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Acid Reflux / GERD Message Board


Acid Reflux / GERD Board Index


I know I am not alone in trying to get off the devil that is PPIs (Omeprazole, Prevacid etc).

I had no reflux problem prior to taking them and now I feel my life is ruined by the pain of rebound.

I know about tapering off, which I am trying to do, but it is taking months and stealing a huge part of my life with ongoing rebound.

Has anyone actually managed to successfully get off these drugs and get back to normal health?

Would like to hear from anyone who has suffered from rebound and who did get better; any tips and information about how long it took you to get back to normal would be appreciated.....if indeed you do ever get back to normal!

thanks
[QUOTE=kacyc;4995165]Thanks for replies... not many success stories though!

Yes, this is the worst time of my life too and I feel for everyone else going through this ordeal. I realise it is a trauma on the body and mind, not simply an illness.

I quit cold turkey - Omeprazole 2 x 20mg - without knowing anything about rebound, then got worse (rebound) so went back on Omeprazole but only went back on 1 x 20mg.

I have since been suffering from the original rebound of quitting, and halving from 40mg to 20mg + also trying to wean off slowly the remaining 20mg.

I'm really not sure what is worse. The problem with weaning off is that you remain ON the medication and the side effects continue. You are also adding rebound to more rebound each time you reduce. But on the other hand the pain of going cold turkey is worse, but perhaps means the whole healing process is faster. I don't think the body can properly rebalance until you are free of meds.

For anyone at the thinking stage, and doing your research first, my advice having been through it (still going through it) would be not to attempt to go cold turkey in the first place but to slowly slowly wean off and hoepfully avoid too bad rebound. You can't change your mind, once you have tried going cold turkey the rebound is let loose and even deciding to go back on meds doesn't control it, because you need more meds than you were taking once the rebound has set in.

It is a trap and very hard to get out.

I would also be interested in more detailed info about how you experience rebound as it is not just one single pain is it. I am trying to work out whether the bloating to the point you think you are going to pop is caused by the meds or by the acid. I thought it was the meds, and it improved as I took less, but it is really bad at the moment, but so is the acid, and also I tried Zantac... didn't really help, but maybe made the bloating worse![/QUOTE]


I was on 40mg of the omeprazole and quit cold turkey so it was horrendous for me. I decided to suffer it out and not go back on it just to wean myself off. I can report that this is I believe the fifth week and things are looking up.

I'm doubtful I'm over this, but I feel like there are days I have it under control. I actually had a good week from tuesday to today (knock on wood) with minimum acid reflux and no burning. I decided to stay on a strict diet of what's working for me. I do not drink when eating...i drink bottled water between meals in sips and try to avoid drinking before driving (ha, but usually driving sloshes around water in my stomach..hence reflux)

So what's working? Same thing every day. All organic.
- celery (before meals and between meals)
- corn tortilla with avacado and sliced up spinach 3x a day for my meals. I just started adding up finely diced chicken to it but won't do it for each meal, just once a day
- boiled potatoes w/o skin and boiled carrots. No seasonings
vitamins
- DGL when needed
- Zantac 150 morning, usually 75 at night unless i feel it kicking up and then its 150
- carafate only as needed
- probiotic chewables

I also discovered I can eat mountain trail mix from walmart in moderation, so I'm happy I can get a little protein in. I just have a few bites a day and not everyday. I usually eat celery with it. I'm going to attribute the celery to neutralizing the burn in the acid.

I'm thrilled to have days where I can actually be doing things and not always thinking about the fact I'm in pain and totally forget about it. It gives me hope that it will be a slower recover and to hang in there, even if I have a relapse which I expect will happen.

Today I bought almond milk and will try a very small quantity to see if that triggers anything.

Additionally, I think YEAST is a problem!!! I had chicken noodle soup one night and it went down okay. I was thrilled. The next night I had a different brand, and the only difference in incredients was that it contained yeast. OMG, it felt like my stomach was producing so much gas. I kept belching, and there was pain, and acid...i was miserable!! So I'm going to avoid anything with yeast in it.

