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Acid Reflux / GERD Message Board


Acid Reflux / GERD Board Index


[QUOTE=Zoe26;3972845]I'm begging anyone with any knowledge about acid reflux or anything close to it for advice.

Since November 1st, I suddenly felt very nauseous while out one night with my friends. Had dinner and a drink and was driving around. Came home feeling very sick, assuming I was going to throw up due to eating something bad, a stomach virus, or even suffer from a Vertigo episode. I have 2 times in my life suffered from an acute Vertigo episode. Once 5 years ago, dizziness lasted only a couple days, and once in the Summer of 08, dizziness was more severe and lasted a couple weeks, but eventually went away. Having done several tests with ENTs, they never really found anything wrong with me or gave me any answers besides, "This just happens to some people, it's unavoidable, and it might happen again. Maybe you just have sensitive inner ears." My hearing tests and things all came out fine. In my ER report, they called it "Viral labyrthitis."

ANYWAY, I did not throw up that night despite wanting to. I forced myself to somehow sleep and woke up feeling just as nauseous. This feeling of nausea stayed with me for several days until I saw my general doctor who only prescribed me Zofran for a week. It didn't help much.

Long story short, I saw several ENTs, gastros, neurologists, etc. I even saw an allergist and discovered I have high environmental allergies (despite never feeling symptoms of this) but apparently no food allergies. I tried Pepsid. Then a sample of Aciphex for a couple weeks, while being on Meclizine, which is a medication for Vertigo. I'm not quite sure why I was on that, but one of my doctors was desperate to make me feel better so said I should just try it.

I got by for a month or two like that. Didn't feel 100% but was better.

Suddenly I felt extremely nauseous again, the worst. Gave up the meclizine, as I was not feeling dizzy this entire time, never threw up, and decided it had nothing to do with my Vertigo.

Saw a gastro doc who did an endoscopy, which was normal. At that point, I was so SICK I had completely lost my appetite, was losing weight, had to have my mother force food down my throat, so something was wrong. I took Reglan for a week, still felt sick on it, but actually felt better once I came off of it - since I had to in order to do my Gastric Emptying Study, which, guess what, came out normal.

I finally saw an ENT who looked up my nostril down into my throat and claimed I had severe acid reflux, allergies, and sinus issues. I was given a strict regimen:

-Neil Med sinus rinse twice or three times a day
-Allegra, once at night
-Clonazepam, 0.5 mg, 3 times a day (he claimed this was for the stomach, while I was aware this is a medication for anxiety, which I never suffered from)
-Nexium 2x a day
-Nasacort, one spray each nostril, 2 x day
-Bland diet, no caffeine, alcohol, spicy or fried food, smoking, etc.

Luckily, after a couple days, I immediately felt like 75% better. It was a relief because I felt literally deathly ill before, bed-ridden, and unable to eat. I felt much better, but still was not 100%.

Since then I've still been on ALL these medications, which has been at least 4 months now. I have not gotten better, but kind of worse again. I'm now on Kapidex twice a day, and switched to Nasonex since it's cheaper and apparently the same thing as Nasacort.

I still go to several doctors weekly to figure out what's wrong. I've done MRIs of the brain, sonograms of the stomach, throat, you name it...all normal. "Nothing is wrong with me."

Yet I still feel perpetual nausea. Like every moment of every day. It never goes away. It doesn't matter what I eat or drink. Nothing makes a difference. There are days, weeks, that I feel fine. And then suddenly days or weeks that I feel completely nauseous again. I can not find ANY pattern to what causes the nausea.

I don't drink, smoke, have coffee, eat tomatoes or spicy food, stopped sushi, chinese, chocolate, eat less processed and salty foods now. But I've always been a healthy eater and never smoked or drank heavily anyway. I used to jog often, but now can barely get through the day functioning like a normal human being to even make it to the gym for a walk.

I can NOT be on this high dose of medication for this long and still feel sick. This is not normal. There is something wrong and the fact that no one can find it and no medication works literally depresses me to death. I cry every single day cause I don't feel well enough just to go hang out with my friends and be normal.

At this point, if I don't feel just plain nauseous (that feeling like you have to throw up, but I never do), I just have a feeling of a lump in my throat or difficulty swallowing. There is something definitely in the throat area. My stomach never hurts and I don't feel heartburn.

