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Acid Reflux / GERD Message Board


Acid Reflux / GERD Board Index


Hi there. First of all, you need to try and relax a little bit. You are not alone here and people will try and help you. (HUGS). There, now that you have been hugged, let me say I have been going through the SAME exact thing for several months.

I have had the mucous thing in my throat that I cant bring up or down and just sits in my throat. It is annyoing at best, frightening at worst.

I went to my regular doc, told me "allergies". No improvement. So I finally saw an ENT (ear nose throat) doctor. He did two simple scopes on me and said my larynx was red and swollen. he diagnosed me with a form of reflux called LPR. This is different from GERD because most people who have LPR dont have heartburn.

The main symptoms of LPR reflux are: constant throat clearing, post nasal drio, excessive phlegm in throat, etc.

I would make an appt with an ENT.

Hope you feel better. You are not alone.
XO
MDB- Do you have any problem getting the mucous up? Do you think its more of just a sensation that the mucous is there? Is the cough deep or more superficial? Can you explain what you mean about your lungs being sore? You mean the muscles in your chest orback or actually your Lungs?

I would definitely go to an ENT. He could definitely help you.

LPR is a laryngophareangeal reflux (spelling, lol). Anyway, its a form of acid reflux that differs from GERD. The acid actually backflows into the voicebox, which is what causes the problems. Many people with LPR dont have heartburn.

Its good you are on NExium. You may need a higher does if it is LPR. Nexium is also a PPI, which is the treatment of choice for LPR. SOmetimes, its 6months before results are seen.

Hope you feel better.
wow, that is exactly the way I felt. always wondering if the mucous caused the irritation...
or the irritation caused the mucous...

ive eventually come to the conclusion...that there is a little mucous..but mainly its just
a sensation..so you feel like you need to clear it..but in reality there isnt much mucous.

my take on the 6+ months..im very suspicious..thats really true..im thinking it might take 6 months depending on the nature of the damage..in my case i dont actually have that much damage..the ENT sees redness at MOST, if it werent for my symptoms I wouldnt have any problems.

Have you noticed ANY improvement since youve taken the PPI's?

like I said earlier i am going to try a more aggressive treatment, ill tell you how that goes.

there probably are ways to treat ur symptoms more directly..but my guess they will
make the reflux ultimately worse..i am curious have you taken claritin at all?








[QUOTE=Neverenoughslee]I'll give that a try. I';m pretty close I think with my morning dose, but way off with my night dose.

The thing that is most frustrating for me is, the symptoms. I dont understand how there is NOTHING they can give me for the symptoms. I am wondering how much muscous is ACTUALLY in my throat, or if its just a sensation from the larynx being inflamed from acid? I am sure the inflamation causes mucous as well, but I am wonering if the sensation is mostly from inflamtion and not actually the mucous? Whats your take on that?

Also, whats your take on why they say it takes the PPI's 6+ months to work in most cases? How do you cope?[/QUOTE]
First of all, its great speaking with you on this. Its nice to find someone who can relate.

Regarding what you said about the mucous. I wonder too if its more the sensation and the need to clear my throat. I think for me, anxiety makes it seem worse. As humans, we are not "supposed" to feel anything foreign in our throats. So the sensation from the irritation, mixed with whatever mucous IS there, casues me to focus on those sensations, thus possibly making it seem worse than it actually is.

I become more aware of it when I eat. Not sure why this is. It actually feels like there is more mucous as I eat. I also notice my saliva is thicker.

I was on Protonix once a day for about 5 weeks with no improvement. I did alot of research in some medical journals, and read that once a day for LPR is basically useless. I also read that treatment cannot be considered a failure until patient has been on 2x a day for atleast 6 months. My ENT agreed with this, and thus upped my doseage to 2x day...which has now been 3 weeks. I thought I saw an improvement after 2 weeks for about 5-6 days, then symptoms came back in full force. So I am not sure if it was the PPI or just the intermittent cyclical nature of the disease.

