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Acid Reflux / GERD Message Board

Acid Reflux / GERD Board Index

I too have been through hell and back with LPR. Thought I'd die a slow death from the pain and not being able to eat. I got LPR in July 2009 and literally burned to death from the vapor/gas/droplets rising from the stomach to the delicate throat tissues and burning the nerves that go through the throat. I felt 4 large balls in my throat and the back of my neck had a bump. My first ENT explained that I was burned and injured and that the acid was injuring my throat and burning through my throat nerves (which go through your head and throughout your body). The pain was unbearable. It took 5 long months to find a Dr to diagnois it. He called it "silent acid reflux". It took awhile to get to the ENT and GI. My primary started at the first level of their algorythems. They started me on double doses of antibiotics for H-Pylori. I got worse and worse. Then 6 months after the onset of the horrific throat pain (my throat was full of white opaque mucous and red as a beet; the ENT told me the white opaque stuff is the throat trying to protect itself from the acid vapor/gas/droplets that are hitting it). Anyway, 6 months later they began different types of PPIs. Mild to strong. The final one I was on was Nexium. They had to increase it and it did nothing for me. 9 months after I started the excruicating throat burning I was sent to surgery for a fundoplication surgery. I came out 10x worse. I laid in bed after I retired, moved and tried to get into a new ENT and GI. The new Drs didn't believe LPR existed. Finally I got into the new ENT for a scope, with the new set of DRs and the ENT confirmed that my throat was burnt to a crisp. They told me not to take PPIs as obviously they didn't work for me. I thought I was going to die a slow death from not being able to eat and being in constant never ending pain. They put me on Carafate but it gave me only 30% or so improvement. The ENT insisted on a biopsy to rule out cancer Feb 2011. I had been burning for almost two years and I guess he had to check. A burn is still a burn especially when it's on top of a already burned throat. It just never gets a chance to heal. I then put myself on mega doses of probiotics. Had a little more improvement. By the end of summer of 2011 my Drs said they could do no more for me. I was sent 4 months ago to see the top GI Dr in our region and he said I had to learn to live with the pain. I had begun my own research and asked him if it was my vegal nerve. He replied that it was but it would take 10 years to find out how to treat what I had. I didn't have 10 years to waste waiting. So I did my own research and found that Vit D strenthens muscles. I reasoned that the UES/LES are esophogeal muscles and that maybe it could help me. I also reaserchec what would heal the vegal nerve and my research indicated that omega 3 fish oil could. I asked for a Vit D lab test and it came out low. (if one lives above a certain latitude the odds are that one does not get enough D and reserves run low during the winter and never get stored up enough). So I put myself on Vit D3 and omega fish oil and have improved so much. I did it on a hunch. I had nothing to lose. The meds and the surgery were far more dangerous than taking the vitamins. I've been on them now for over 4 months and I continue to improve. I still can't quite believe that I found my own treatment plan that is working. I still have a bit of LPR but nothing like what I had before. I have quality of life now. My ENT scoped my upper and lower throat in Sept 2011 and found that my upper throat was still red but when he went down to scoped my lower throat (where he biopsied) he kept saying, "I can't believe it...if I didn't know your history I would not believe how healed your lower throat is!" He was quite pleased at my progress. He asked me what I had been doing and I told him I took Vit D3 drops and omega fish oil and he noted it in my chart. Let me know if this in anyway helps anyone with LPR. I'd be interested if you have any relief.
LPRsolver: Yes, I'd be happy to answer your questions. I'm happy to share. I had severe LPR...excruciating pain throughout the head, back of neck, ears, cheeks. Last year it was radiating down my arms and my legs. The vapor/gas/droplets of acid had so damaged my throat. The acid was burning through my throat nerves. It took alot of reading to understand what was wrong with me. I only had a few Drs before I moved who gave me just enough information that I put together what was wrong with me. The white mucous stuff in the throat is the throat tissue trying to protect itself. Its a horrible illness. I too was wasting away and I'm being very accurate when I state that all my Drs could say to me was that I had to live with unbearable pain. No one ever addressed pain levels. It's like being a burn patient only on the inside. It's horrible.

I haven't stopped researching for the last year 1/2. The the strongest PPIs did nothing for me except give me severe pnuemonia (30% of patients on PPIs develop pneumonia; thats why, after 4 months of being diagnoised with LPR, they sent me to fundoplication surgery. The lead surgeon did say that a fundoplication for LPR only had a 50-50% chance of working. The assistant surgeon (a thorastic specialist) said I would have a 90% chance of success. I was desperate for pain relief I went for the surgery. I came out 10x worse after surgery. It was devasting. I wasted away steadily. Lost 30 lbs not due the surgery and was wasting away. The surgery healed fine and I had no stomach problems at all. Only searing LPR pain.

