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Acid Reflux / GERD Message Board


Acid Reflux / GERD Board Index


Hello all,

I made a few posts on Rosebloom's thread and I believe my talking about my issues on her thread may have been what had it closed down. I apologize Rose - that was not my intention. So I was going to start a blog but due to my Newbie status, I can not, so here I am with this thread.

I was on Nexium for almost 3 years, 40mg per day. The nexium worked very well for me in regards to my heartburn. A few months ago I wanted to see if there was a way to stop the medication, more because I didn't like to be on medication long term if it wasn't necessary. When I began reading some of the long term side effects, I was shocked. I had several of these symptoms over the past year, including the following:

eye twitch
muscle spasm
joint pain
headaches
carpal tunnel symptoms
extreme swelling of joints
neck pain
swollen collarbone
foggy head
sleepiness
skin eruptions

A few years ago, I had an episode of anxiety. At the time I didn't understand what was happening but have recovered almost completely from that. I thought the symptoms above were physical manifestations of stress (which I learned about through my anxiety). Needless to say, I was shocked to see they were more than likely caused by the Nexium.

I quite cold turkey five weeks ago today. It has not been fun, quite awful actually. I have heartburn every day to some degree and a burning throat. These symptoms are more severe than what I had before I began the Nexium. I am also suffering from insomnia since stopping the Nexium.

I have tried a few different approaches to OTC meds and what seems to work best for me is taking a Pepcid Complete and then some Tums during the day. I tried Zantac but it gave me a headache. Today I tried taking nothing and it was awful. I had to take a bunch of Tums until I had Pepcid around noon.

My question today is that I have also been reading that H2 blockers and some Antacids also have a rebound effect related to them. I realize that right now my body can not just have nothing - it need some help. So does anyone know if the rebound is valid with H2 and are non-calcium based antacids better than the calcium based? I would love to hope that one day I will be free from some or all of this and want to take the meds that will best help me get there.

Today was really awful. I need some hope that this is going to get better. I am so tired of feeling poorly. I am hanging in there, but it isn't easy.

Thanks.
[QUOTE=LMF123;4244204]Rose,

You are a beacon of light and hope in this dark place known as acid reflux! Thank you for your continued support.

I am not giving up - really for the sould reason that I could not go through this withdrawl/adjustment again. There is no way I could subject myself to that.

I bought some DGL supplements to chew - they taste awful! Do you have a brand you could reccomend? I also believe you mentined lozengers - I am in Canada and have not seen them but could get from US. Also, with regards to the Apple cider vinegar, when do you take that?

I am juggling all my supplements timed with Pepcid so they don't counteract. I am also on antibiotics for a sinus infection so I have to time that also.

I am hanging in......[/QUOTE]

Hi LMF123, I was going through some of your threads and you mentioned something about throat irritation. I have the exact same symptom after discontining achiphex. I am currently on my 9th week of the ppi rebound and the throat irritation is still there. Thankfully not much heartburn.I have high levels of anxiety due to this and sleep very little. Please let me know how your throat symptoms are and how you managed to keep it under control.
Hello Xee,

I had a ridiculously busy week so I didn't get to my week eight update. Monday will be week nine off Nexium and I am feeling much better just in the last few days. I had relentless heartburn as the main rebound symptom. This has eased over the past week. The two biggest changes I have made, and again, I don't know if it is just the rebound finally settling down or a combination of what I am doing. Over the past two weeks I have cut carbs down considerably. I still eat one serving, either bread with a sandwich or a bit of brown rice, plus fruits (apples are tolerated best by me right now). I also started drinking the apple cider vingear (thanks again Rosebloom) twice a day diluted in water. I enjoy a oil and vinegar dressing so I actually don't mind the taste. The last two days (knock on wood), I have had no heartburn at all. I also take cal/mag supplements 3 x per day. Yesterday I actually said to myself, "I feel pretty good" and I don't know when the last time that was (both with Nexium side effects and then the rebound). I hope I have turned a corner.