I know this was the longest post ever, but I'm so desperate for help. Please, I beg someone to give me any advice they can. Share your knowledge. Suggest whatever.

I can't live like this. I'm only 29, about to turn 30, and have spent the last 6 months of my 20s feeling like I'm 80 and suffering from cancer. I'm extremely depressed and cry constantly and can't live a normal life.

Anyone?????






.[/QUOTE]


Did this ENT CT scan your sinuses? Chronic sinus issues will make you feel like crap + cause chronic fatigue. If this is not a spasm issue in your throat, and I believe it is, but otherwise, you can have constant ongoing pain in your throat simply from the sinus/allergy/post-nasal drip issues. Reflux can also make your throat chronically hurt.

A normal gastric emptying study does not mean reflux doesn't exist. Mine was normal, and I've had SEVERE reflux. Even an endoscopy cannot pick up the fact that your throat muscles are tightening and going into a spasm. That is something a doctor isn't going to see on a test.

Try Levsin for that pain. You can even try Flexeril or Skelaxin if that doesn't help but I'd recommend that first. Flexeril is actually my fave muscle relaxant.

Promethazine, I always had great success with that for nausea, using the suppository, not the pill form.

The fatigue I go through makes me cry like you are talking about but I only do it on my worst days. I feel like my body has aged to 150 and wants to die. Being eat up with cancer, I wouldn't be shocked by either. When I was in physical therapy, they said my body had aged twice of my actual age.

I think we both need to learn a good way to cope with our health problems, I know how it can drive you mad.

You need something to make you feel better. Try a switch in medications, you might consider therapy to have someone to talk to about how down this is making you feel, and maybe physical therapy to try and build your strength back up.

I'll quit being a pest now, but I hope this helps ya.
[QUOTE=neveragain444;3977454]Did this ENT CT scan your sinuses? Chronic sinus issues will make you feel like crap + cause chronic fatigue. If this is not a spasm issue in your throat, and I believe it is, but otherwise, you can have constant ongoing pain in your throat simply from the sinus/allergy/post-nasal drip issues. Reflux can also make your throat chronically hurt.

A normal gastric emptying study does not mean reflux doesn't exist. Mine was normal, and I've had SEVERE reflux. Even an endoscopy cannot pick up the fact that your throat muscles are tightening and going into a spasm. That is something a doctor isn't going to see on a test.

Try Levsin for that pain. You can even try Flexeril or Skelaxin if that doesn't help but I'd recommend that first. Flexeril is actually my fave muscle relaxant.

Promethazine, I always had great success with that for nausea, using the suppository, not the pill form.

The fatigue I go through makes me cry like you are talking about but I only do it on my worst days. I feel like my body has aged to 150 and wants to die. Being eat up with cancer, I wouldn't be shocked by either. When I was in physical therapy, they said my body had aged twice of my actual age.

I think we both need to learn a good way to cope with our health problems, I know how it can drive you mad.

You need something to make you feel better. Try a switch in medications, you might consider therapy to have someone to talk to about how down this is making you feel, and maybe physical therapy to try and build your strength back up.

I'll quit being a pest now, but I hope this helps ya.[/QUOTE]

One of my ENTs suggested a CT scan cause he saw that I was still apparently very congested even while on all these nasal and sinus and allergy meds. I just don't like to do cat scans unless they are absolutely necessary and this seems like an unnecessary test. What would he find in there anyway? And for it to be accurate, I'd assume I'd have to get off all my medication, which again, scares me to death cause I'm scared I'll suddenly get back to feeling horribly nauseous like in the beginning.

The confusing thing is, my original symptom was nausea. Now on all the meds, its just the throat thing. So I don't know what my REAL symptom is to base my diagnosis on. It's getting very confusing. Whatever the case, my doctors covered every base of what could be causing this problem, and I still feel sick, so what the hell????? That's all I want to know. Why isn't anything working? What else can it be, what else can I do, it's like neverending with trying all these meds for months and months and not getting better, only causing my frustration and depression and messing with my body.

Btw, about sinus issues, I never noticed having any before this. Can you have chronic sinus problems with no noticeable symptoms until suddenly?

Anyway, thanks again, Never again.
[QUOTE=Zoe26;3978546]One of my ENTs suggested a CT scan cause he saw that I was still apparently very congested even while on all these nasal and sinus and allergy meds. I just don't like to do cat scans unless they are absolutely necessary and this seems like an unnecessary test. What would he find in there anyway? And for it to be accurate, I'd assume I'd have to get off all my medication, which again, scares me to death cause I'm scared I'll suddenly get back to feeling horribly nauseous like in the beginning.