Between writing desperate emails to my Drs in the old region and new region I moved after retiring (yes, I had the fundoplication 14 days before retiring and moving to a new region; it was so hard trying to not show my pain. I couldn't sit any length of time from the radiating throat pain and had to walk (through the house) to bear the searing throat pain.) I began my research when my Drs and my tests showed that the fundoplication did work but my GI just looked at me puzzled and said my acid score went from 40 to .4 and that there must be a secondary problem that they couldn't figure out. They told me I didn't have any more acid than the average person. But my clinical presentation showed I was so burned that my ENT insisted on a biopsy of my lower throat. I could barely bare the thought of anything thouching my throat I was in so much pain. The biopsy was negative. It was good news but no meds worked for me.

...but I knew from my research that LPR is both the LES and UES not closing off the throat from vapor/gas/droplets of acid. Its a very small amount, as it only burns the throat. The throat tissue is only one layer thick and the acid damages tissues and nerves that run up to the head/brain quicker than the lower esphogus. The lower esophgus is much thicker and can take the occastional reflux. The nerves are not close to the surface. But the throat nerves are in the one layer of throat and thats why the pain is so intense. It made sense. I knew if I could find something that strengthen muscles it would be worth trying as the UES/LES are muscles of the esphogus. Could it help close off the stomach?

I read extensively and somehow ran across the benefits of vitamin D when I did a web searches on what stengthened muscles. It came up Vitamin D in some of the literature. I got excited because with that bit of insight I began researching and reasoned that maybe it could work on my strengthening my LES/UES. I research the different kinds of Vitamin D. There is the Vitamin D from the sun...the best Vitamin D you can get. I was struck with the realization, as I read, that I had avoided the sun for over 40 years! I have always tried to stay out of the sun. Additionally if you live above certain latitudes one just doesn't get enough vitamin D. Vit D affects every part of the body and its functions. I read articles that indicated that many illness are caused directly by not enough Vit D and that Drs don't think about testing for it. Its not a routine test in yearly physicals or when you go in due to illnesses.

My research pointed to Vitamin D3 in liquid drops as the best assimulated. The pills don't absorb as well. Also I read that after 50 years of age the ability to make Vitamin D on the skin is reduced. (Vit D is not really a vitamin; its a hormone made on the skin by the sun.) I read also that weight affects how much Vitamin D is circulating in the blood. The fat cells attract and retain the Vit D that is meant to circulate in the blood. I read also one article that recommended taking 35 IU Vitamin D per pound of weight. I asked for a Vit D test 6 months ago. My Dr just sent me the outcomes. She never told me what to do about a low score. She answered and said to take 2,000 IU of Vit D for life. Drs just don't have the time to really study the issues patients have. Medicine seems to be only about pills not looking at the whole person.

My Vit D score was 25. I paused for a moment when I read it and realized that for the 4 months before I requested a Vit D test, that I was in the sun for the first time in 40 yeas because we just built a pool, the grandchildren were over every day and I learned to swim and was in the sun alot. Prior to April 2011 I was probably alot lower than 25. Being in the sun for those 4 months had to have raised my score to 25. I had to have been much lower. Vit D score should be closer to 50+. My goal is to get close to 80 and then go into maintenance. I used the 35 IU x body weight for the first 3 months minus what I calcuated I got in food everyday.

My Dr said to go on 2,000 IU for life but I felt that was not enough for my condition after all the reading I had done and knowing my personal history of avoiding the sun. After 3 months I did a new Vit D test and my Vit D score went up to 44. I then dropped my Vit D3 drops to 4,000 IU a day and will remain on that until I take my next test which I will be requesting in Jan/Feb 2012. If I get my score up close to 80 I will go on what my Dr advised to take which is 2,000 IU for life. I also spend 20 minutes in the sun every day and feel like I'm improving every day/week/month that passes.

I will not recommend any Vit D3 drop because I feel they are all about the same. I bought mine back in July 2011 and the small bottle lasts a real long time and it is inexpensive (especially compared to the espensive PPIs my insurance paid for!). I bought my grandchildren Vitamin D3 drops at 1,000 IU per drop and different one for my daughter/husband that are a different brand from mine. Just go on your favorite vitamin web site and order it. It will be ok.