With regards to the throat irritation, I still have this, more so now at night than all the time. I wake up with a dry throat and of course your mind races and you wonder if it is the reflux throwing a flame into your espophagus. Xee, I suffered from anxiety a few years ago (have you read Charles Linden's book? That book saved me from anxiety and medication and I have not had anxiety like that again). I know how a symptom can lead you to panic and awful thoughts. I keep water by my bed and sip on it. I am usually so tired from my days that I go back to sleep. When it was at its worst, I would suck on lozenges in the night also. For me, as the heartburn has subsided, so has the throat irritation. I have never really suffered from night time reflux so the throat was a concern. I am hopeful that it is getting better as the heartburn is reduced. Try to be calm and not jump to the worst conclusions. If I can answer any other questions, please let me know. I am glad someone other than Rose is finding my comments useful.

Be well.
[QUOTE=LMF123;4251179]Hello Xee,

I had a ridiculously busy week so I didn't get to my week eight update. Monday will be week nine off Nexium and I am feeling much better just in the last few days. I had relentless heartburn as the main rebound symptom. This has eased over the past week. The two biggest changes I have made, and again, I don't know if it is just the rebound finally settling down or a combination of what I am doing. Over the past two weeks I have cut carbs down considerably. I still eat one serving, either bread with a sandwich or a bit of brown rice, plus fruits (apples are tolerated best by me right now). I also started drinking the apple cider vingear (thanks again Rosebloom) twice a day diluted in water. I enjoy a oil and vinegar dressing so I actually don't mind the taste. The last two days (knock on wood), I have had no heartburn at all. I also take cal/mag supplements 3 x per day. Yesterday I actually said to myself, "I feel pretty good" and I don't know when the last time that was (both with Nexium side effects and then the rebound). I hope I have turned a corner.

With regards to the throat irritation, I still have this, more so now at night than all the time. I wake up with a dry throat and of course your mind races and you wonder if it is the reflux throwing a flame into your espophagus. Xee, I suffered from anxiety a few years ago (have you read Charles Linden's book? That book saved me from anxiety and medication and I have not had anxiety like that again). I know how a symptom can lead you to panic and awful thoughts. I keep water by my bed and sip on it. I am usually so tired from my days that I go back to sleep. When it was at its worst, I would suck on lozenges in the night also. For me, as the heartburn has subsided, so has the throat irritation. I have never really suffered from night time reflux so the throat was a concern. I am hopeful that it is getting better as the heartburn is reduced. Try to be calm and not jump to the worst conclusions. If I can answer any other questions, please let me know. I am glad someone other than Rose is finding my comments useful.

Be well.[/QUOTE]

Hi LMF123, Thanks for those kind words. This whole thing has been one hell of a roller coaster ride. The throat irritation started as soon as I got off Achiphex.I was on it for only 2 months so I can't understand why its taking so long to get over it. I have to take a gaviscon pill after every meal just to avoid the throat irritation. I sleep with 3 pillows and eat atleast 3 hours prior to bed time. Sometimes I wonder if this thing is really withdrawal or do I have to live with it for the rest of my life. The funny part is I feel a little better every 2 weeks or so and then it gets bad again. Maybe its my diet or maybe the rebound has to cycle itself down to normal levels. Anyway thanks for sharing your experience about anxiety I shall try the linden method. I had already head his tapes but was a little skeptical to try it. Please keep me posted on your progress.It is definitely comforting to know there are others with throat issues due to reflux.
[QUOTE=LMF123;4251179]Hello Xee,

I had a ridiculously busy week so I didn't get to my week eight update. Monday will be week nine off Nexium and I am feeling much better just in the last few days. I had relentless heartburn as the main rebound symptom. This has eased over the past week. The two biggest changes I have made, and again, I don't know if it is just the rebound finally settling down or a combination of what I am doing. Over the past two weeks I have cut carbs down considerably. I still eat one serving, either bread with a sandwich or a bit of brown rice, plus fruits (apples are tolerated best by me right now). I also started drinking the apple cider vingear (thanks again Rosebloom) twice a day diluted in water. I enjoy a oil and vinegar dressing so I actually don't mind the taste. The last two days (knock on wood), I have had no heartburn at all. I also take cal/mag supplements 3 x per day. Yesterday I actually said to myself, "I feel pretty good" and I don't know when the last time that was (both with Nexium side effects and then the rebound). I hope I have turned a corner.

