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Addison's Disease Message Board


Addison's Disease Board Index


Hi everyone...I'm hoping someone can help me.

I have so many Addison's symptoms, and in March my AM cortisol was 8.75, so low-normal. I was sure I would have a diagnosis after my ACTH stim test. Unfortunately, I've hit another dead end. Here are my results:

8am baseline reading - 12.82 ug/dl
30 Min after injection - 20.88
60 Min after injection - 24.44

I was stressed about the procedure to begin with. Then the nurse who drew my blood could not hit my vein and it was a very painful process as she continued hunting for it. It hurt so much I was almost in tears. This happened for the first two draws, and then I finally asked for a different nurse for the third draw. She hit my vein with no problems as most do since I have very prominent veins. I was so upset. Also, they had me walking back and forth between the lab and the waiting area after each blood draw.

Is it possible that my results were skewed by these factors?

I experienced an adrenaline rush shortly after being injected with the ACTH, and until about 5pm my heart was pounding pretty hard and I felt lightheaded. Is this normal?
You had two different tests which found your cortisol to be within normal levels and to be responding to ACTH. I doubt it's an error. A lot of the symptoms of Addison's Disease are nonspecific so they could be caused by a lot of other, more common things.
I agree with Summer. The symptoms are shared by many different diseases. It took me 20 years and a 3rd test before i was diagnosed. About 8 years ago I started passing out more frequently, electrolytes got really screwy, and I got a Winter tan. You need to lose about 95% of function before the test is positive. i went through the dr mill, and was told it was all in my head, malingering, and eventually Dx with Chronic fatigue syndrome. It was only when I blacked out driving and ended up in the ER with a super low BP and pulse that my Dr took a 3rd look. Test number three : cortisol started at 5 and never went up.





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