Vitamin has done more for me than anything tried by the Drs. I'm so shocked that no Dr has ever thought about at least testing for it. Nor do they even worry about the results when the test comes out low. My Dr didn't tell me what to do about it until I emailed and asked her what do for low vitamin D scores. Incredibly disturbing. I just hope so much that more comes out on Vitamin D, as I think a significant amount of the population is suffering illnesses due to low Vit D levels. And it is so inexpensive. So much money in health premiums being paid, expensive medicines and surgery that don't work and simple Vitamin D3 drops took away the horrible searing pain of LPR.

Additionally after asking a series of questions from a impatient head GI I saw in Sept 2011, where all he kept saying to me was that I had "sensations in my stomach" for every answer he gave me, drawing on all my research, I told him "while I don't refute what your saying Dr, sensations in the stomach don't explain why I'm burning to death in my throat." I looked at him and asked, " it my vegal nerve causing this problem?" He was quite frustrated with me as he couldn't get me out of his office fast enough, he repled quite impatiently, "Of course it is!" It gave me one more piece to go research. I put into the web, "what heals nerves." It came back Omega fish oil. The articles indicate it takes awhile (maybe 2 years) but they can heal with a good diet, sun and fish oil. I researched the best one I could find. Not sure if it is but I ordered for myself Carlson Norwegion Cod Liver oil with lightly lemon and use it on my green salads and I noticed that together with the vitamin D3 drops I've been improving. I still have LPR but every week/month I get better. Its a milder form of LPR now.

Yesterday on XMAS day I only hesitated on the peppercorns in the Beef Wellington sauce, but other than that I enjoyed my meat and everything for the first time in 2 1/2 years. I had champagne...I'm so grateful. I felt good all day. Sometimes I go 5 days with no residual throat pain. I've basically become my own Dr and developed my own treatment plan for myself. I have quality of life now. Had I accepted what my Drs said I would have slowly withered away. When I sit next to my husband now I'm not in horrible pain and we are able to go out to eat and I can enjoy myself. I still stay away from tomatoes, pepper, garlic etc but my diet is not so restrictive. Lately, because my research has opened up a better understanding of what our body needs, I have added a B Complex, Ubiquinol CoQH, R-Alpha Lipoic Acid to my diet. I'm not really a vitamin person but realize that as I age I may need some supplemention of a few real good nutients that may be missing from our western diet. I research everything before I take it and my first criteria is being sure that I will benefit from it. And of course really being sure I eat well, lots of fresh greens and vegetables and lots of water. As I've improved, I've been able to add back some meat but fish remains my main "meat". Thank you for asking your questions, as I ws devasted by LPR and writing/sharing on these blogs has been theraputic. I still can't quite believe I have overcome this devasting illness just by connecting the dots and thinking logically and not accepting "that there was nothing more that could be done". My ENT, on my last visit was so surprised that my lower throat had completely healed. He wanted to know what I had been doing. He kept staring at me in dismay. He noted in my chart that I was on Vit D and fish oil when he asked me what I had been doing.

I'm keeping my fingers crossed that on my 6 month check up with ENT he will find improvement in the upper throat. My GI turned me over to ENT as she said there is nothing more she can do for me. I still worry about throat cancer but the pain level is not searing and only once and while I feel like my neck is bruised and my ears will sometimes get an ache. My throat still looks white opaque up to my molars so I try not to look at it as its upsetting. Thank you for asking as it allows me to talk about it. When I read you were losing weight and were thin I know you must be so worried. Pull out all the stops and experiment and use your common sense. Drs give us pills that sometimes help but LPR doesn't respond to medications for some reason and the medications are seriously dangerous as they deplete the senergy of nutrients in our gut. The gut is 50% of our immune system and the PPIs come close to shutting it down...logically that points to further deterioration of health in every area. I read so much on this and I was terrified of taking PPIs. I felt so sick on them. My legs where like lead weights when I took them. Probably depleted Vit B. I know sometimes PPIs are necessary but I'm terrified of them. That is probably why I chose surgery over taking PPIs, because did nothing for me except make me worse and give me pneumonia. Write me how you are doing. I'll answer. Don't give up no matter what the Drs tell you.
[QUOTE=BrienE;4900885]Eew, that sounds quite depressing imagining him telling you ten years for any progress on the matter... I feel as well, why live with something I know deep down somehow, I shouldn't have to. I really can picture the absurdity of being told to live with it as a motivation and I appreciate everything that feistiness has brought you.