With regards to the throat irritation, I still have this, more so now at night than all the time. I wake up with a dry throat and of course your mind races and you wonder if it is the reflux throwing a flame into your espophagus. Xee, I suffered from anxiety a few years ago (have you read Charles Linden's book? That book saved me from anxiety and medication and I have not had anxiety like that again). I know how a symptom can lead you to panic and awful thoughts. I keep water by my bed and sip on it. I am usually so tired from my days that I go back to sleep. When it was at its worst, I would suck on lozenges in the night also. For me, as the heartburn has subsided, so has the throat irritation. I have never really suffered from night time reflux so the throat was a concern. I am hopeful that it is getting better as the heartburn is reduced. Try to be calm and not jump to the worst conclusions. If I can answer any other questions, please let me know. I am glad someone other than Rose is finding my comments useful.

Be well.[/QUOTE]

Congratulations on your progress and sticking to your plan. I am now completely medicine free. I don't know for how long, but I have managed to be off Aciphex since January and Zantac for about two weeks. This rebound lasts many, many weeks. I am so glad to hear you are making good progress.

Rose
Hello everyone,

Well, I am at week 18 off PPI's and still struggling. I seem to be getting burst of heartburn almost daily, despite what I eat or drink. I am taking Pepcid AC regularly and some days have to add Tums into the picture. I also have developed very runny eyes, which are not allergy related. It is really getting to me to the point where I am afraid if damage is being done. I am off on vacation for two weeks and really hope it is manageable and does not bring me down. When I return, I may discuss options with my doctor.

Are there any "less" dangerous PPI's than others? I really don't want to go back to them, but I am afraid of what is going on in my body. This causes me some anxiety.

Hope you are all doing well.
[QUOTE=LMF123;4296959]Hello everyone,

Well, I am at week 18 off PPI's and still struggling. I seem to be getting burst of heartburn almost daily, despite what I eat or drink. I am taking Pepcid AC regularly and some days have to add Tums into the picture. I also have developed very runny eyes, which are not allergy related. It is really getting to me to the point where I am afraid if damage is being done. I am off on vacation for two weeks and really hope it is manageable and does not bring me down. When I return, I may discuss options with my doctor.

Are there any "less" dangerous PPI's than others? I really don't want to go back to them, but I am afraid of what is going on in my body. This causes me some anxiety.

Hope you are all doing well.[/QUOTE]

I LMF:

I read your post and totally sympathize with you.

My rebound lasted three entire months almost to the day. Then things settled down a bit. However, it is not smooth sailing. I have more recently had what I call a "relapse" where I too have experienced heartburn daily irrespective of what I eat or not eat. Yesterday, for example, I had a banana for breakfast (maybe too many sugars and carbs) and that sent me into a tailspin of heartburn and a sore throat for the entire day. I finally took a 150 mg Zantac when I got home and that calmed things down. But neither the ACV or the DGL touched my heartburn yesterday. I was pretty down. Today has been a calm day so far with no hearburn, but I have also not eaten anything yet, except a little almond milk in the morning. I was pretty tempted to return to the PPI's yesterday. Except, I have vowed to take one day at a time and accept I'll have good days and bad days if I am off the PPI.

I think all PPI's are pretty much the same in terms of their interference with calcium and other nutrient absorption. What makes them so effective in cutting stomach acid is what also turns them into a double edge sword, i.e., the less stomach acid the less effective nutrient absorption is.

Hang in there. The symptoms for me seem to come and go. This week has not been good. I had a decent Saturday and Sunday and then Mon, Tues and Wed were not good. I also had quite a bit of pressure and stress at work and I know that does not help. Now things are winding down for the week and all seems calmer including my tummy.

Rose





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