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Acid Reflux / GERD Message Board


Acid Reflux / GERD Board Index


[QUOTE=rosebloom;4292948]I see I last posted here about a month ago. It has not been a straight line no matter how many remedies I try. I seem to be going through a bad spell right now. I have had two or three days of pretty constant moderate heartburn, so I have gone back to Zantac 150 mg twice a day to relieve the burn and irritation. I had been doing OK with periodic heartburn every so often, but tolerable. But I seem to have experienced a setback in spite of my modified diet, DGL, magnesium supplements, liquid calcium, ACV, etc. There is nothing I have done to bring back the heartburn. That is, no alcohol, no sodas, no caffeine, still a fairly low carb diet, etc. So, this is frustrating.

I think this must be the progression of the natural disorder when one is without medication. It is frustrating but I am resigned to keep working on it and pretend PPI's don't exist unless this really gets out of control.

This is definitely not a linear thing. It seems like one has periods of less symptoms and then relapses like the one I have been experiencing over the past couple of miserable days. I finally had to accept the situation and take the Zantac again because my stomach was burning for hours at a time.

I am jelous of those who post that they have been "cured" by any particular thing, i.e, ACV, Magesium, etc. I don't seem to be experiencing such luck no matter what I try.

I'll keep posting periodic updates until the post is closed, but this is where things stand today approximately seven months from the time I stopped taking the PPI.

Hopefully, I'll be able to get "this" under control again in a few days.

Rose[/QUOTE]

You hang in there, Rose. I can see it gets you down at times. If only it could be easy for everyone.

For myself, I am taking it slow. I went from Aciphex to Omeprazole and I'm doing that on a 2-day on, 1-day off for a while. Then I'll go to every other day for however long that takes. My days off I don't need to take anything unless my anxiety is at the "red" level, which it seems to be these days. I, too am taking Magnesium, liquid calcium/VitD and sticking to my modified diet. If I need anything for a little burn I go for the DGL or even Tums and try to stay away from Gaviscon because of the aluminum.

Someday we'll both be on here telling our story how we beat this thing and helping others do the same. :)
[QUOTE=Flyerfan;4293124]You hang in there, Rose. I can see it gets you down at times. If only it could be easy for everyone.

For myself, I am taking it slow. I went from Aciphex to Omeprazole and I'm doing that on a 2-day on, 1-day off for a while. Then I'll go to every other day for however long that takes. My days off I don't need to take anything unless my anxiety is at the "red" level, which it seems to be these days. I, too am taking Magnesium, liquid calcium/VitD and sticking to my modified diet. If I need anything for a little burn I go for the DGL or even Tums and try to stay away from Gaviscon because of the aluminum.

Someday we'll both be on here telling our story how we beat this thing and helping others do the same. :)[/QUOTE]

Well, after two miserable days, I have had a pretty decent day today. Nothing like a heartburn-free day to lift my spirits again. I'll keep at it with my ACV, DGL and calcium/magnesium supplements and trying to avoid the known triggers. I can put up with the periodic heartburn if at least I know it will not be a daily thing. I did not take Zantac today. I guess I will save it for those bad days and take it as needed.

Thank you for checking in and your words of encouragement.

Rose
Rose, are you out there?
Was wondering how you are doing. Is your situation the same?
I have been off PPI's for about 3-1/2 months and I WAS doing fine. The past few days, however, have been not so good. I have been having mild to moderate heartburn and popping the DGL and Tums and I'm thinking about taking a Zantac right now. I'm still seeing my ND about this and want to consult with her about why I would be having a setback. It's frustrating...I was doing real well and I kind of started eating more carbs and sugar and BAM! there's the burning. I just wonder if I'll have to rely on acid reducers the rest of my life. :mad:
[QUOTE=Flyerfan;4629679]Rose, are you out there?
Was wondering how you are doing. Is your situation the same?
I have been off PPI's for about 3-1/2 months and I WAS doing fine. The past few days, however, have been not so good. I have been having mild to moderate heartburn and popping the DGL and Tums and I'm thinking about taking a Zantac right now. I'm still seeing my ND about this and want to consult with her about why I would be having a setback. It's frustrating...I was doing real well and I kind of started eating more carbs and sugar and BAM! there's the burning. I just wonder if I'll have to rely on acid reducers the rest of my life. :mad:[/QUOTE]

I am still here and my experience is pretty much like yours. I have been off PPI's now since January and experience ups and downs. I can have many days of no heartburn and then days like today when I have been pretty much feeling nauseous and experiencing burning on and off all day. I think this is the nature of the disorder. I took two Zantac today. There are days when I take none and no remedies. Some days I can cheat a bit and others not at all. I have accepted that this is the way it will be and I have chosen tnis path in order to, hopefully, save my bones in the long run. We will see what happens in another year when I go back to the doctor and have another bone scan.