My Vit D update is I started today on the store stuff -- 4k i.u earlier today with some avocado, and evening dinner with the small meat portion for the fat, for a total of 8k. I need to figure out the 'taking with fat' aspect as I am trying to cut hugely down on animal products.

I would say I am interested in the Vit D as much if not even more for the business of D deficiency behind phenomenal fatigue. A knock out punch to "LPR" symptoms as well as the fatigue, sleep issues and to wash and wax my car, and walk the dog would be nice.

I'm a little concerned about the mega dose @ 50,000 i.u. just seems a bit scary. Also wonder frequently if I am assimilating food properly lately. I might try it next week if it appears I can handle the daily 8k.[/QUOTE]

Yes, Brien, it was depressing. And Drs just don't talk to their patients. If a pharmacutical pill or surgery doesn't work they just say there is nothing more that can be done and your watching your precious life go down the drain. Frankly it made me angry. And even when they told me they had never seen a case of LPR before I knew something was wrong with those statements. LPR is a very common problem that is not recognised by Drs. They call it asthma, or sinus problems. I believe there are thousands of people walking around for decades thinking they have sinus problems or asthma and its LPR. They are swallowing medications that aren't working for them. I had to drop two primary Drs who kept getting angry with me and telling me I had allergies. When I politely told them I was in horrible head, throat, ear, neck pain the 2nd primary told me angrily and I quote exactly, " I said, keep taking the Flonase and if the pain is not gone in two months then frankly there is not much more we can do for you." She abruptly left the room. I was so devasted as I knew something was really wrong with me. I humbly wrote her two weeks later in horrific pain and said, "Dr, you indicated in my last visit that you thought I had allergies. I'm still in horrible pain. Would you give me a referral to an allergy specialist?" Without comment she gave me the referral. Why do I have to ask for a referral when I've been going in for 5 months with horrible pain. Why wouldn't a primary Dr automatically give me a referral. We pay good money for Drs to watch over our health. Not brush us off. I can't get over how slip shot medical care is. In my case I've had been paying since 1983 for my health care and I can't get over how patients are treated. I'm educated and know how to ask questions and I still got the brush off. What happens to patients when they accept everything the Dr says. When I finally got in the room with the allergy specialist I was beside myself with pain after 5 long grueling months and full of anxiety over being brushed off constantly. The allergy specialist just listened. Asked me to get up on the exam table. Examined my throat and head throat thoroughly in 3 mintues said, " don't have allergies, you have silent acid reflux." I was stunned as I couldn't wrap my mind around what he was saying. I suspect he knew I would continue to go through a revolving door with other Drs and he gave me a battery of allergy tests, a sinus scan, a throat culture etc and every test came out negative. But no Vit D test. It should be the first thing on the list when someone is sick. But no Dr is trained to do it! Its not part of the health system prodical. The allergist did try to stop any other Dr from saying it was allergies. I then had to go back to the primary Dr for treatment. As you can guess I dropped the 2nd primary Dr the instant I got home and got a 3rd primary. She was nice but she had to follow their algorythems in treatment. She treated me for HPylori. No Vit D test was given. I got worse and worse. Took two different antibiotics at the same time and got worse and worse. Then there were the series of different low level PPIs, then the heavy duty hitters like Nexium... my dosage got to 80 mg a day and I got worse and worse. I got pnuemonia from the Nexium as it shut down my immune system (the stomach acid is 50% of your immune system). A difficult problem when their trying to shut down your proton pumps in your stomach to stop the acid they are also shutting down 1/2 of your immune system. That's when they said they were sending me to surgery as nothing worked on me. Until this summer, when I made my own personal request for a Vit D test, no Dr in my entire life has ever done a Vit D test on me. I personally think that is outragious for all the money we pay in premiums. It should be one of the most basic tests you get when you go in for illnesses or a physical. It deeply bothers me that a great percentage of the population is suffering from various illness that Vit D could have either prevented or improve their condition. The suffering is what bothers me. Its so unnecessary.
Brien, so glad you have started your Vit D dosage. You will not be on the high dosage for too long. Your body really needs the Vit D. Your wide open for even more deterioration of your health until you can get your D levels up. Your levels are so low its scary. Its good you take your D with your meals. Sounds like your eating good to me. So happy you got yourself tested. Try to sit in the sun every day for at least 20 minutes. So important. You will begin to feel better real soon. And I suspect your LPR will improve. So proud of you.
[QUOTE=noni2;4901388]I will try to be short(even though it's a long story). I began having some problems early in 2008 feeling like I had to cough not unctroable cough but feeling like something was there and I had to cough, and sometimes like I had to cough to get a better breath. Went to my Dr. in Sept. 2008, he thought I had mild asthma and the pulomagist said the same thing which I questions from the get go. Had me on inhaler and advair, only used till about mid 2009. Then in Jan. 2009 got a horrible cold and from then on things really got worse. Finally went to ent Dr. Sept 2009 put me on nexium and nasonex, he said my vocal cords were very red and inflammed, my throat did not hurt me at all. By then it was the breathing problems, hoarsness,coughing, etc. etc. Went back in 8 weeks he said they looked better. Went off the nasonex thinking the acid was probably the problem and stayed on the nexium ever since. I think it is more silent reflux I only had sour taste in mouth and occasionaly alittle heartburn.About 6 months later I began to be better which would be around beginning of 2010, and continued to get better, had less and less of the syptoms. Went to the ent Oct. 2010 and he said my vocal cords are not as pink as he would like to see them, which leads me to believe they are still not right. Now a year latinger I may go see him again just to see what he sees. And like I had said before it was by chance that I realized the xanax was helping because at that time I was taking it for anxiety. Took it almost every day for about a year and now since mid 2010, don't take much only occasionally. I think when it helped with the coughing it also gave my vocal cords a chance to heal. Really never made many diet changes although I really should maybe that would help also. But love my chocolate, coffee, and red wine. Anyway that is the story.[/QUOTE]

