed working but then once they are done the discomfort is back. I didnt have time to do the onion remedy since i'm terribly busy with work..but i will give it a try. Teacup, how is it going with the cream?[/QUOTE]
I've had a lot of problems with my bladder, leaking, feeling like I have to go all the time. I've had Ultrasounds, Cystoscopy, and other tests over the years. They finally did a Urodynamic study which showed I have an Atonic Bladder. That wasn't very comforting to find out my bladder doesn't receive the nerve signals from the brain anymore and I have to use my surrounding muscles to empty my bladder or self-catheterize! I run out of breath several times before I can get my bladder emptied. So I don't know if you've tried a Urodynamic Study but it shows several things. Maybe you might want to try that?
Good Luck with your problems Hugs and Prayers





All times are GMT -7. The time now is 01:25 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!