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Hey Root,

Let me start off by telling you that I did contact the "sub people..." well, I typed in subutex and found the fda site and emailed them what was the average length people were to be on the sub, could it be used for a short period of time somewhat as a detox drug, and what to expect when stopping the sub. They thanked me for contacting them and replied with, "There was no "average length" determined yet, it could be used as a detox drug but preferably in a hospital setting, and withdrawal would be in comparison to flu-like symptoms (how familiar is that). They went on to state that is was a relatively new drug and statistics were still be gathered from doctors and patients and that if one wanted to come off the sub, they should do so slowly. That's it!

I am with you on just wanting off and wondering if it was working quite right on me. I know I sang its praises the first two weeks, but after that I craved like crazy and everyone knows my little hydro binge after I had been on it a month or so. I haven't heard anyone else say that- everyone says they do not crave at all. And I COULD NOT fall asleep on the sub- I had to take a Xanax and that caused BIG problems with my sub doctor. My sub doctor stays out of town, so it was always hard to get in touch with him when I had questions.

Anyway, bull-headed me just decided to come off of it after my husband finally talked with my doctor and considering Spark's slow and steady taper and the struggles he still went through. My doctor admitted to my husband that is was new and there were very few patients on it in MS and not alot was known about coming off but that it should be done slowly. My husband asked would I experience withdrawals and he said, "Yes, but the longer you are on it, the harder it would be to come off." So, with that, I just decided to jump in head first! I went from 8mgs to .5mgs in a couple of weeks. The first couple of days were very uncomfortable but I knew I could make it. The third day was horrific. If it hadn't been for my husband, I would have caved. The fourth day was pretty good- I thought I had it beat and ofcourse, today, and the whole tingling arm and "stroke" the nurse convinced me I was having......I am really curious as how tomorrow will be.

I, too, have had the nausea and absolutely NO appetite- lost three pounds! I am stilll having some sweats and chills at night, but since I am not sleeping too well anyway, it has been manageable. Still very weak and sometimes get a "spell" of the shakes....pretty much like hydro withdrawal but with this...I just don't know what or how long to expect...ya know? There is so much unknown that it makes me a little nervous.

Well, that has been my experience. I don't know if I answered any of your questions or have made it worse for you. I hope you can decide what is going to be best for you and I am proud of you for making it this far! By all means, if you or anyone thinks they could not stay off the pills, I would consider staying on it a little longer to alteast get your depression in tow. Are you on an anti-depressant? I am not having depression too bad, because I started the Lexapro when I started the sub. SO, that may be something to consider. If you aren't on an anti-depressant and are already feeling some depression, you may want to get on one before you try coming off of this. Just food for thought.

Let me know what you decide to do. It is a hard decision. What seems to be the problem with your doctor- sounds like he wants to keep your money coming in a little longer, huh? I would question too, why he wouldn't communicate with me. I know that makes things harder though. Please try to hang in there...good for you going to meetings. Does that seem to help? I scared to go...don't know why???? Again, keep in touch with me. I will help you along the way best I can.

God bless you, Root,
michelle
Michele, God bless you for all you've been through and then still taking time to help me. You know I keep you in my special prayers evry day and send you lots of enrgy. I am so much like you as far as this sub goes. I most don't like that no one seems to know much about it and at least if I were on hydro evry one knows about that one. I really don't want to do the hydro though and I guess all I can do is keep cutting down and when I get down to 1 or 2 mgs just stop and go through hell. I just want to be clean.

When I first started on the sub I was on nurontin and celebrex. Then they added paxil. Michele, I felt like I was dead. I had no enrgy and no feelings. Nothing. So I stopped the paxil cause I know it makes you tired and I also heard it is addicting too. I still felt tired so I stopped the nurontin. Now it's just the sub and celebrex and serax and I do have a pill for nausea but I'm afraid to take it. I'm also afraid I'm going to get hooked on the serax so maybe I better stop or take less.

You have helped me a lot by sharing what you know but more even because you take time to write to me. This isn't easy but I guess it's better than going off heroin. I don't know. I think you are so brave to go off so fast. I am too afraid to do that and am having a hard time as it is. The meetings are the best thing I have ever done. I have met a lot of great people who know what it's like. The only problem here is that they talk about alcohol and I haven't use that for years. They don't talk about drugs and there is no NA around here. Still I am greatful for the AA and the nice people in my life.

Well I will try to go to sleep. Like you I can't fall asleep and then when I do I sleep too late in the morning. Hey Michele maybe in a couple months we will both be AOK and we will laugh about this, huh? I hope so but I will keep in touch and please you do too, okay? Thank you again.

[QUOTE=John 3:16]Hey Root,

Let me start off by telling you that I did contact the "sub people..." well, I typed in subutex and found the fda site and emailed them what was the average length people were to be on the sub, could it be used for a short period of time somewhat as a detox drug, and what to expect when stopping the sub. They thanked me for contacting them and replied with, "There was no "average length" determined yet, it could be used as a detox drug but preferably in a hospital setting, and withdrawal would be in comparison to flu-like symptoms (how familiar is that). They went on to state that is was a relatively new drug and statistics were still be gathered from doctors and patients and that if one wanted to come off the sub, they should do so slowly. That's it!

I am with you on just wanting off and wondering if it was working quite right on me. I know I sang its praises the first two weeks, but after that I craved like crazy and everyone knows my little hydro binge after I had been on it a month or so. I haven't heard anyone else say that- everyone says they do not crave at all. And I COULD NOT fall asleep on the sub- I had to take a Xanax and that caused BIG problems with my sub doctor. My sub doctor stays out of town, so it was always hard to get in touch with him when I had questions.

Anyway, bull-headed me just decided to come off of it after my husband finally talked with my doctor and considering Spark's slow and steady taper and the struggles he still went through. My doctor admitted to my husband that is was new and there were very few patients on it in MS and not alot was known about coming off but that it should be done slowly. My husband asked would I experience withdrawals and he said, "Yes, but the longer you are on it, the harder it would be to come off." So, with that, I just decided to jump in head first! I went from 8mgs to .5mgs in a couple of weeks. The first couple of days were very uncomfortable but I knew I could make it. The third day was horrific. If it hadn't been for my husband, I would have caved. The fourth day was pretty good- I thought I had it beat and ofcourse, today, and the whole tingling arm and "stroke" the nurse convinced me I was having......I am really curious as how tomorrow will be.

I, too, have had the nausea and absolutely NO appetite- lost three pounds! I am stilll having some sweats and chills at night, but since I am not sleeping too well anyway, it has been manageable. Still very weak and sometimes get a "spell" of the shakes....pretty much like hydro withdrawal but with this...I just don't know what or how long to expect...ya know? There is so much unknown that it makes me a little nervous.

Well, that has been my experience. I don't know if I answered any of your questions or have made it worse for you. I hope you can decide what is going to be best for you and I am proud of you for making it this far! By all means, if you or anyone thinks they could not stay off the pills, I would consider staying on it a little longer to alteast get your depression in tow. Are you on an anti-depressant? I am not having depression too bad, because I started the Lexapro when I started the sub. SO, that may be something to consider. If you aren't on an anti-depressant and are already feeling some depression, you may want to get on one before you try coming off of this. Just food for thought.

Let me know what you decide to do. It is a hard decision. What seems to be the problem with your doctor- sounds like he wants to keep your money coming in a little longer, huh? I would question too, why he wouldn't communicate with me. I know that makes things harder though. Please try to hang in there...good for you going to meetings. Does that seem to help? I scared to go...don't know why???? Again, keep in touch with me. I will help you along the way best I can.

God bless you, Root,
michelle[/QUOTE]





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