I see Noni. Our cases although different in severity are all similar in our clinical presentations. LPR is the beginning stages of GERD only in LPR cases, both our sphincters aren't working at the same time to close of the stomach. There are many variables involved in the spinchters not closing off the stomach. Many of the foods and medications we take relax the spinchters over time. Stress can kick up more acid and make the condition more severe I suppose. I realized when I received many of my acid tests back, that the Drs are able to measure the ability of the LES (Lower Esophgeal Spinchter) to close. In my case after the fundoplication surgery the Drs told me that although my acid level went down substantially, from a score of 40 to .4, they did tell me that although the surgery appeared successful, my LES was still a little bit loose. I asked if I could go back into surgery to tighten it up and the new surgeon said it was too risky. That I had to learn to live with the throat pain. Sometimes people are born with spinchters that don't have a tight tone, then we add food like coffee, sweets, chocolate, wine, beer, liquor, tomateo sauce etc that over time weaken the spinchters more. Additionally many every day medications we use also weaken spinchters over time. And loss of hormones do as well. For example lower testoserone and estrogen and low sun D hormone. Even conditions such as severe apnea can change the esphogeal pressure and suck up gases from stomach when we sleep. Together all those things come together in a constellation and our spinchter muscles go "limp" on us. The challenge is to find things that will strengthen those spinchters muscles to reduce the severity of LPR. For me it my personal history points in the direction of having had low Vit D levels due to my avoiding the sun for 40 years. And there is plenty of literature out there that indicates I'm not the only one. Our modern livestyles don't get us outside enough. Then we enter winter months with low reserves of D our Vit D reserves get lower and lower. We gain weight as we age, which pulls Vit D hormone out of our blood stream and attaches to our fat cells. And then we don't assimulate Vit D as well on our aging skins. For a young person to get LPR must be devasting. I can't imagine being a new mother with a baby that developes LPR or being a young person who has a life time to deal with with this devasting anatomical illness. At least I was older when then this happened. I will gather some interesting articles for you all to read and put the links on here so you can read them. Sometimes understanding the mechinisms of what LPR is and what causes it, helps alot. And knowing that we are not alone and not crazy helps so much. My first Drs got angry with me when the Flonase didn't work for me and I kept coming back to tell them I was in so much pain. They were so mean and cruel in their attitude to me. Because no one thought of checking my throat and they didn't refer me to a ENT no one could see how burnt my throat was. My intial symtoms were sever neck/head/cheeks/ear pain. No one thought of looking in at my throat. No Dr in the beginning ever referred me to a specialist. After 5 months I had to request a specialist which in my humble opinion is unacceptable. A Dr. should refer the patient as the patent trusts the Dr. And I was too nice to stand up to my Drs. I remained polite. And later after the fundoplication surgery, when I told my surgeions that I was 10x worse after surgery and when I went to the ER because I couldn't bear the throat/neck/head pain anymore I got referred to mental health for stress . It was beyond my ability to endure. I wasn't stressed I was burning to death. I went because I was so defeated. I knew they were wrong but I was going down hill so fast that I clung to anything they said. I kept telling them I wasn't stressed that I was burning to death. They would just continue writing and asking ridiculous questions while I seared to death. Finally I got a GI who pounded her keyboards in anger while she took my clincal report and she refuted everything I said. All I could say was that I was in horrible pain. When she finally got to my physical examine and felt my neck I winced in horrible pain. It felt like I had 4 huge balls in my throat. The GI walked over to the phone and must have called ENT and said, "...yes, I've got one here I want to be sure of before I send her to back to her primary...yes, I just want you to check her to be sure." She ended the meeting and didn't even say good bye. She just looked at me in anger. I think she must have felt that I was making it up. It truly was like being in the twilight zone. I never expected that a Dr could treat a patient like this. The GI didn't really believe me but at least she did make the call to ENT. When I got to ENT he confirmed I was burnt to a crisp. I immediately ran home demanded a new GI that believed that LPR existed and that if I did not get a new GI I would go to the Chief of the hospital. Not one person said they were sorry for putting me through so much. The unknown is difficult and understanding the how and why of LPR helps alot. Most Drs have never heard of LPR. My ENT has finally put LPR on his web site as one of the things he treats. I thought it was ironic as ENT doesn't treat it, GI Dept does and neither dept can help a patient with LPR. Its ironic from this patient's point of view. I will write again after Jan 5th when I get more time on my internet service. There is one promising technique surgery that is being worked on at several major universities around the world that is still being tested. In the US it may take 5-10 years to get approval. When I showed it to my Drs they said "you don't want to try something that is so new." A few countries have approved it. I think Italy has but the USA has not approved it. It's still going through medical trial studies. I'll look for the articles and send the links. I hope Vit D's abilily to strengthen muscles can keep us going until new surgeries come along that can close off the stomach safely.
Hi everyone,