I still use DGL and apple cider vinegar and Zantac, just no PPI's. I try to cut down on carbs, no sodas and very little alcohol and never any alcohol or pills on an empty stomach. But I am never symptom free for more than a few days at a time. We have a weak LES and I guess it works sometimes and not others.

I wish you all a happy Thanksgiving and we will keep working on this.

Rosebloom
Rather than stopping a PPI cold turkey, I would suggest the following

1. Reduce your PPI to 20mg per day of Prilosec, nexium, or the equivalent of the other PPI's. Stay on 20mg for 2 weeks if you have been on a higher dose.

2. Stop the PPI, and start taking Zantac 150mg twice a day. Take this for 2 weeks. Keep some Gaviscon or Tums in your pocket for breakthrough symptoms.

3. Reduce the Zantac to 75mg twice a day. Take this for 2 weeks. Again, have Gaviscon or Tums avaliable.

4. Stop the Zantac, but always carry some Gaviscon (best) or Tums or Mylanta in your pocket, and take a dose as soon as you feel any symptoms starting.
[QUOTE=jonnstar;4730840]Rather than stopping a PPI cold turkey, I would suggest the following

1. Reduce your PPI to 20mg per day of Prilosec, nexium, or the equivalent of the other PPI's. Stay on 20mg for 2 weeks if you have been on a higher dose.

2. Stop the PPI, and start taking Zantac 150mg twice a day. Take this for 2 weeks. Keep some Gaviscon or Tums in your pocket for breakthrough symptoms.

3. Reduce the Zantac to 75mg twice a day. Take this for 2 weeks. Again, have Gaviscon or Tums avaliable.

4. Stop the Zantac, but always carry some Gaviscon (best) or Tums or Mylanta in your pocket, and take a dose as soon as you feel any symptoms starting.[/QUOTE]

I think this is a very sound step down approach to PPI withdrawal. I stopped the Aciphex cold turkey because I was so freaked out by the DEXA scan results that showed I had gone from normal bone density to advanced osteopenia on both hips. It would not have hurt me to gradually decrease the Aciphex to wean myself off more gradually. I did use Zantac generously during the withdrawal phase, but Zantac only took the edge off the horrible heartburn and multiple other symptoms I experienced.

I now realize my worst withdrawal symptoms lasted about three months, but my stomach did not return to normal for approximately six or so. "Normal" for me is baseline symptoms, not being cured. I still experience heartburn several times per week, but not daily anymore. I can manage it with Zantac and over the counter and other natural remedies, and have to be careful with what I eat and how much I eat. Same advice you read from many others here.

Otherwise, GERD without PPI's is manageable for me. But it is not symptom free as I wish it were.

But if I had to do it all over again, I think John's method is much saner than the way I went about it. I did not know better back a year ago, and had little to no help from my family doctor (whom, by the way, I have since changed).

Rose
Rosebloom thank you so much for your post. You are truly inspiring. Im not sure if your still responding to this post, but I am going to go ahead and give it a try. I took Nexium for about a month, for heartburn, but like many was not made aware of the side effects. On Tuesday, of this week, I had my first appointment with the Gastroenterologist, who scheduled an Upper Endoscopy next month ( I have faith in God that all will be ok). I mentioned to him that my only symptom at the time I was prescribed Nexium was heartburn. But since taking nexium I felt worse symptoms such as joint pain and general stomach pain and that I wish to discontinue taking the nexium. He told me stop taking them, but was quick to give a sample of another GERD medication, which I am not going to take. So now my dilemma: I have stopped taking Nexium, and I am day 5 with heartburn, some days are better, and I take tums when I have to, which help. I am also watching my diet:no greasy foods, citrus, no caffeine at all, not even caffeine free coffee because I have read several books that say caffeine free coffee will cause LES to relax and cause reflux. I am also taking a digestive enzyme, tried ACV but could not handle it, and awaitng the local health store to stock up on DGL, which I hear is very good for heartburn

Since I only took Nexium (40mg a day) a week shy of a month, should I expect the reflux rebound that I keep reading about to creep up viciously?

I also purchased Zantac 150mg for just in case, but have yet to take them. Thank you for your time. I hope to get to that threshold of rebound symptom free as you have successfully managed to accomplished!
:)





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