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Addison's Disease Message Board


Addison's Disease Board Index


IM THIRTY YEARS OLD, I HATE GOING TO THE DOCTOR'S, AND HAVN'T HAD MUCH WRONG WITH ME BUT I.B.S., UNTILL 3 MONTHS AGO I HAD SOME SERIOUS STOMACH PROBLEMS THAT I THOUGHT WAS JUST MY I.B.S. THAT WAS DX BY MY GI DOCTOR ACTING UP, BUT IT SOON WHENT TO MY HEAD WITH HAVING EXTREME DIZZINESS AND IMBALANCE AND RELUCTENTLY DX AS A INNER EAR DISTURBANCE BY AN E.N.T DOCTOR I WAS SENT TO, THEN IT LED TO PANIC ATTACKS AND WAS DX AS HAVING (CRONIC ANXIETY DISORDER )BY FIVE DIFFERANT DOCTORS SAYING THE SAME THING (CRONIC ANXIETY,AND DEPRESSION) MY PRIMARY PUT ME ON EFFEXOR, PAXIL, XANAX AND ATIVAN WITH NO RESULTS OTHER THAN EXTREME HEADACHES,I'VE BEEN TO THE ER FOUR TIMES BECAUSE OF NUMBNESS, MUSCLE WEAKNESS AND FAINTING THINKING I WAS HAVING A STROKE OR SOMETHING, HAD TWO CT SCANS AND A M.R.I. OF THE BRAIN , LAB WORK DONE IN THE ER AND ALL WAS NORMAL, WAS THEN PASSED ON TO A NEUROLOGIST BY MY PRIMARY AND HAD A E.E.G. AND T.C.D. DONE WITH NORMAL RESULTS AND DX AGAIN WITH (ANXIETY DISORDER OR SEVERE STRESS DISORDER)I'VE BEEN KICKED AROUND AND PASSED ON FROM DOCTOR TO DOCTOR LIKE I WAS SOMEKIND OF INFECTION OR VIRUS BECAUSE THEY DIDNT WANT TO DEAL WITH ME AFTER THEY DX ME WITH A STRESS DISORDER, THEN FINALLY BY THE GRACE OF GOD I WENT TO A FAMILY PRACTICE DOCTOR FOR A SECOND OR (15TH) OPINION, AND WAS FINALLY TREATED WITH EMPATHY AND KINDNESS, SHE TOOK THE TIME TO LISTEN TO MY DOUBTS I HAD WITH THE OTHER DOCTORS AND THEIR DX, SHE FOUND THAT THEY HAD MISSED A BLOOD TEST THAT THEY ALL COULD HAVE DONE BUT DID NOT, AND FINALLY FOUND OUT THAT I HAD ADRENAL INSUFFICIENCY OR A VERY LOW CORTISOL LEVEL WHICH WAS CONFIRMED BY SEVERAL CORTISOL WITH STIMULATION LABS DONE, THE ONLY PROBLEM IS THAT THIS DOCTOR DOESNT KNOW MUCH ABOUT ENDOCRENOLOGY ,WHICH SHE ADMITS SO SHE GAVE ME A REFERAL TO AN ENDOCRENOLOGIST WHICH I CAN'T GET AN APPT. TO SEE UNTILL SEPT. ALONG WITH A LOW DOSE OF PREDNISONE TO TAKE UNTILL I SEE THIS DOCTOR WHICH FOR THE 2 DAYS I'VE TAKEN IT I'VE NOTICED AN IMPROVEMENT, I'VE BEEN SURFING ON THE WEB FOR MATERIAL ON THIS DISODER AND FOUND ALOT OF INTERESTING INFO BUT STILL HAVE SOME QUESTIONS THAT IM HOPING SOME KIND SPIRIT ON THIS BOARD COULD POSSIBLY HELP ANSWER UNTILL I SEE THIS DOCTOR, IE. HOW DO I KNOW IF I HAVE PRIMARY (ADDISON'S DISEASE) OR SECONDARY ADRENOCORTICAL INSUFFICIENCY, FROM WHAT I UNDERSTAND IS THAT PRIMARY IS A ADRENAL GLAND FAILURE AND SECONDARY IS CAUSED BY THE PITUITARY GLAND REGULATED BY THE HYPOTHALAMUS IN THE BRAIN NOT SECRETING ENOUGH (ACTH) ADRENOCORTICOTROPIC HORMONE WHICH THEN LEDS TO INSUFFICIENT CORTISOL LEVELS, SINCE I'VE BEEN HAVING ALOT OF DIZZINESS AND INNER EAR DISTURBANCES LEADS ME TO BELIEVE THAT IT MAY BE SECONDARY, DUE TO POSSIBLE DAMAGE TO THE PITUITARY OR HYPOTHALAMUS FROM SOME KIND OF INFECTION I MIGHT HAVE, WHAT QUESTIONS DO I ASK THE ENDO WHEN I FINALLY SEE HIM OR HER, AND WHAT KIND OF TESTING DO THE ENDO'S DO TO PROPERLY DX THE PROBLEM, PLEASE HELP, I'VE BEEN OUT OF WORK FOR THREE MONTHS SINCE THIS ALL STARTED AND HAVE THREE KIDS AND A MORGAGE TO PAY, MY FAMILY IS GETING WORRIED ABOUT ME BEING ABLE TO PROVIDE.





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