This is the first time I am posting, but I have been lurking on these boards for the last few weeks. My story is long, but I did want to ask a question before I forget- have any of you had your gallbladder removed? I did 10 years ago and I am curious to see if there is a connection.

6 Months ago I became very anemic and needed a blood transfusion- 2 units of packed red plasma. My doctor told me that I am missing a clotting factor and combined with I have been a vegetarian (not vegan, just no meat) for the past 18 years. I had an allergic reaction to the blood towards the end of the first unit, hives, shortness of breath, etc. Although my iron levels went to an 11.8 (I was a 6.7 when I went in), I did not lose the shortness of breath and was on Benadryl for the next 2 weeks and a Prednasone pack.

A month later, I began having burning pain in my stomach, no heartburn. I assumed with the stress I developed an ulcer. The shortness of breath remained (and still does) and I started to get a lot of headaches, dizziness and blurry vision. My GP, who does not like the words "blurry vision" immediately sent me over for an MRI. It showed that my sinus cavities are full (no air) and that I have sinusitis. After 3 different courses of antibiotics- nothing has seemed to help.

During this time, I went to get my hair highlighted and discovered that I have developed an allergy to hair dye (after 22 years). Back on Prednisone

6 weeks ago, I was eating popcorn :) A shell from a popcorn kernal got lodged in the back of my throat/tounge- it drove me INSANE for 2 1/2 days, i tried EVERYTHING to get this kernal out of my throat but couldn't. After 2 1/2 days- it seemed to have passed, however- I now have the crazy feeling that there is a hair on the back of my tounge (I scrape my teeth on my tounge all day). I went to an ENT, who confirmed my sinus problem and said - looks like silent reflux after a nasalscope, gave me a 20 day course of antibiotics, Dexilant and - you guessed it, more Prednisone. I had the antibitocs before and Prednisone, so I am guessing that the Dexilant did not agree with my stomach and I stopped taking it.

3 weeks ago, I started feeling like I am gagging on food- that a piece of whatever I eat gets stuck in my throat (adams apple area). I gag when I eat and stopped eatting most food, as it seems to not be worth the hacking and coughing for the next 2 hours that I have after. I am only drinking water, apple juice, soup and yogurt now. I am chewing a lot of gum. I have gone from 140 pounds to 123 pounds in the last 6 weeks.

I am going to a GI Dr for the first time tomorrow and my fear is that he is going to do an endoscope and my anxiety and potential for a panic attack is not approving that. I am absolutely terrified, depressed, helpless and feel very alone as my family is wonderful, but they do not understand and just tell me to eat something.

I just wanted to share and say thank you for all of the great posts/tips you are all providing, people like me really take comfort in it and I will be going to the Healthfood market tomorrow for the D3!

Thank you again,

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