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Acid Reflux / GERD Message Board


Acid Reflux / GERD Board Index


I could really use some help/advice, my throat is burning so much I can barely speak, I'm seriously considering learning sign language after spending most of last week writing notes to people instead of talking.

This is my first post even though I've been lurking here for a year or two, I'll try and keep it brief.

I am 35. My primary symptom is a burning at the back of the mouth on the soft palate just above the uvula, gets worse with speech. I'm told this is due to LPR/GERD even though I don't get heartburn or other symptoms apart from some bloating, I can believe this though as usually it's the most sore upon waking.

I've tried all the standard treatments including the following:

- Elevating bed, avoiding trigger foods, not eating 5hrs before bed, losing weight (I'm already skinny).
- 11 years of different PPI's at max dose (still on them) + Gaviscon.
- Nissen Fundoplication operation 4 years ago, no change at all to the burning.
- Operation: removed tonsils and coblated/ burned off the affected area (in the hope it would grow back normally like in burning tongue syndrome: it didn't).
- Numerous endoscopies, all normal, I do have vocal cord paresis recently fixed with a juvederm/hyaluronic acid injection. Vocal cords still very mucousy (sign of Reflux).
- 8 years of constant diets: Alkaline, vegetarian, gluten-free, very low carb, paleo/GAPS etc.
- Many supplements.
- Nerve drugs for LSN (Laryngeal Sensory Neuropathy): Amitriptyline (Elavil), Gabapentin, Lyrica, Nortriptyline. Amitriptyline did seem to help a bit but gave me weird mood changes and Tinnitus.
- Thoroughly investigated the 'GERD is caused by [I]not enough[/I] stomach acid' theory. I do seem to fit this profile but the treatments don't work, taking HCL/digestive enzymes/bitters capsules just burns my throat.

I've been to 5 different ENTs, numerous speech therapists and spent a fortune on alternate practitioners, nothing has helped. I feel quite desperate.





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