There's hope for anyone reading. I never thought i'd have days that I'd forget I was in rebound during some hours and not be in constant agony. I think it requires being strict with your diet, eating small meals, and finding out what you can and can't eat by slowly incorporating one thing at a time. Yes, i'm losing weight, but I'm trying to take vitamins and once in a while add a few cubes of cheese or something to try out. I found out one or two doesn't bother me, and I get a little extra nurishment. Be prepared to lose weight. I'm down to my high school size. But even though I have bad days where I think it's all going downhill again, when it subsides and I have good days, it reminds me why I'm continuing this fight and I won't give in.
[QUOTE=kacyc;4995165]Thanks for replies... not many success stories though!

Yes, this is the worst time of my life too and I feel for everyone else going through this ordeal. I realise it is a trauma on the body and mind, not simply an illness.

I quit cold turkey - Omeprazole 2 x 20mg - without knowing anything about rebound, then got worse (rebound) so went back on Omeprazole but only went back on 1 x 20mg.

I have since been suffering from the original rebound of quitting, and halving from 40mg to 20mg + also trying to wean off slowly the remaining 20mg.

I'm really not sure what is worse. The problem with weaning off is that you remain ON the medication and the side effects continue. You are also adding rebound to more rebound each time you reduce. But on the other hand the pain of going cold turkey is worse, but perhaps means the whole healing process is faster. I don't think the body can properly rebalance until you are free of meds.

For anyone at the thinking stage, and doing your research first, my advice having been through it (still going through it) would be not to attempt to go cold turkey in the first place but to slowly slowly wean off and hoepfully avoid too bad rebound. You can't change your mind, once you have tried going cold turkey the rebound is let loose and even deciding to go back on meds doesn't control it, because you need more meds than you were taking once the rebound has set in.

It is a trap and very hard to get out.

I would also be interested in more detailed info about how you experience rebound as it is not just one single pain is it. I am trying to work out whether the bloating to the point you think you are going to pop is caused by the meds or by the acid. I thought it was the meds, and it improved as I took less, but it is really bad at the moment, but so is the acid, and also I tried Zantac... didn't really help, but maybe made the bloating worse![/QUOTE]

GAVISCON ADVANCE... ....

I have managed to come off PPIs for about 5 months now - but am on GAVISCON ADVANCE instead which I'm finding much better and my health improved quite remarkably once I was able to stop lansoprazole. Also I stopped getting really bad constipation and my energy levels are gradually improving - I felt constantly exhausted.

Basically I was originally put on lansoprazole because I'd had problems with food getting stuck in my esophagus and then I kept getting spasms - whilst abroad I was prescribed NSAIDs/muscle relaxants to try and allow the food to pass - but doctors back home were worried that it might damage my esophagus further. Lansoprazole was a precautionary measure. The doctors/specialists kept telling me to continue with the lansoprazole and I ended up on it for 8-9 months. When I did try to stop them, I got terrible heartburn - something I'd never had before. I then read on the internet that if you didn't have an overproduction of stomach acid in the first place, that taking PPIs could actually cause you stomach to go into overproduction of acid and give you heartburn. In the end I started to reduce the dose very gradually from twice a day to once a day and then spliting the tablets in half - finally taking half a tablet alternate days, then once every 3 days etc. I still was getting some heartburn but came across the fact that Gaviscon Advance could be taken by people wanting to come off PPIs. I ask my GP if she could prescribe it and she did - I'm so glad that I was able to come off the lansoprazole - many additional symptoms that I had stopped or improved and I think it's important that it was Gaviscon Advance rather than the regular dual action one- as the normal Gaviscon neutralises stomach acid. Gaviscon Advance causes a foam type raft to form to protect the esophagus from acid reflux, but doesn't neutralise your stomach acid if I understand it correctly - which is the key. Maybe this is a better alternative? I'm gradually trying to reduce the amount of Gaviscon Advance I'm taking and have gone from 2 chewable tablets after meals and 2 at bedtime to only 1 after meals and at night. Hope this info helps!!

I sometimes get bloating - it used to be worse - I've read that a lot of people with reflux/heartburn actually don't have enough stomach acid - using PPIs actually makes it even less - then your stomach doesn't work properly and can't digest your food. Then it just sits in your stomach starting to ferment - and apparently this can cause bloating and other problems - and make you very tired if your body is not able to absorb the nutrients it needs properly.





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