The confusing thing is, my original symptom was nausea. Now on all the meds, its just the throat thing. So I don't know what my REAL symptom is to base my diagnosis on. It's getting very confusing. Whatever the case, my doctors covered every base of what could be causing this problem, and I still feel sick, so what the hell????? That's all I want to know. Why isn't anything working? What else can it be, what else can I do, it's like neverending with trying all these meds for months and months and not getting better, only causing my frustration and depression and messing with my body.

Btw, about sinus issues, I never noticed having any before this. Can you have chronic sinus problems with no noticeable symptoms until suddenly?

Anyway, thanks again, Never again.[/QUOTE]

A CT scan can reveal why you are so congested, whether it be sinus related, your nasal turbinates, a deviated septum or such. No you should not have to get off of all your medications for this test to be accurate, especially if the congestion is that bad. I guess it may not necessarily reveal anything if it is strickly allergy related. But your better off knowing, and then you could take it from there, as far as what to do. I would figure sudden problems are probably more of an acute issue, I don't know.

If this throat problem didn't occur until you started taking medications, and well if the problem is infact a tightening in your muscles, it could possibly be a side effect from one of your medications. The one reason I warned you against nortryptyline is because a side effect of it is muscle spasms. I also hate antidepressants, I have never taken medications with such horrible side effects & well it's just my own personal opinion, if they help other people, that's great, they did not help me though, esp with my mood. I really suffered through some horrific pain taking those type of medications. But I was also on one too many medications so it did not go over well. Nortriptyline was one that caused the drug interaction I had that was so bad. It reacted with my Ambien & Buspar. I had it tested and know it for a fact. I do not think it is safe to take that type of medication while being on several others. However, my body does not absorb medications normally, it's a defect, other people may not have. I also overdosed on zoloft like 9 years ago. I have nothing good to say about antidepressants, personal opinion. Other people may very well feel different about that.

I hate Nexium. I mean hate it hate hate hate. It does not at all phase my reflux issues. Aciphex & Prevacid are the only two I've had luck with, but sometimes they don't even work. I had to stop taking Prevacid though, it causes me to get really bad spasms in my bladder, so Aciphex is my only choice. Plus my dr said it was okay to take Zantac & Mylanta with it. Which helps.

I get that tightening pain in my esophagus & neck, and it feels like food gets stuck. It's a horrible feeling, but I know it's being brought on by inflammation. If your doctor looks down in your throat and sees that it's all red, very very likely that irritation is causing your muscles to tighten, thus bringing on the feeling of a lump in your throat. It can also cause difficulty swallowing. Can even take your breath.

But still, there is a possibility that one of your medications are causing it as a side effect.
Zoe26,

I can feel your pain and suffering. I am sorry. I had LPR at the age of 22. Been suffering it for 5 months already. Every morning when I wake up hoping the lump feeling in my throat and the red bumps in my nose cause by the stomach acid will go away. Doesn't seem like it is happening. I am on PPI now for a week, still no sign of improvements or relief. Looks like I will have to live with the chronic red inflammation forever. The red bumps doesn't seem to be reducing, it just looks like it just stays in there in my tissues. I am so young, looks like i'll be waiting for nose, throat, esophagus cancers someday. I am very depressed and been constantly crying too, because I feel like I could not do anything to help myself and the symptoms I am having and I feel tired since I don't feel normal in the throat and nose. But guess what, i did my best already to treat and medicate myself. I wished I had my normal life back, but I know life still goes on everyday. My nose and throat never felt normal or right anymore. I feel hopeless and desperate as well. I know it's hard and difficult to make yourself happy when you feel miserable everyday living with this acid reflux disease, because I am feeling like that now. LPR disease really brings me down. The thing was I wasn't sure what will happen to me. The thing I know was, the more I think about cancer and feeling hopeless, the more depress I grew everyday. Just try to keep yourself from thinking too much, because the doctors already tried everything to help you. Although, I have been on PPI medication for a week, but not sure if that is helping with my LPR disease. I also want to stop using it and just give it 1-2 months to see if it works or not, since it causes bone fractures. PPIs were never meant to be taken for a long time, maybe just 8 weeks.





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