I wonder how long this has been creeping up on me. I can remember back to 10 years ago, when I had VERY intermittent occasional symptoms of this nature that disappeared for years at a time. Then 2-3 years ago, it came more frequently, but again, disappeared. Then symptoms reappeared about 6 months ago, and have stayed since.

I had two scopes, and doctor said he saw red and swollen larynx. What else could he have seen to indicate if the disease had progressed further?

I have not taken Claritin. Have you? How long have you had your symptoms. And also, I dont think you answered (if you did, i apologize)- but do you have your symptoms every day?

Oh, one more thing I have noticed. Over the years, I notice i tend to have a "sensitive esophogus". Meaning, when I eat, I tend to feel that food gets stuck more often, though I dont think it actually is. I wonder if there is a correlation.
Well, I am probably the wrong person to ask "how sure I am of the diagnosis"...I am a very analytical person, and need to have things make methodical sense to me. Since this isnt something I can touch, see, or feel, I have overall trouble with the diagnosis. But to be honest with you, I dont know what else it could be. I cant find much else in my research that really jives with what I have. I did go to my GP for an overall physical and battery of blood tests.

Did you GI tell you what else can cause these symptoms?

I have not found anything that seems to help. Actually, sleeping helps. Its the only time I can really forget about it. It doesnt wake me up in the middle of the night. But I do begin to notice the symptoms again upon wakening. Sometimes, when I first wake up I have some burning in my throat. But thats an on and off thing, and usually disappears pretty fast after i drink some water.

I read about that ph test and it doesnt sound all that fun to me. LOL. I am not good with tubes down the throat. How the heck do you have it down your throat and not gag to death? And I read "patient can go about daily activities". I would find that hard to believe? You obviously cant eat, can you?

So you are completely off the PPI's now? And just going to use the Zantac? I told you I did the Zantac for about 2 weeks and found no resolve. But again, I just dont know what is too short or long enough with any of these therapies. Are you still seeing an ENT?

I dont have too large of a family, but I think my father has had regular heartburn GERD and has used Nexium. I dont know much else than that.

I found a place near me called "The head and neck center". I called there today and made an appointment. I am going to just go in with a blank slate and get a second opinion.

This may sound like a crazy question, but do you think its possible for the mucous to accumulate enough to block my breathing...or do you think thats just more of a sensation?
Suggi,

I am really wondering if maybe some of your esophogus symptoms are not due to med combinations? I have read that alot of drugs interact, not in a dangerous way, so they dont tell you, but enough to react and cause side effects.

I really want you to get someone, even if its a new doctor, and take ALL your records to him, along with a list of all your current meds and all your current Symptoms. I think really there is hope for you to feel better! I know not everything can be helped, but I wonder if you need a medicine eval and rearrangement.

Also, some meds can nullify effects of others. This happened with my father.

I am here if you need to talk anytime.
[QUOTE=Neverenoughslee]First of all, its great speaking with you on this. Its nice to find someone who can relate.

Regarding what you said about the mucous. I wonder too if its more the sensation and the need to clear my throat. I think for me, anxiety makes it seem worse. As humans, we are not "supposed" to feel anything foreign in our throats. So the sensation from the irritation, mixed with whatever mucous IS there, casues me to focus on those sensations, thus possibly making it seem worse than it actually is.


I TOTALLY UNDERSTAND how you guys feel. I honestly believe it's just a little bit of mucus in our throat. The other day I had hacked up a ball of mucus, spit it out, and felt a huge sense of relief! For a few minutes I felt like I had nothing stuck in my throat. Then, it came back and felt miserable.

I just dont understand where the mucus is coming from? Does our body produce it to protect us from the irritation?
Hi Ginger. I have the same problem with bending down! Also, with sitting improperly or twisting ... I feel the acid in my nose! The GI doesn't take me seriously because the endoscopy only showed a little inflammation. I'm barely 40 and I can't see taking these drugs for the next (hopefully) 40+ years. I think I'll have to push my doctor to give me the tests I need (ph, motility, etc.) so I can talk to surgeons on my own. It is so frustrating!!





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