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Addison's Disease Message Board


Addison's Disease Board Index


I Need Some Help!
Nov 11, 2003
HI EVERYONE.

I AM SURE THAT SOME OF YOU CAN GIVE ME SOME INFORMATION, I AM FEELING VERY FRUSTATED AT THE MOMENT WITH MY DOCTOR AND CONSULTANT.

I HAVE BEEN FEELING UNWELL NOW FOR APPROXIMATELY 5 MONTHS. IV'E HAD A VERY STRESSFUL PERIOD CONTINUING OVER 18 MONTHS WHICH INCLUDED LOSING MY BROTHER-IN-LAW TO CANCER, NEARLY LOSING MY YOUNG SON TO MENINGITIS, THEN MY MUM DIED AND NOW I HAVE JUST LOST MY DAD.

I HAVE LOST WEIGHT, ALTHOUGH NOW GENERALLY STABILISED. I FEEL NAUSEOUS ON AND OFF. I HAVE HAD LOW BLOOD PRESSURE AND LOW BLOOD SUGAR. NEARLY PASSED OUT SEVERAL TIMES WHEN OUT SHOPPING. I HAVE JUST HAD AN ENDOSCOPY WHICH SHOWS I HAVE INFLAMATION OF MY STOMACH. I DON'T SLEEP WELL AND AM ALWAYS TIRED, WHEN I DO SLEEP I WAKE UP FEELING AS IF MY BODY IS SHAKING INSIDE. I HAVE HAD HEADACHES, NO VOMITING, JUST RETCHING WHICH IS AWFUL. I GET CRAMP IN MY FEET AND LEGS, AND AN ODD NUMB/TINGLY SENSATION IN MY HANDS AND ARMS. IF I OVERDO IT AT WORK ETC I SHAKE AND FEEL REALLY ILL. AND ONLY FEEL BETTER AFTER A SLEEP. IF I BURN OR GRAZE MYSELF THE SCAR HEALS TO A DARK BROWN. I HAVE AN OLIVE COMPLEXION AND TAN REALLY EASILY, AS I DID ON HOLIDAY THIS YEAR, I STILL HAVE A VERY DARK TAN. SURELY THIS SHOULD HAVE GONE BY NOW? I ALSO FELT TERRIBLE IN THE HEAT, NEARLY PASSING OUT ETC.

IF I HURT MYSELF I AM EITHER NEARLY SICK OR I FEEL AS THOUGH I AM GOING TO PASS OUT, OR SOMETIMES BOTH.

I DON'T HAVE PERIODS ANYMORE, THEY STOPPED IN JULY THIS YEAR, AFTER BEING IRREGULAR FOR A COUPLE OF YEARS. IT WAS SUGGESTED THAT I WAS GOING THROUGH THE MENOPAUSE (I AM 44)

I HAVE THIS LUMP AS THE BOTTOM OF MY THROAT. I HAVE MENTIONED THIS TIME AND AGAIN TO MY DOCTOR BUT HE HAS TAKEN NO NOTICE. IN FRUSTRATION I LOOKED IN MY MEDICAL BOOK TODAY AND FOUND THAT IT IS MY THYROID GLAND. IF THIS IS SWOLLEN IT CAN BE A SIGN OF ADDISONS DUE TO THE IMMUNE SYSTEM NOT WORKING PROPERLY. I WANT TO TELL MY DOCTOR AND CONSULTANT THIS BUT AM AFRAID THAT THEY WILL JUST DISREGARD IT AS NOTHING WAS FOUND THERE DURING THE ENDOSCOPY. WOULD THIS SHOW UP ON AN EXAMINATION?

I HAVE JUST DONE A 24 HOUR URINE SAMPLE WHICH IS BEING CHECKED FOR CORTISOL LEVELS. NO RESULT AS YET. A BLOOD TEST WAS DONE, BUT IT WAS TAKEN IN THE AFTERNOON, WHICH I UNDERSTAND IS THE WRONG TIME TO DO THIS TEST. I GET THE FEELING THAT MY CONSULTANT (OR RATHER HIS SIDE KICK) JUST THINKS I AM A NUISANCE OR HYPOCONDRIAC.

I AM ON ANTI DEPRESSANTS AT THE MOMENT, WHICH AREN'T HELPING AT ALL. I FIND IT HARD TO BE HAPPY AND I WAS ALWAYS A CAREFREE PERSON, WELL, BIT OF A NUTTER REALLY IF YOU ASK MY FAMILY AND FRIENDS.

SORRY TO HAVE RAMBLED ON BUT I AM AT MY WITS END. I HATE FEELING THIS ILL.





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